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puddney
New Member


Date Joined Mar 2011
Total Posts : 13
   Posted 4/21/2011 4:44 PM (GMT -6)   
hi everyone i hope you are all well, its been 9 weeks since my ileo was done and what a change to my life,i even went out on a girlie night something i have not done for months ,
i now need your help again i now need my rectum removed and done want it done at east surrey hospital ,where i had last op, the after care was not good
can anyone tell me of a good hospital in sussex surrey where do this op

many thanks
puddney

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 4/21/2011 6:07 PM (GMT -6)   
Sorry I am in Wiltshire so not much help and anyway the aftercare at RUH is a bit hit and miss after surgery as well.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 4/22/2011 9:29 PM (GMT -6)   
puddney
Just a question. Why are you having your rectum removed? I still have my rectum and anus after 3 1/2 years with no problem.

Dan

puddney
New Member


Date Joined Mar 2011
Total Posts : 13
   Posted 4/25/2011 4:42 AM (GMT -6)   
hi dan
my rectum leaks and causes me pain the surgern said it needs to come out, as i had uc and they now think it is attacking the rectum
and the hospital where i had first op done the after care was not good i was put on early pregances unit?????

so im looking for a hospital near me but with better after care

thanks for the replys

puddney x

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 4/25/2011 4:33 PM (GMT -6)   
I had mine removed 7 years after my first ileo. I was having problems with leaks as well and also my surgeon said it should be removed at some time as I was never going to have it reversed as colon too badly diseased and that it could become cancerous if left there permanetely.

Puddney, when I was first dx with CD I went in for colonscopy and was due back at work next day. When I came round from sedation (they tried to do it at my GP surgery first before this and once they had scraped me off ceiling from the pain, said sedation may be good idea but heard them talking and they thought I was just being hysterical due to my age as I was only 18yo) this dr said we are admitting you as you have CD and I will come and explain it to you tomorrow when you're more awake. The only bed they could find was on a obs/gyn ward. So you can imagine what all the other patients thought, young very skinny girl walking around clutching stomach, they assumed I had come in and had abortion like all the other young girls in there. Once the other ladies knew, bless them they took care of me and as I was on steroids gave me their biscuits and desserts to fatten me up!
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.
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