Hi again Hodaya & Rosemary, Thanks for your replies. As you can tell, I am still trying to figure things out because I just have to make the best decision possible! One point I don't think either or you understood (probably my poor explanation) is that about
1/2 of the time everything works fine; I have "normal formed BM's - rectally or just a small amount of "pasty" stool goes into my pouch. What is great about
this is when the BM's are normal there is no butt burn and because not much goes into my pouch, I can wear a "closed-end" pouch all day, which I prefer to the "drainable pouches." The other 1/2 of the time (maybe 3 or 5 days/wk) though, for some reason I have diarrhea (butt-burn) and eventually I have to take 2-3 Lomotils and usually one 500 mg Vicodin. All "action" eventually stops and next thing you know, I am constipated. For some reason, Rosemary, the Valium always gets things moving again for me (but it does make me "a little" out of it mentally).
What I want to know is, Can I person use a convatec moldable wafer over a stoma that "sticks out?" When I had such a stoma for the first month after my surgery they told me I had to use the type of wafer that you have to "cut to size." It wasn't moldable and I had to use stoma paste, stoma powder and the skin protection spray. With my retracted stoma I just use the moldable wafer and the Eakin Seal and I hardly ever (maybe once every 3 wks) get a leak. Also can you put on a new appliance and bag without being able to look in a mirror. That is one problem I have. If I were in a bathroom stall at a public place and I got a leak I can't just look at my abdomen and line up the wafer with the "hole" in my stomach. Can you apply an appliance with a stoma that "sticks out" without the benefit of standing in front of a mirror? Thanks again for all of your help!
Hodaya, I looked at the Isralie Website but couldn't figure out how to view your picture. Hey, do you have a FaceBook Page? Rosemary, I certainly hope your dental problems have been resolved so you can "get on" with all of the fun things you have planned. When are you and Hodaya going to get together?
Post Edited (Gilda) : 4/13/2011 12:02:12 PM (GMT-6)