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Kate48
New Member


Date Joined Apr 2011
Total Posts : 2
   Posted 4/27/2011 3:11 PM (GMT -6)   
hi i am new here and hoping to find people who understand and who are willing to post their opinions.
almost 1.5years ago i was diagnosed with colon cancer. after radiation and chemotherapy i underwent an ultra low anterior resection and loop ileostomy.
after further chemo the loop ileostomy was reversed 6 months later.
9 months later, having had untold bm issues ever since, and tried what i believe is everything i possibly can, and after constant bouts of depression and thinking i've turned the corner but only finding myself as lost as i ever was,
i am now considering going back to an ileostomy.
at least then i hope i will no longer be constantly stressed about toilet issues, can go out of the house with some degree of confidence and be free of having to wear a sanitary pad 24/7. my diet since the reversal has been most restrictive and i no longer eat any of the foods i love, especially the spicy ones because even a wee hint of spice leads to hours of torture and a burning and sore rear end. pardon if i have been too graphic.
can anyone help me with their experiences? thanks.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 4/27/2011 3:44 PM (GMT -6)   
     I am so sorry to hear you are suffering so with these health issues.  Life can really throw some real tough circumstances and, I suppose, the only thing to do is just try to get through them the best way possible.
     I didn't have cancer, I suffered with ulcerative proctitis, but I do have a permanent ileostomy.  Because of my age, 63 at time of surgery, extensive use of prednisone over the years (prednisone dependent for two years) and other health issues...high blood pressure, Type 2 Diabetes from the prednisone, my surgeon told me I was not a good candidate for j-pouch.
     Kate, I am sorry I didn't have the surgery sooner.  I had a wonderful surgeon and having a "bag" is no problem at all.  I eat anything I like as long as I chew thoroughly.  My surgeon told me I made the right decision as my rectum was badly diseased.
     I'll keep you in my prayers.  God bless.

villager
Regular Member


Date Joined Aug 2010
Total Posts : 130
   Posted 4/27/2011 4:06 PM (GMT -6)   
hi kate48, i have a permanent end ileo since may 2010, i had UC since 1990 & in 2010 was on the cusp of colon cancer when happily (!!) my doc convinced me to opt for surgery - even though i had no real choice but to go with the op & i was dreading life afterwards - i am happy now to say that it was definately the best decision i've made in years - i have my life back again - for example i walked 2 hours in a local park with no problem this afternoon, i payed badminton for 2 hours this evenin no problem - i hiked 5 hours over a 3000 foot mountain friday last no prob - in fact i well remenber doing that same hike a few years ago with UC & at that time it was hell

you might already have read the post/thread named "J-pouch vs. Ileostomy life questions" on page 2 of this forum - many members with perm ileo have described their experiences there

i wish you the very best cheers
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!

Kate48
New Member


Date Joined Apr 2011
Total Posts : 2
   Posted 4/27/2011 5:03 PM (GMT -6)   
thank you, Christine 1946 and villager for your kind and encouraging posts.
i have received virtually nil encouragement that i should even consider going back to what will now be a permanent ileostomy. but i reckon that with the location of the cancer being so low down the colon, the subsequent radiation, chemo and surgery must have been too traumatic for a decent recovery of that area.
thank you once again for your kind thoughts and i will post again after, hopefully, having had the surgery for a ileostomy to try get back my life!
 
cheers and God bless.

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 4/27/2011 8:09 PM (GMT -6)   
Kate, I too, battled colon cancer for two years. It took them 4 surgeries to get it all. Mine started in my rectum, then they found it in my sigmoid, then my lymph nodes. As of now I am clean. I now have 2 inches of my transverse colon with a colostomy. I sometimes wish they had done the ileostomy but Im doing really well with this one. It was the best decision I have made.
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