Is this retraction?

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Veteran Member

Date Joined Oct 2008
Total Posts : 938
   Posted 4/29/2011 1:22 PM (GMT -6)   
I'm a bit confused as to what my stoma is up to....

When I first had surgery, my stoma had the rod underneath it as it's a loop ileo. They took the bar out on day 2 or 3 (can't remember now) and everything was fine. The opening was in the middle, but the whole thing was swollen and it was pretty big (as is typical for a new one). Over the next few weeks it slowly shrunk like it's supposed to, but it also started rotating (for lack of a better word). At this point, the opening is very close to my skin at the top (whole thing points upward). This causes output to sometimes compromise the barrier ring and I'm fighting red, irritated skin around the top half of the stoma.

I already wear a convex wafer and the Adapt barrier ring from Hollister. I tried to only put the ring around the bottom half thinking that would help, but ended up with my first ever leak so that obviously wasn't the answer to my problem. I'm back to the full ring now, but still concerned about this.

Is this considered retraction? There is still a lot of stoma above the skin (an inch or so I guess?) but the way it sits now it's like the top half of it has pulled inside or something. What else can I try to make this work better? Will it stop rotating at some point? I'm paranoid that one day I'll pull the pouch off for a change and the opening will just be gone! I do have an appt at CC on the 9th of May which includes a visit with the stoma nurses, so I will definitely be asking about all of this....just wanted to get any opinions from you guys in the meantime.

Thanks so much!

Veteran Member

Date Joined Feb 2011
Total Posts : 1059
   Posted 4/29/2011 5:32 PM (GMT -6)   
I had same worry first time I changed the bag at home on my own and the bowel starting contracting and thought whole thing was going to disappear inside. My loop also sat very close to the skin and not very projected and did contract slightly so that instead of most of output coming out of stoma it was continuing through bowel as normal. I had another op 6 months later when I was having to have bm just as much as before op and so they did an end ileo instead which stopped the problem. The problem was my colon was so stuck together it was pulling on the stoma, so not a normal complication.

The stoma will change a lot after the surgery and I would just wait until your appt with stoma nurses and don't worry in the meantime about it disappearing - it won't. I thought the same and it never happened, even sat there not daring to breathe when it happened that first time as was too scared to move for 30 minutes.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.
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