Posted 7/26/2015 8:03 AM (GMT -6)
Before I get into this post, I need to tell you if I repeat things already written or write things that don't make sense, please forgive me. I'm having serious memory problems. Doc thinks it's due to medication, but I'm on so many it may take time to figure out which one(s). I also lose time--can't recall hours or days.
For example, a week or so ago, I went to bed w/ a small amount of stool in my bag. I woke up at 3am to see if i needed to empty, only to realize i had a brand new bag on--no question! The worst part, I couldn't find the used bag. I checked everywhere in my apartment and even went and checked the whole building, outside area, and my car. No luck. Never did find it.
I recently have had the same issues w/ the smell. Can't connect it to anything I ate though.Can't figure out why the smell is there. Even talked to my ostomy nurse and she didn't know.
But she did say one thing…if you have extra supplies that you take with you, store in your car, etc., folding the bags in half (or however you might fold it), can cause problems where the fold is--it can degrade the bag, causing tiny holes which would create odor, but not leakage.
On another note, the hydrogen peroxide has no affect on integrity of the bag? What if you have a filter?
Does it mean less wear time?
I have tried mints, sprays, deodorizers in the bag, and of course room sprays, etc, devrom pills. Nothing works too well. Recently heard about a product where you put a drop into the toilet before emptying that supposedly helps w/ odor. Anyone tried that? Does it work? Waste of $$?
Sorry I had nothing to add, but I do feel for you... I thought I was the only one w/ problems with odor when wearing the bag. I'm constantly sniffing, to detect any odor, and figure out where it's coming from! Odor problems both when wearing the bag and when emptying, really suck!
I HAVE HOPE
Many challenges, lots I am thankful for.
spina bifida dx age 20, chronic back pain (surgery: tethered spinal cord, spinal fluid leak), neurogenic bladder (augment w/ stoma, sling-2015), chronic migraine, TMJ, bulging discs etc C3-C6, neurogenic bowel, colostomy-2015, bipolar type 2, anxiety, fibromyalgia, severe nausea, hysterectomy+salpingo-oophorectomy 2015, and more. Gonna be ok!