Skin irritation on outside perimeter of wafer

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Blueheron
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Date Joined Feb 2010
Total Posts : 720
   Posted 4/10/2011 10:18 PM (GMT -6)   
Does anyone get skin irritation just around the outside of the wafer?  I have been getting these little pimple-like things only in a tiny strip where the edge of the wafer meets my skin... not under it at all.  They also aren't around the whole wafer.  Just on the side of my incision and a little bit on the top.  They aren't a huge deal, but hurt and itch a little.  Sometimes after they form, I trim the edge of the wafer a bit  to expose them fully and they go away really quickly.  I used a little bit of skin prep just under the outside edge of the wafer and it seems to help, but then my wafer peels up some.  Thoughts?
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 4/11/2011 12:10 AM (GMT -6)   
I get them but have no idea why, or how to get rid of them.Yeah right at the edge. I wondered if it was the edge of the flange rubbing a little against skin.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 4/11/2011 5:28 AM (GMT -6)   
Yes I get them at times too and becomes very itchy, Have no idea either! Just thought it was the heat through summer.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 4/11/2011 5:31 AM (GMT -6)   
Would something like the sure seals help? They'd keep the wafer down better. Just a thought.
48 years old, female.
2004 dx indeterminate colitis. Many drugs, minimal success.
2010-11 Official dx Crohn's colitis. Crazy complications -- cutaneous Crohn's, Erythema Nodosum, marginal keratitis, high fevers. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 4/11/2011 6:26 AM (GMT -6)   
I assume these are adhesive burns. I showed my colorectal surgeon the redness and that is what he said it is. He told me to stand up when applying my wafer and to never apply it while lying down. Since I have been standing while applying the wafer, the redness and rash is gone.
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 4/11/2011 6:27 AM (GMT -6)   
I have this same thing! It's only under the tape part. I thought I was weird or something. I have no idea what causes it or how to get rid of it, but I'm just happy that it's not just me. :-) I will be keeping an eye on this to see if there are any solutions shared.

blueglass: I use the Adapt barrier rings which I believe are similar to the sure seals.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 4/11/2011 7:07 AM (GMT -6)   
run4: I think the adapt rings are like the eakin seals, not the sure seals. The sure seals are a clear plastic that goes beyond the wafer, on the outside, to hold it down better and keep it more waterproof.

I would imagine the sure seals would be irritating if you had the pimples, but could prevent them if they're caused by the edge of the wafer rubbing on the skin, as they keep the wafer down really well. You could always cut out a little piece where the pimple actually is.
48 years old, female.
2004 dx indeterminate colitis. Many drugs, minimal success.
2010-11 Official dx Crohn's colitis. Crazy complications -- cutaneous Crohn's, Erythema Nodosum, marginal keratitis, high fevers. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 4/11/2011 4:47 PM (GMT -6)   
I got confused thinking sure seals and eakin seals were the same thing.

When I took my old pouch off today, I did it in the shower and used the adhesive remover wipes. It came off more easily, so I'm hoping that helps cut down on the irritation. I put stoma powder on the ones that were red/open. I did that last time too, and it seemed to heal it all up a bit.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 4/12/2011 11:12 AM (GMT -6)   
just a thought as I haven't had this happen before, but maybe it's hair follicle irritation and if you shaved the hair away it wouldn't happen. I know lots of people shave the wafer area to avoid irritation of at least some kind if not this particular irritation.
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery step 1 of 2 3/21/11

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 4/12/2011 2:39 PM (GMT -6)   
I was thinking same as betsronie as for the first few months after my surgery my hair follicles were raised as it was constantly like having a waxing session after this they settled down and the hair never grew back. The same thing happened when I had to have the ileo resited from my left hand side to my right hand side due to an abcess. Could try shaving area to reduce this but it will gradually settle down on it's own if it is the hair follicles.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 4/14/2011 3:45 PM (GMT -6)   
I do shave with an electric razor (too avoid razor burn) when I change to prevent even the tiniest of hairs from getting yanked on when I remove the appliance next time. Just by chance, I had put my wafer on standing up last time and have a lot less irritation this time. Answers4me2, you may be on to something there. I will have to see if this good trend continues. I had also used a little more skin prep just right around the edge last time, so this may have made a difference too. Skin prep does make my wafer peel up some, but as long as I use it in moderation and have an Eakin Seal on, this minor peeling doesn't cause any issues with leaking.

Next time I will try no skin prep and just standing up to see if I can isolate the variables:)
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010
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