transition out of the sick role

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blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/3/2011 6:43 AM (GMT -6)   
I'm doing rather well, so this is a good problem to have and I'm not complaining.... but I am having some trouble accepting how much people helped me while I was really sick and having surgery/recovery the last few months. Sometimes I feel like I owe people and I'll never catch up, but then I think that I'm the one who was sick and miserable all this time....

This is coming from inside me, not from anyone else.

My partner and I made it clear from the start that we didn't want a relationship based on caretaking (probably more of a risk with two women, but still a risk depending on the personalities), even though I was sick from the start .....and that was never what we were about.... but then for the last six months I've been so, so sick, and there just was no other way. And she was amazing, I am so grateful. But not wanting to be patient/caretaker anymore, and not sure how that transition works. Of course, we are talking, and I think we'll work it out (and this does seem to be more my issue).

Just wondering if anyone else has thoughts/experiences/suggestions.

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 5/3/2011 6:57 AM (GMT -6)   
Its very hard I still feel guilty for making my husband miss so many things because I couldn't do them andbecause hespent time in the hospital when I wassick. You just have to try to remember that the people who stick around and help you through it love you and that you can make it up now!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

run4pancakes
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Date Joined Oct 2008
Total Posts : 938
   Posted 5/3/2011 8:01 AM (GMT -6)   
Oh, I can so relate to this. My husband has been nothing short of amazing in taking care of me and the kids these last six weeks. He has always been good about giving me a chance to rest when flaring, etc even though he works and I dont. As I am recovering, I keep finding I have to remind him that I can do things! I think it is hard for those closest to us to get used to the healthy version just like it is for us. It's all an adjustment.

I would give up on the idea of repayment or catching up. I don't think it's something we could possibly do in this lifetime. Just express your gratitude and let her know you are there for her if she ever needs you in that way.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

Collicat
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Date Joined May 2009
Total Posts : 827
   Posted 5/3/2011 9:43 AM (GMT -6)   
This is simply what true family, people that love each other, DO. I do not believe there is any need for "repayment". If the tables were reversed I am sure you would have supported your loved one in the same manner. Just let them know how much you appreciate their support and be there for them when ever possible.
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 5/3/2011 1:10 PM (GMT -6)   
Collicat said...
This is simply what true family, people that love each other, DO. I do not believe there is any need for "repayment". If the tables were reversed I am sure you would have supported your loved one in the same manner. Just let them know how much you appreciate their support and be there for them when ever possible.
 
 
Ditto........my thoughts eactly.

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/3/2011 3:02 PM (GMT -6)   
I will admit that I have a double standard -- of course I would do the same if the situation were reversed and I wouldn't think the other person owed me anything.... but it's still hard for me to wrap my mind around how much help I needed and how much help I got....

I relate to run4pancakes saying you have to remind your husband that you can do things... I feel like all around me people now will want to carry two books for me or something like that.... things that are no big deal now. I guess this will pass soon enough...

Collicat and UC wife, your son and husband are lucky to have you in their lives.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 5/3/2011 3:24 PM (GMT -6)   
My husband would wrap me up in cotton wool if he had his won way but I am and always have been very independant. I will do things that maybe I shouldn't do like DIY around the house, I know it will make me tired and ache like hell but refuse to accept I cannot do it, so actually feel really sorry for him as he would love to take care of me and have me not do anything tiring but I'm too stubborn to give in.

But then again I do pay the price, I only got my recent flare under control on middle of March and went back to work 2 weeks later at beg of April when maybe I should have had another few weeks off to build uo stamina after being ill with it for 4 1/2 months. So last week has weeks holiday and did loads of gardening and housework and odd jobs and then crashed on Satuday as had run out of juice. Last night was really rough and had shivers, headache, cough ached all over so have caught some sort of bug. Still dragged myself into work this morning as no way was I phoning in sick having only been back a few weeks.

Felt rough as hell and came home at 3pm, my boss was great and said would rather I went home to rest than push on and be off longer again as pushed myself too hard, then she said 'you do look rough though' which sort of made me pleased as it means the steroids are obviously getting out of my system or I would look stupidly healthy.

Sat here now in two layers of everything shivering with box of tissues and hot cup of tea and taken more codeine for aches. Will spend my day off tomorrow in bed to try and shift it. So much for trying to do too much too soon. :)

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/3/2011 3:32 PM (GMT -6)   
Stripey, sorry you're not feeling well. Hope it passes soon and glad you have some time to rest. I think one of the hard things is that we don't know where the limits are until we push them. If we never overdo it, well, then we're being so careful that we don't get to do anything.

It is funny about the steroids. I have been told so many times that I looked great when I felt awful.... so nice to not be on them.

My partner hates having anyone help her with anything.... can't actually imagine the roles being reversed, because she has always been super robust, and fiercely independent. As hard as it's been for me to be the sick one, it'd be so much worse for her....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 5/3/2011 5:55 PM (GMT -6)   
You might want to write a small note to those who's help meant the most. Kind of a passage for your mind to step in to the next level of recovery. It doesn't have to be elaborate just from the heart...our bodies and minds do go through a grieving process with such an extensive surgery and we all have different ways of getting through it.

It will get easier!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 416
   Posted 5/3/2011 7:37 PM (GMT -6)   
Blueglass:

Just to comment on your post:

You sound like me when I was younger (less than 30 years old!). Anyway, I am just happy, thankful, and humbled by the help of everyone these past few weeks, and in the weeks to come....and, I would do the same for another if it was my wife, family, friends, colleagues, etc.

I have no guilt, or anything similar, type feelings about the help I've received....and, being in an especially vulnerable, and basically helpless position while in the hospital and the first 2 weeks at home.......

I don't know if you've seen the movie..it's kind of sad...but it's titled "Morey and Me" ( I think)...anyway, the guy who gets sick and passes away talks to his friend about passing away all through the movie and learning how to LIVE...one of the things he talks about is being dependant on others and how people seem to feel some shame or humiliation with that...there is no need for anyone to feel that way...if I/we are helpless and are dependant on others to get by, then that's life......I would not look down on anyone in that situation, and would not like it if anyone looked down on me if I was in that situation.....

Don't know if this helps or not....

enigma! smurf

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/4/2011 5:52 AM (GMT -6)   
Thanks. I actually bought four boxes of notecards and am working through my list of people to thank.

I have been thinking about a family member who is younger than me and who had health crisis that was quite a bit more serious than mine last year.... we were waiting to see if she'd get an organ transplant (she did, and is doing great), but she had just days to live if she didn't. Her surgery was 20 hours, and she was unconscious for two weeks after surgery.

During that time, we all just felt so helpless, and I am sure for the people who were nearby, anything they could do to help her made them feel better. My situation wasn't so extreme, but I had quite a while where I was suffering and nothing was working, and people wanted to help but there weren't many things for them to do.

I know that helping others often makes me feel connected and good.... it's just hard for me sometimes to remember that helping me could be like that for others too....

Enigma, I agree, no shame in being vulnerable, and everyone dies, many people get sick first.... but in the US, we are so big into thinking we can avoid that if we just eat the right things, buy the right creams etc.....

In any case, thanks everyone for all the reminders.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 5/4/2011 9:50 AM (GMT -6)   
Blueglass , thanks for the thoughts. Spent most of today asleep, got uo this morning and had something to eat and made some homemade chicken and sweetcorn chowder which I had for lunch. Make a huge stockpot full so lasts for few days and easy to heat and nutrious. Went back to bed and fell asleep for another 3 hours. Hubby thinks it may be a summer flu type thing cause of the aching everywhere, feels like I've been pounding away at the gym for hours - but believe me not my style :) Know probabl;y stupid idea but think I'll still go to work tomorrow and leave early as would rather be there and leave early than phone in sick. I'll never learn, but then again have a colleague's hen night sat night so have to manage to get to that.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

windy city
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Date Joined Dec 2010
Total Posts : 607
   Posted 5/4/2011 11:50 AM (GMT -6)   
I can so relate and understand. I've spent all my life being the caretaker. Divorsed mother of 2 for 6 years, lived and cared for my father until he passed last year. Was in remission for 3 years until 09 when the diverticulitis recurred. Had 6 infections until surgery last year...which didn't go well and came home 5 weeks later. I have thankfully great neighbors that checked in on me, a parent at my kids school that came and picked up & dropped them off first week, and a couple of friends that brought food every day for 1st week. 8 days later, I carefully started to drive, went shopping and got stronger. I can't be thankful enough to those that helped me, and I am so independent...I never ask. I've given back, visited the sick, even painted my friends mothers nails when she was in ICU after a coronary triple bypass because that is what a ICU nurse did for me. And I'm equally disappointed in those that made excuses and never saw me until months later. Makes me think about the significant other topic too, I enjoy my independence, and have always taken care of myself, so dating is hard because don't want to feel like a burden or overwhelmed with obstacles. I've accepted the road given to me even though I disagree with it sometimes :-) and hope to find a balance in another, giving and receiving. I don't want to be portrayed as needy, being a patient & pittied, but being alone in that condition, made me realize, evermore so, that I don't want to walk through life alone. Much strength and encouragement to all of you!!!

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 5/4/2011 12:03 PM (GMT -6)   
I think we all really find out who are friends really are when we are very ill. I used to have a large circle of people I thought were friends when I first became ill many years ago and when hardly any of them could be bothered to visit even when I was at home when I was really sick soon realised that they weren't true friends and so stopped seeing them so much and stuck with the ones that stuck by me. Now I have 4 very good friends and count myself lucky as I know they are them ones who will be there for me and I'll be there for them.

People change, friendships move on and although it is hard sometimes it is for the best. The last thing we need is people around us who take and don't give back. Bless those who surround you and rally round and those that don't - then don't worry about them.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/4/2011 12:38 PM (GMT -6)   
Stripey, glad you're getting some rest. Enjoy your soup. Not so good to do things you know are stupid though .... (if they're "maybe stupid" that's another story :-) )

I had several things happen at once that made me see my friends less.... got sick, got in a relationship, and a lot of them had kids. I was missing friends before I got super sick .... Not sure I can sort out who is a "real" friend and who isn't, but I sure did get isolated.

The people who visited me the most in the hospital and afterward leaned heavily toward people who had had major illnesses themselves (or their partners had). They know how much visits mean, and they are less freaked out by the whole thing. But a lot of people didn't really know what to do, and I was not in the mood to instruct them.... some said call me if you want a visit, and I didn't feel like calling anyone.... but I got so many nice notes on my blog and such, and I guess I was wanting to be alone a lot too....

Windy city, I don't know how old you are, but one thing I found when I met my partner was that you can actually talk about all these things you mention, fears and limits and balance of caregiving and whatever (and you can ask for things too and the other person can say yes or no, as can you).... it's so much easier than when I was younger and came in with so many "shoulds" for myself and for a significant other.... of course, a big illness can shift things.... Hope you find someone good, if you decide you want that.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 5/5/2011 1:37 PM (GMT -6)   
blueglass, well stupid is as stupid does and that soooo describes me and yes I did go to work today and only bad symptom I have now is ache all over and back killing me. Managed to make it to 4.15pm and came home. Took some codeine and fell asleep. Getting better apart from the achey joints and muscles.

I know what you mean about those friends who say 'oh let me know if you want a visit' I was always brought up to do something before being asked if possible. As for the messages on blogs, I think with the way we are all preoccupied with technology it is sometimes hard to think I'll speak to someone directly or go and see them, no easier to post a message.

I do think we all tend to become a bit lazy when we know we can send a text or email or put a message on a blog or facebook etc, only takes few minutes whilst taking time to see someone can be a few hours and we all think we are too busy to find the time. Sadly a symptom of our fast moving technology driven world.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/5/2011 2:37 PM (GMT -6)   
Um stripey weren't you sick for four months or something? Do take care..... I am kind of low energy today and was making a big deal of wondering why, and then, um duh, I am not all the way recovered yet and being out and about, as I have been, takes it's toll.

Well, it's a mixed bag the technology..... allows us to be in touch w/each other and all these people w/ostomies, to get answers in minutes when we freak out about something.... but yes, it does make people take short cuts.

All I can say is that as I am able, from now on I will make it a point to visit people when they're sick.... At one point, I was worried about intruding more than I was concerned about the person not having visitors.... now I think I get the nuances better.

Oh, and don't be stupid (which I'll let you define)....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 5/6/2011 3:43 PM (GMT -6)   
It is true that if you have an illness yourself and have been in hospital waiting for people to visit you understand what it is like and are more likely to go and visit others who are ill rather than just sending a quick text or message on a social networking site, I know I tend to visit anyone I can.

When my best friend was in hospital having my god daughter 7 years ago I was going througha raging abcess around my stoma and even though I felt terrible I made the trip every day after work to see her. It was an hour drive each way but still did it even though I was hanging as knew she was worried as the baby was in NICU and my friend had bad infection from her stitches. This went on for 2 weeks and few days later I ended up in same hospital myself with peritonitis and sceptacemia from the abcess.

Yes, I know that I've be off for long time but I seem to forget that once I'm at work and just want to be working at full speed again. Luckily I have some good colleagues who tell me to slow down and to go home when they could see me flagging. Cold is nearly gone, it is just the arthritis that has now flared up everywhere since I stopped the steroids and takes few weeks to settle. So moving bit like a robot as can't bend very well.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/7/2011 12:06 PM (GMT -6)   
Stripey, I hope you feel better soon..... one thing after another.

I found out yesterday that my butt wound is still 3 cm deep, same as it was 4 weeks ago, sigh.... we're trying a new packing material. My surgeon and nurse assure me that it will close..... just more steroid havoc that it's taking so long to heal.

She said I can take a bath as long as it's in my own tub, and swim as long as it's in a lake or the ocean, not a pool. That was a nice surprise.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 5/8/2011 1:22 PM (GMT -6)   
blueglass, sorry to hear your wound is not healing up quickly but good news that you can have a bath and swim in ocean or lake. Hopefully the new stuff they are using will get it sorted soon.

Managed to make it to the hen night last night and luckily it was in a room at a cocktail bar so could sit down. Only stayed for 3 hours as had headache before I went and it was thumping like mad by time husband came to pick me up and that was after taking codeine. Every time arthritis plays up and sets my neck off get really bad pain in head, so took some more tramadol and codeine when I got home and feel better today. Headache gone and just stiff now. It will settle down in a few weeks, just how my body reacts to stopping steroids - odd thing is whilst I am reducing dosage I have no withdrawal symptoms at all.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/9/2011 3:41 AM (GMT -6)   
Three hours is a lot -- would be too much for me even when I was doing well!

That's weird w/how you taper steroids.... for me I tend to lose a day or two every time I go down, just draggy and feeling off, and then I just feel horrible in the a.m. before I've had the pills. It's a drag that you still have to be on them .... I am hoping I never have to be on them again.... but still don't know if I have Crohn's or UC.... so far no small intestine involvement and no arthritis, but I have had skin complications that are associated w/CD not UC (a plague of boils.... definitely one of the worst things I've had, and my gi doc isn't positive that surgery fixes that, although so far so good.... but those are things that get antibiotics, not steroids).

Hope you keep getting better....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 5/9/2011 3:51 PM (GMT -6)   
Bad day but think it was just after a rough weekend. Still walking like a robotic tortoise so getting no where fast, literally. If I'm only on pred for 6 weeks I have no problem it's only when I am on them for months. Just hope this stops soon as having to take codeine and tramadol just to get to work as pain is so bad. Ho hum, if it's not one thing it's another.....
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/10/2011 7:09 AM (GMT -6)   
Hope today is better. Robotic tortoise is quite an image, you have a way with words.... I call myself the "hotflash cookie monster" when I'm on pred.... that one thing after another cycle is such a pain... I had that before my surgery, just wondering what would go wrong next.... hoping things are better now, seem to be. Hang in.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 5/10/2011 7:31 AM (GMT -6)   
The darn prednisone is such a bugger to get weaned off of. In the early days it helped a few times but his body became so steroid dependant that unless he was on high doses it did not help. It wasn't worth it and finally a long slow taper got him off it never to go back on it again. OMG the side effects for him and I thought I was gonna go out of my ever lovin' mind too.

Remission never truly happened for him...symptoms lessened a bit but never to the point of really enjoying life.

Nobody really wants to make this choice overall but in the short 4 months even with the learning curve life is sooooooooooooo much better. Once you are healed and over this part of it, it will be even that much better for you.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 5/10/2011 12:49 PM (GMT -6)   
Feeling bit better today but think it is because I take some tramadol at lunchtime and this allows me to continue my slow moving around but the tiredness from the tramadol doesn't hit me until after I get home, so will continue with that until arthritis settles down again which should be in a few weeks time.

The CD is now in remission and that side of it is great to be back to normal again, well as normal as it is ever going to be, once this arthritis thing sorted then will be back to normal.

My normal day off tomorrow so am going to have my nails done and have a bit of a lie in, if the dogs and cat let me :)
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.
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