8 days after surgery

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ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 4/22/2011 1:32 PM (GMT -6)   
I'd like to write more than this...but, at home, in recovery, seeing home health care (we'll see how much they know about ostomies...eg, if they are board certified).....
 
Long story short, did not make it to mayo....had surgery in orlando by local surgeon......turned out well so far.....As I told the surgeon, I am more worried about what the prednison has done than I am about the colon being removed......
 
The support on this site has been great, but as with all things in life, until you have a stoma, you don't really know what you are dealing with!!!
 
I was sent home with a hollister two piece, and it does not seem to be bothering my skin (the tape).  And, no leaks (knock knock!).  I changed in the hospital with the ostomy nurses help and she stated all should last at least 5 days even if i get wet in the shower (which I did last night). 
 
Other than that, feeling light headed, tired, sore, etc.
 
As far as j-pouch vs. illeostomy....will I regret my decision?  Well, may have doubts here and again, but I would not have looked forward to two surgeries..and, each time I hear another story about an ostomate who works, has kids, has a family, etc. it just encourages me more.....
 
Finally, with all the new ostomy prodcuts on the horizon (most developed by ostomy patients, I might add), I see better lives for all of us on and off of this site as time goes by...better lives as in easier living with less bags/wafers/etc.
 
God Bless everyone here who helps and who needs help..I will get my share of leaks/breaks with everyone else and will gladly tell the stories....
 
Finally, what does ground beef do to your output (as in a meated pasta sauce)? 
 
Regards,
enigma (j)
  

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 4/22/2011 2:49 PM (GMT -6)   
Enigma, welcome home! I'm glad your healing is going well. I know what you mean about the prednisone... I started testing in the osteoporosis zone in my last bone density scan, had an eye problem that might have been pred related, and who knows what else. My docs were very clear that pred was not a long term option. I truly hope to never take it again (or remicade, or humira, or cimzia, or 6MP, or cipro/flagyl for that matter....) Getting off of these awful drugs was a big reason why I agreed to the surgery.

Sorry, can't help you w/the beef question; I don't eat it.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.

2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.

Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 4/22/2011 7:04 PM (GMT -6)   
Glad to hear you're doing ok! Who did your surgery? What hospital were you at?
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 4/22/2011 9:12 PM (GMT -6)   
enigma
At 3 1/2 years I eat everything that is not stringy and you will too. Just go easy. Ground beef should not be a problem. It's not stringy.

Dan

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/22/2011 10:59 PM (GMT -6)   
Hubby loves pasta with meat sauce. I think it was about a month before he got brave and tried that. He went very slowly with foods in the beginning. That will be something you will have no problem with.

Meats with a skin and stringy stuff like Dan says should be avoided. As time goes on it will be easier with some other things so long as you chew, chew, chew well.

Hubby tried a hot dog at home and didn't want to take a chance as the outer skin just was too chewy and didn't eat it. We went out last week to a party and large hot dogs were cooked on the grill....he tried it, ate slowly, took his time with smaller bites, chewed well and did just fine and really enjoyed that hot dog!

I am trying to eat slower too so I am not done before him all the time. I find that I ate too fast and now eating slower and enjoying it more.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.
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