Home after takedown

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worried mom 1
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 4/10/2011 5:09 PM (GMT -6)   
 
 Hi everyone,
  Just got home today after her takedown surgery on Wednesday.  First my daughter had it done in 2-steps.  She said this surgery hurts worse then the first one.  She has alot of stomach pain.  I am sure this is normal.  It also hurts while she is eating and afterwards.  Is this normal.  Also the doctor said she would be going a lot and she is not.  Is this the way it starts out.  I am not complaining.  But thought she would be going more.  Butt isn't sore.  They have her on a regular diet now.   Just told her to stay away from spicy foods for now.  Any input would be aprreciated.  Thanks

Bay Area Guy
Regular Member


Date Joined Jul 2010
Total Posts : 301
   Posted 4/10/2011 9:20 PM (GMT -6)   
I had a temp ileostomy reversed in July, 2010 after having had the bad for about two and a half months. I didn't have a lot of post-op pain from the stiches or anything like that, but I had enough gas to send a rocket to the moon and back. The best thing for that is to walk.....and walk.....and walk.....and then, for good measure.....walk. I spent the second night after the reversal walking from about 10PM to maybe 4AM, with about ten minutes between walks just to rest a little. The pain was very intense. Then, about 4AM, I started to go......and go.....and go.....and, for good measure.....go. I believe between 4AM and 8PM, I had 15 bowel movements. My surgeon finally took pity on me after 8PM when the nurses called her and she said I could have an immodium. That was the first and, as it turns out, the only one I had to take.

Even though they told me I could have a normal diet, I stayed on the ostomy diet for about three weeks after my surgery and then started to gradually add things back in. The hardest part for me, since I love them so much, was delaying eating veggies like broccoli and cauliflower. But I eat those now with no problems.

Even after I got home, I continued to walk three times a day until I could get back to a regular daily workout at the gym. That finally happened in mid to late August. My ostomy wound needed to be packed as it was still seeping even after I got out of the hospital, so my surgeon didn't clear me (nor did I clear myself) for anything heavy until that was all healed.

Everything is fine now, and will be soon for your daughter as well. Congrats on getting home and best wishes for a speedy recovery.

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 4/10/2011 10:06 PM (GMT -6)   
I am glad she is home! Since I did this 2 days before it is fresh in my mind so I will tell you my experience.

I have pain because they had to cut a little muscle to manuever. I am on way less pain medication than surgery 1 and I was in the hospital longer the first time so it's hard to tell, but I can get around so much better ths time.

I haven't been going that much, but I haven't been eating much either. I was told to be on a liquid diet for a week after I left the hospital so maybe she should go to more liquidy foods...maybe that will help the pain.

I started metimucil today (1 t) in a warm glass of water. That helped a bunch with the cramping. Also helped butt burn, but it sounds like she is lucky as far as that goes.

I really think that changing her diet for a few days might work. She could have a partial obstruction??? That's why my dr told me to have a liquid diet for 10 days afterwards (I am careful, but I didn't last that long on an all liquid diet).

Keep us posted. Glad you have her home.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step April 4, 2011. So done with this disease.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/10/2011 10:28 PM (GMT -6)   
Glad the surgery is over and she is home. I hope things improve quickly for her so she is out of the pain. I know it's tough for you seeing her going through this right now.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Rachel's Mom
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 4/11/2011 7:42 AM (GMT -6)   
Hope she starts feeling better soon, worried mom - so glad she has the surgery behind her now. We were certainly thinking of her.

Disneynut - does the liquid diet include things like Ensure, milkshakes, and cream soups? Just wondering because 10 days on a clear liquid diet would be awful! My daughter doesn't have the weight to spare!

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 4/11/2011 10:23 AM (GMT -6)   
I was on a clear diet for 3 days (plus the prep). Then liquid diet...oatmeal, shakes, ensure, etc. I know someone else on here had problems when they went to solid food too quickly. I was surprised because the dr wanted me on a liquid diet longer this time than after my first surgery.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step April 4, 2011. So done with this disease.

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 4/11/2011 10:38 AM (GMT -6)   
Dillon had gas pains for a while and said it hurt "inside" every now and then. The surgeon said the pain was where the small intestine was re-attached (under the old ileostomy site). I cannot remember how long this went on....but I am thinking about a month, however it slowly gets less and less.

As to the frequency of BMs... everyone is different. As long as your daughter is not nauseated or vomiting I would think that she is just lucky and is going to have fewer bms. However, if you are at all concerned call your surgeon. Obstructions are something that need to be on your radar for the next month or so.
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4549
   Posted 4/11/2011 10:56 AM (GMT -6)   
I had bad gas pains for about 2 weeks right after takedown and then it all started to calm down. This is completely normal. It is very uncomfortable though. My surgeon also told me I would be going to the bathroom a lot (like 15x a day) but I never came close to that. From the beginning I was going about 6 to 8x a day and now I am down to about 4x on the average. Everyone is different and as long as she is going to the bathroom all is OK.

She should be able to eat normal foods. But I would start out slow and in small quantities. She will start feeling better with each passing day. Best wishes to her!
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy)6-25-10
Step 2: Take down surgery (Ileostomy reversal)10/8/10
Very pleased with my results

worried mom 1
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 4/11/2011 12:31 PM (GMT -6)   
Thanks everyone for the input. Today not so much pain she doesn't think it is gas pain. But it could be. They had her on solid food before we left the hospital. Ice chips first, clear liquids , then full liquids, and then regular diet. She didn't have any prep before surgery. She is taking it slow eating. She knows by now not push it. Was just worried the surgeon told her she would be going alot. I am not complaining she isn't. She is going so I am glad for that. It makes me feel alot better talking with you on here. Don't know what I would do with out this site.
People probably get tired of hearing me say the people on healing well said this or they said that. lol



Disney hope you are doing okay with your surgery

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 4/11/2011 1:30 PM (GMT -6)   
I know my friends get tired of me talking about all the wonderful HW people!

I am glad she is doing better. It is still really soon after her surgery. I went through some depression for a day or so because I realized I had a long road ahead of me. However, then I couldn't sleep and went to j-pouch.org and realized how well I really am doing. I go on average 6-8 times a day, not much gas pains and everything is coming out just fine. I have some nausea at night which I can't figure out, which is affecting my sleep, but other than that I'm doing great.

I hope she keeps feeling better and better.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step April 4, 2011. So done with this disease.

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 4/11/2011 6:01 PM (GMT -6)   
Glad she is doing so well! :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/
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