Just been 'marked' up for surgery tomorrow...eeek!

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qwerty1
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Date Joined Feb 2009
Total Posts : 402
   Posted 4/8/2011 6:25 AM (GMT -6)   
I've just been to see the stoma nurse and been marked up...I'm going into hospital tomorrow morning for a Proctocolectomy and pouch. The main thing I'm feeling at the moment is hunger!!

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 4/8/2011 7:44 AM (GMT -6)   
I was so hungry then too! After surgery, you'll probably be more thirsty than hungry, and they only let you have ice chips and a sponge for a while.... good luck!
48 years old, female.
2004 dx indeterminate colitis. Many drugs, minimal success.
2010-11 Official dx Crohn's colitis. Crazy complications -- cutaneous Crohn's, Erythema Nodosum, marginal keratitis, high fevers. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 4/8/2011 7:49 AM (GMT -6)   
Good Luck....with all the IVs you will find you won't be so hungry like blueglass says...thirsty yes.

I brought Blistex ointment for my husband's lips to keep them smooth & moist so they wouldn't dry out and possibly cracking etc. which did help a lot.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 4/8/2011 8:28 AM (GMT -6)   
Yeh I've packed Vaseline for my lips as they get dry really easily as it is. When will I be able to eat proper food again after the surgery!?
24 y/o female from UK dx with UC (Proctitis) Jan 08. Never fully been in remission, resistant to all meds apart from Pred and Infliximab. Also dx with IBS. Proctocolectomy+pouch surgery 9th April 11.
Currently taking daily:
Spasmonal x 3, Motilium x 3, Tramadol x 3, 50mg Azathioprine x 2, 60mg Seroxat (anti-anxiety), Multivitamins

ByeByeUC
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Date Joined Feb 2011
Total Posts : 4549
   Posted 4/8/2011 8:53 AM (GMT -6)   
You wont want to eat anything for several days after...you will be pretty out of it from the pain meds. They will start you will clear liquids first, then soft solids and then solids after that. I believe it was a good 6 days before I ate anything "real". Lost quite a bit of weight that week! I was in the hospital for 10 days. (only because my ileo output was high and they wanted it to slow up before they sent me home.) By the time I got home, I was eating normal food...just small amounts.

Best wishes with your surgery!
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy)6-25-10
Step 2: Take down surgery (Ileostomy reversal)10/8/10
Very pleased with my results

Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 4/8/2011 9:12 AM (GMT -6)   
Yes, you will need the blistex. I wish I would have brought that. My lips are still chapped. I think it was three days before I was eating anything, but I was mainly thirsty.

Good luck. I can't believe how fast time went. Pretty soon you will be home and feel good and be disease free.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 4/8/2011 9:57 AM (GMT -6)   
So do they 'feed' you through a drip until you can take solid food?!

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4549
   Posted 4/8/2011 10:42 AM (GMT -6)   
Yes, you will have an IV with everything you need. :-)
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy)6-25-10
Step 2: Take down surgery (Ileostomy reversal)10/8/10
Very pleased with my results

run4pancakes
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Date Joined Oct 2008
Total Posts : 938
   Posted 4/8/2011 11:18 AM (GMT -6)   
I had surgery on Tuesday morning and got soft foods on Friday, but ate too much too soon! Really take it slow so you don't end up miserable. I had a ton of painful gas and nausea from overloading my system before it was ready. Walking helped to get things moving and get rid of the gas.

Good luck tomorrow! :)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 4/8/2011 11:53 AM (GMT -6)   
run4pancakes said...
I had surgery on Tuesday morning and got soft foods on Friday, but ate too much too soon! Really take it slow so you don't end up miserable. I had a ton of painful gas and nausea from overloading my system before it was ready. Walking helped to get things moving and get rid of the gas.

Good luck tomorrow! :)
Ouch! Thats good to bear in mind. So did you feel hungry at all - is that why you ate too much too soon?!

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 4/8/2011 12:12 PM (GMT -6)   
they dont feed you like with a feeding tube, usually, its just that the stuff in the iv drips keeps you from being hungry.
 
I ate way too much at first too, not because i was hungry, but because i was so happy to get to eat whatever and not worry about it making me sick. And because i was able to eat all the stuff i hadnt been able to eat in years.  So i just stuffed it all in at once, lol.
 
good luck tomorrow!

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 4/8/2011 1:08 PM (GMT -6)   
I was hungry, but once they actually brought me the food I was only able to a little. Sounds like that was good because i didn't have any problems.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 4/8/2011 1:09 PM (GMT -6)   
Are you having your surgery on a Saturday?
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 4/8/2011 1:26 PM (GMT -6)   
Disneynut66 said...
Are you having your surgery on a Saturday?
Yep, they cancelled my original surgery date but my surgeon sent some more dates through and so they were able to fit me in tomorrow.
24 y/o female from UK dx with UC (Proctitis) Jan 08. Never fully been in remission, resistant to all meds apart from Pred and Infliximab. Also dx with IBS. Proctocolectomy+pouch surgery 9th April 11.
Currently taking daily:
Spasmonal x 3, Motilium x 3, Tramadol x 3, 50mg Azathioprine x 2, 60mg Seroxat (anti-anxiety), Multivitamins

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 4/8/2011 2:05 PM (GMT -6)   
I think I was more excited about the idea of eating than actually hungry. Although, I was still on 20 mg prednisone at the time so I was somewhat hungry by then. The first few days I couldn't even think about food, but I went through lots of ice! My mouth was constantly dry.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 4/10/2011 5:21 PM (GMT -6)   
Just wanted to add a post to tell you I hope your surgery went well and you are recovering smoothly. Looking forward to hearing an update when you feel up to it. Take care and get lots of rest. :)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 4/10/2011 6:35 PM (GMT -6)   
I second that pancakes!
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.
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