Illeostomy questions.

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Regular Member

Date Joined Apr 2011
Total Posts : 58
   Posted 4/26/2011 10:36 AM (GMT -6)   
I posted a day or so ago about my stoma not producing anything but now it seems to be filling up fairly fast. It's really annoying because I'm still in the hospital and full of aches and pains that it takes me forever to get up to the bathroom. Plus I have a really *****y roomate with me in here and Im afraid of waking her up. I've emptied my bag so many times in the last little while and I'm wondering if there's ever a consistent amount it produces. I'm on antibiotics and those can give you diarrhea and I'm assuming that me not passing anything for over 36 hours its just catching up with itself? Can someone shed some light on this? Cuz I have very bad anxiety issues and really need to feel better about this whole thing. Anything anyone could tell me would be amazing. Thank you.

Veteran Member

Date Joined Feb 2010
Total Posts : 720
   Posted 4/26/2011 11:06 AM (GMT -6)   
My output was very liquidy and abundant the first 8 weeks. I was soooo worried it would always be that way. It felt like I was in the bathroom emptying constantly and that this is what my life would be like. However, all of a sudden around 8 weeks, output slowed down and turned into a more applesauce like consistency and has been that way ever since. Now I only empty 5-6 times a day. This sounds like a lot, but it really is not. One of those is usually during the night, another when I first wake up, and then a few other scattered throughout the day. And there is never urgency.. I can wait a while to empty.... plus it is a lot faster than a UC bm. My surgeon said the small intestine had to heal and adapt to being able to pull some water out of the stool (a role normally done by the large intestine). Once this happens, the stool isn't as watery. Remember that your small intestine is likely swollen from surgery and needs to heal, this can make output very inconsistent at first.

I had some pretty bad anxiety issues right after surgery. I could not stop thinking about all the "what ifs". I can honestly say though, that most of the things I was incredibly worried about with this surgery ended up either not happening or working themselves out in the long run. Food choices, watery output, gas, leaks, skin issues, sports, clothing, intimacy, pains... you name it, and I was worried. I have had minimal problems with any of these. Any problems that have popped up have resolved themselves in time. I am now 5.5 months post-surgery and feel pretty normal.

Good luck with the room mate. Being in the hospital is so rough! You will feel better once you get home and have your own space.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Veteran Member

Date Joined Feb 2011
Total Posts : 1059
   Posted 4/26/2011 1:37 PM (GMT -6)   
It is quite normal for the output to be watery and lots of it. This will settle down in a few weeks and then you can get into a routine. Any worries you have I'm sure most of us have had them as well as some time or another, it 's only to be expected.

As for your room mate, I wouldn't worry about disturbing her if you have to go to bathroom or empty the bag. If she says anything just remind her it is a hospital that you're both in and not a hotel and therefore recovery from the surgery you had done takes the body some adjusting to.
Mind you, you're lucky to have rooms of just two people over there. In my local hospital in UK, we have wards of 6 beds minimum up to 20 beds and I can wake everyone up going to bathroom in the night as somehow I always get a drip stand that has a really loud squeeky wheel. Makes me so popular as the bathrooms are normally at end of the wards.

Post Edited (stripey) : 4/26/2011 12:40:46 PM (GMT-6)

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