illeostomy reversal - is diahhrea 10 x per hour normal?

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sjone
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 4/24/2011 4:23 AM (GMT -6)   
Hi all
 
I finally had my temproary illeostomy taken down two weeks ago after 10 months and following the usual treatment for colo-rectal cancer. After a very tough first few days I am now feeling pretty good but for the fact that I am still going to the toilet up to 10 times per hour - and each time not doing very much at all. My doctor says I have to 're-train my lower bowel to work normally' and that I should 'hold it in to strengthen the muscle'. Is this the experience of others - both frequency of BM and medical advice and if so, I'd appreciate hearing about your outcomes and any tips you may have for surviving those first few months? I'm finding it very tough.
 
Also, the noises my stomach now makes, normally in the lead up to a BM, are UNBELIEVABLE. Is this normal?
 
Thanks in advance and best of luck all...
 
 

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 4/24/2011 6:30 AM (GMT -6)   
I had my take down 20 days ago. I go around 6-8 times a day, so no that's not right you are going so much. Did the dr suggest imodium? Also try benefiber or metimucil. Yes, my dr said I should hold it. It is uncomfortable for about 10 seconds them the sensation goes away for me.

Sorry you are having these troubles. Make sure you stay hydrated.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step April 4, 2011. So done with this disease.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/24/2011 8:03 AM (GMT -6)   
Everyone's normal is different but 10X per hour in 24 hours, or 240X per day is not normal. Is that what you are saying? Do try imodium or lomotil. You can take up to 8 per day. It should help to slow things down. Your dcotor is correct, your changed plumbing needs time to adapt. Are you taking any other prescription medications?

Sue

sjone
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 4/25/2011 2:20 AM (GMT -6)   
thanks both for your comments.

Disneynutt - mr dr has discouraged me from taking imodium or anything that may slow the bowel down, believing that it needs to relearn to do its job without interference (easy for himto say - he isn't flushing 10 times an hour!). i hear the logic in this, but...

can i also ask, my stomach now makes the most incredible rumbles constantly, is this normal and does it disappear?

thanks

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 4/25/2011 5:31 AM (GMT -6)   
Mine does after I have had a large meal, although I haven't eaten anything this morning and it's making some loud noises.

Have you told your dr that you are going this much? I would think that going less than 10/hr would take precedent over you training your pouch. What about at least trying the metimucil if you don't want to try the imodium? I think most colorectal surgeons recommend taking it, especially if you are going that much. Are you still going that much?
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step April 4, 2011. So done with this disease.
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