Was your period weird after surgery?

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blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 4/10/2011 2:26 PM (GMT -6)   
OK, this is for the women.... I just got my first period after surgery, and boy is it heavy and crampy from the start. I'm still bleeding from my open butt wound, and my stoma was kind of active this morning when I changed my pouch..... so, if it weren't so uncomfortable, I might just spend the day lying naked in the bathtub, hosing myself down several times an hour..... just a lot of fluid today,and it's still hard for me to sit on the toilet.

I am perimenopausal, so my period was getting a bit weird before surgery. I hoped the surgery would just put me in menopause, but no such luck. I sort of feel like I'm having two periods at once, since I missed one....

I was wondering if the surgery shifted some of my remaining organs around and if that's somehow related.....

Before I couldn't take drugs that work for cramps (eg naproxen, ibuprofen) due to IBD, now I can't because I'm on coumadin..... oh well, at least I'm used to it (heat helps).

Not a big deal in the scheme of things but I'm curious about others' experiences.... some of you shared some on an earlier, less specific post.

ByeByeUC
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Date Joined Feb 2011
Total Posts : 4544
   Posted 4/10/2011 3:52 PM (GMT -6)   
I got my period in the hospital 2 days after my 1st surgery. That was absolutley horrible! I wasn't supposed to get it but I remember the nurse saying that the stress of surgery can bring on your period and just make it whacky for a while. Then I didn't get it at all for 2 months. It finally got back on track. I wish it would just go away too! I'm 42 so I guess I still have a little while to go yet.
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy)6-25-10
Step 2: Take down surgery (Ileostomy reversal)10/8/10
Very pleased with my results

run4pancakes
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Date Joined Oct 2008
Total Posts : 938
   Posted 4/10/2011 4:09 PM (GMT -6)   
I also got mine a day or two after surgery. This was my first one since getting pregnant and having my baby, so it was weird. I don't know if it was surgery or being the first time post-partum....probably both. My main issue was it would stop and then start up again.

Blueheron
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Date Joined Feb 2010
Total Posts : 720
   Posted 4/10/2011 4:17 PM (GMT -6)   
Mine was wacky for about two months. And this was even when I was on oral contraceptives which I have taken to regulate my cycle since I was 16 (otherwise I get my period non-stop every day - yikes!) The pill usually makes one's cycle absolutely predictable so I was really surprised that surgery messed it up so much. It was super heavy and came way late. It is back to normal now though.

I also had a tiny bit of spotting right after surgery, and my surgeon said sometimes that area can get moved and bumped a bit during surgery which can cause this. It went away after three days.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 269
   Posted 4/10/2011 8:22 PM (GMT -6)   
After my surgery I didn't have to worry about my period at all. I was on birth control and it worked perfectly.

I'm on a birth control called Depo-Provera. It's a shot once every three months; I hate needles, but it's worth it. You don't have your period while on Depo Provera. It was honestly one of the best decisions ever. I never have to worry about getting my period, which is such a plus with dealing with surgeries, hospital stays and doctor's constantly down around that area. Also, it's one less pill every day!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/10/2011 8:35 PM (GMT -6)   
after surgery i had mine all the time, it never stopped, it had been messed up before, from the pred but not as bad.  I went for two years having it almost every day, not always heavy, but always bleeding, and i finally talked to the dr about it and got a mirena.  I had to pay for it out of pocket, cause my insurance wouldn't pay.  Anyway, after about two or three months it really started working and is helping a lot.  I still sometimes have spotting about once a month, it's so light i can just use a panty liner and it rarely even gets on there.  about every 3-4 months i have an actual period with cramps, and some heavier bleeding, but even then it's not that bad, only lasts 2 or 3 days and even then i could probably go with just a panty liner.
but i think its normal for it to stay messed up for 3-6 months

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 4/11/2011 5:05 AM (GMT -6)   
Thanks everyone..... took me a while, but I remembered that the nurse told me heavy periods were a side effect of the blood thinner that I'm taking because they found a clot when they did a CT to find an abscess. Good to have an explanation, but this is the worst, i.e. heaviest, period I have every had in my life.....I've gone through a whole box of overnight pads in a day, three pairs of pants yesterday, etc etc...... oh well. Just another thing I guess.

I'm on coumadin until September; I hope it isn't always this bad. I'm reluctant to take a birth control variation, since I don't need it for that, and it's more drugs.... but I need to see how this plays out; it's only been a day.
48 years old, female.
2004 dx indeterminate colitis. Many drugs, minimal success.
2010-11 Official dx Crohn's colitis. Crazy complications -- cutaneous Crohn's, Erythema Nodosum, marginal keratitis, high fevers. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 4/26/2011 6:10 AM (GMT -6)   
Or a question mark, as in, do I really have to do this AGAIN?????
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

windy city
Veteran Member


Date Joined Dec 2010
Total Posts : 607
   Posted 4/26/2011 11:08 AM (GMT -6)   
My total colectomy was July 2010, got my menstation when I was packing that morning, leaving for the hospital. Yippee for me. Following surgery, still normal. Well, I had severe complications from surgery and was hospitalized 5 weeks. On antibiotics, 3 more surgeries, different blood thinners, malnurished, 35lb weightloss. Guess what...got it right on time again 28 days later. But it was very light and for a longer duration. I was told by my female infectious disease doctor that my menstration will be wacky. But, surprising enough, after I was discharged until now, it hasn't changed in any way. I'm even surprised. All that stress on my body and my menstration was not affected.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 4/26/2011 11:12 AM (GMT -6)   
Windy city that's great. How old are you (about)? I'm at the age where periods can be pretty wacky even without surgery.

Does your name refer to Chicago? I grew up there....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery
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