what appliance to use under bathingsuit when you have perm ileo

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Date Joined Aug 2008
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   Posted 4/14/2011 12:40 PM (GMT -6)   
     I think Summerstorm mentioned what she uses but I forgot (old head).  With summer right around the corner, I sure want to get some swimming in this year as last year was a total wipeout.  Any suggestions out there as to the type of appliance you use under the bathingsuit.  Unfortunately, my bikini days are long over devil .

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Date Joined Feb 2011
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   Posted 4/14/2011 1:46 PM (GMT -6)   
I just use my normal bag and wafer but then I wear surf board shorts and bikini top.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

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Date Joined Dec 2008
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   Posted 4/14/2011 7:25 PM (GMT -6)   
Hi there...I use my same accessory system being Hollister 88300 or 88302 with an Eakin Seal...but when I swim or do water activities I cover the edges of my wafer with 3M transpore tape and then use the Glad Press'n Seal saran on top of that and I normally have very little water leakage : ) That's what worked for me last year. I use the transpore in the shower too and can keep an accessory for 7-9 days!
30 year old Mommy of an amazing 3 year old!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!

"Illusions are the truth we live by until we know better." - Nancy Gibbs

Another UC wife
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   Posted 4/15/2011 6:59 AM (GMT -6)   
Haven't gone in the pool yet - but hubby just started using the Sure Seals (we got the larger ones as the smaller ones didn't cover the outer area of the wafer by much at all) So far the past 2 changes it really does look like it will provide a good outer seal.

(The glad press and seal...do you need to wrap that totally around you to seal it onto itself to make a full seal?)
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Equestrian Mom
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Date Joined Mar 2008
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   Posted 4/15/2011 3:20 PM (GMT -6)   
I don't change anything...I use the Coloplast Assura Extended Wear, an Eakin and A Sure Seal. Not had a problem :-)
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

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Date Joined Feb 2003
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   Posted 4/16/2011 4:01 AM (GMT -6)   
I don't change anything from my normal setup either, just put on my bathing suit and swim :)
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums


I'm not a complete idiot - some parts of me are missing!

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Date Joined Aug 2006
Total Posts : 6571
   Posted 4/16/2011 10:02 PM (GMT -6)   
just my plain old hollister new image, but i do wear a sure seal all the time, that really helps
and i wear the tankini suits, but i wore those before hand, but they work really well to hide the bag but the only thing i do is safety pin the top to the bottom, on the OPPOSITE side, lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

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Date Joined Jul 2007
Total Posts : 2765
   Posted 4/17/2011 3:49 AM (GMT -6)   
I live in Florida and swim a lot... in the salt water Gulf of Mexico and in chlorine swimming pools and water parks. I just wear my usual, everyday Coloplast Assura Extended Wear wafer and pouch, put on a one-piece with a skirt wink and go swimming!

I was amazed the first time I went swimming in a pool, and the wafer actually stayed on. I was expecting it to fall off as soon as I took my bathing suit off, but it held it's seal perfectly. That was 5 years ago, and I've never had a problem since.

Everyone is different, and what works for me might not work for you, so you just have to try out different wafers and products to see what works best for you. You could always test them out in your bathtub at home to make sure it's going to hold it's seal under water before you go out swimming in public.

Once you find the product that works for you, go out there and have fun! :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

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Date Joined Aug 2008
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   Posted 4/17/2011 8:15 AM (GMT -6)   
     FLchurchlady....I'm Jealous!!!! scool
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