Blueheron, hope you're doing better today. I was thinking today that I barely remember my pre IBD days, well, I remember in my head being in school and waiting til I got home for a bowel movement because I didn't like the public bathrooms..... but I don't really remember in my body what it was like to be able to do that.... I did have a moment like that a few days ago, though, where I was out at a public bathroom and thought I could just wait until I got home, and that was nice.
Even people w/no gi problems have some "where is the bathroom" moments. Easy for us to forget that....
I think my current anxiety about
bathrooms has happened mainly at large events w/uncomfortable chairs (butt wound is not healed yet), and that it's partly a more general anxiety that's getting focused where I'm used to. Today I went into work for a bit (I'm still on leave) and saw people in small, behind-the-scenes kinds of ways (with softer chairs) and I was fine. Good to experience.
I do think little pity parties are OK..... just no pity proms or gala pity balls
48 years old, female.
2004 dx indeterminate colitis. Many drugs, minimal success.
2010-11 Official dx Crohn's colitis. Crazy complications -- cutaneous Crohn's, Erythema Nodosum, marginal keratitis, high fevers. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery