i knew about botox, but didn't even want to try it. the success rate for it is very low. it is a very painful injection, in a very delicate muscle. even if it works, the affect lasts for only few mons, maybe 3-4 mons, so you have to repeat it. i've heard there's also a little risk for incontinence. actually, i'm still wondering whether trying the botox could help and i could have success with surgery and not need the bag. but i don't know, havn't heard of anyone who it helped. and it's very expensive too.
of course it matters whether you're able to expel the stools. when the whole colon is slow, the stools doesn't even reach the rectum, but when they take your colon out and the small intestine is working fine, it will be very frustrating for you if the stools reaches the rectum, but you wont be able to expel it - you'll still be constipated! the stools may reach the rectum in a reasonalbe amount of time, but an obstructive defecation syndrom is not fun, believe me. that's why he has to check everything to be able to estimate the success of the surgery. i chose ileostomy BECAUSE i couldn't expel the stools after the colectomy. i spent hours in the b/r b/c it would only come out in little bits every 30 mins-hour and even after few hours, it still wasn't all out and making me VERY uncomfortable all day. also, laxatives didn't help, cuz even 20 cm of rectum (which are part of the colon) adapted to the laxatives and they quit helping. now with the ileostomy, the rectum is out of the way and the small intestine doesn't get used to laxatives like the colon does - i can fool it every time :p
most ppl with CI have some degree of pelvic problems, but they manage ok. my anismus is too severe + having a slow small intestine doesn't help the situation, so an ileostomy is my best option. i'm not sure about the success of biofeedback, havn't heard of anyone who has benefited from it, but i could be wrong, cuz i've never talked to ppl with normal colon transit time and only problem is anismus. all the ppl i talked to are from this site and have/had CI, and for ppl with CI it is really different.
i hope you don't need the biofeedback, but if it turns out you do, then just go along with your drs. for them, the biofeedback's purpose is to prepare you for surgery - that after surgery your pelvic will function right. don't let it stress you, it's all just part of the process before surgery. i know, it's a pain, i hated it, but you have to play along, even tho we feel it's not worth the effort.
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy