Has anyone regained their normal weight after an Ileostomy?

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New Member

Date Joined Mar 2011
Total Posts : 5
   Posted 4/14/2011 10:30 PM (GMT -6)   
After having an Ileostomy 6 weeks ago due to U.C. and losing about 15 lbs.
total from before and after procedure. I'm curious as to how many of you
have struggled to regain your normal weight or how long did it take?

Regular Member

Date Joined May 2009
Total Posts : 194
   Posted 4/14/2011 11:17 PM (GMT -6)   
Hi Rock,
First I had a Sub-Total colectomy (2009) and I lost 30 pounds.  The sub-total didn't work out for me so in Nov. 2010 I had an ileostomy.  I have only been able to gain back 3 pounds since the ileostomy!  I am rarely hungry plus everything goes thru you quickly after an ileo.  I have talked to people who actually gained back their pre-surgery weight plus more though, so don't get discouraged!  Maybe you will gain back the weight quickly.
Good Luck!

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 4/15/2011 5:30 AM (GMT -6)   
I was very sick at the time of my surgery so I had already lost 30 pounds before the surgery. I gained 20 pounds back within 2 months, and now it's been a year since the surgery and I've gainved back all the 30 pounds and then some. I am now trying to watch my weight.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Regular Member

Date Joined Aug 2010
Total Posts : 130
   Posted 4/15/2011 6:28 AM (GMT -6)   
hi - i was well underweight at 8.5 stone for many many years & could only put on a few pounds when on prednisone - durning my hosp visit i dropped back to just under 8 stone but now after my perm ileo in may '10 i have steadlily gained weight to a normal 10.5 stone & i am keeping my eye on it so as not to go too far up - i have a good appetite - i dont recall when exactly how long after the op when my weight began to rise but i suspect that it did take a month or two to begin probably when most of the healing was well under way & i was over the shock/ trauma of the process

i wish you a great recovery
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!

Another UC wife
Veteran Member

Date Joined Jun 2007
Total Posts : 2111
   Posted 4/15/2011 7:54 AM (GMT -6)   
Hubby has lost a lot of weight over the years before surgery which he needed but definitely not losing it that way. He actually looks very good and it was a help I am sure for the surgery as well. I think about 40 lbs altogether. He has put on about 7-8 pounds since surgery 4 months ago but has NO plans on putting on any more either as he feels better with the weight off and also prefers the way he looks right now too.

Plus I have told him I have read that it is really not a very good idea to put on too much weight as it can adversely affect the wafer etc??? I think.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Veteran Member

Date Joined Feb 2011
Total Posts : 1059
   Posted 4/15/2011 1:07 PM (GMT -6)   
When the CD is in remission I can maintain my body weight at 12.5 stones and I put weight in after my ileo surgery. Then again as I only have a small amount of small bowel and have absorbtion issues I need to eat approx 4000 calories a day. Bring on the donuts!
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Veteran Member

Date Joined Feb 2011
Total Posts : 4549
   Posted 4/15/2011 3:50 PM (GMT -6)   
I had a temporary loop ileo for 3 months and the whole time I had it I ate anything I wanted and never gained an ounce. It seemed like everything just passed right thru me. I had the ileo reversed (I had J pouch surgery) and once I was all hooked back up, I finally put some much needed weight back on.
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy)6-25-10
Step 2: Take down surgery (Ileostomy reversal)10/8/10
Very pleased with my results

windy city
Veteran Member

Date Joined Dec 2010
Total Posts : 607
   Posted 4/15/2011 5:55 PM (GMT -6)   
I had total colectomy performed with many serious complications, including a temp ileo.  After hospital discharge of 38 days, I lost over 30lbs.  In 3 months, I gained 20 and then over Christmas I gained the remaining 10.  So, in aprox. 4 months I gained all of it back.  And everything went through my ileo also, my weight gain was remarkable.  I can eat whatever I want, no restrictions except some raw veggies...just scared.  Everyone's different, it takes time though, and also what meds your on, I had recurring diverticulitis so no meds before or after.  Good luck!!!

New Member

Date Joined Mar 2011
Total Posts : 5
   Posted 4/15/2011 11:24 PM (GMT -6)   
I understand all of us have different medical issues regarding the ileostomy procedure, for which makes it hard to regain your normal weight. But it's good  to know the majority of you were able to get back to your normal weight and maybe more. The fact that the more you eat, the more you empty out much quicker. It made me wonder if regaining your weight back was possible.
   My appetite is real good, no meds at the moment, but I guess I need to be patient and possibly try some different nutritional meals that won't slip out as quick.
     I want to thank all of you for your honest answers and hope others who have had or in the process having the Ileostomy procedure understand some important experiences that will be part of a strong recovery.

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 4/16/2011 4:59 AM (GMT -6)   
Bear in mind, it's 35 years since my surgery. Now I'm having to diet and am happy to say I've lost 13kgs (26 pounds) in the last 5 months but still have another 13 kgs+ still to go :(
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

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