I have had several temp ostomies before but now I have a perm.
My output has been so much, I require Sandostatin shots in addition to Questran, Metamucil, Imodium, and Lomotil. The problem is that after my 2 AM BM, the stool turns watery until the next afternoon when it begins to thicken up again. That time between 2 AM and when I get up, the watery stools loosen the flange by puddling in the bag while I sleep on my back. I have had intermittent luck withSure Seals to contain it but I can not depend on it lasting more than a day or so. I try to keep track of what I did to get 2-3 days out of a change by trying bigger flanges (all 1 1/4" stoma), convex wafers, etc.
Four days ago it came off during the night and rather than wake my wife, I just got cleaned up and slapped on a one piece flat outfit with a small Sure Seal while standing in front of the mirror then went back to bed. That quick repair lasted 3 days! However, yesterday while laying, my wife prepped the skin, put on a wafer with more area, and a big Sure seal. Everything looked great for a good install. This morning it started to turn brown around on part of the edge. This was what I thought the safest combination. The only thing diffeent than my quick fix was this time I was laying down and this time she prepped the skin.
Without the Sandostatin I will quickly dehydrate so I don't dare stop.
Comments anybody? I need help.
Grandpa Dave is 72.
IBD since 1977
Perforation and resection 1993
Diagnosed as Ulcerative Colitis 1994
IBD since 1977
Received first J-Pouch 1997
Diagnosed as Chron's 2004
Redo, resection, and remove camera capsule 2005
Contracted Scleritis of the Eye 2008
Mild Stroke 2009.
Permenant Ileostomy 2011.
Older than dirt
Post Edited (Dave D) : 4/20/2011 9:55:39 AM (GMT-6)