convatec...what the heck??? and coloplast too

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summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 5/3/2011 6:19 PM (GMT -6)   
ok since hollister threw me under the bus with the "new improved" (falling apart useless) bag, i have to try new things.  so i got the coloplast and the convatec.  i decided to try the convatec first, cause i like the bag better, even though i liked the coloplast flange better.
ok so its that moldable thing, and it's supposed to turtle neck right? well there isn't enough wafer to do that.   it is almost the exact size of my stoma the way it comes.  i don't know if i was supposed to but i put paste on it too.  i did just what it said and put it on and all, then when i went to snap the bag on, it's really hard cause its flat against my stomach and i have no way to pull it up to get the bag on, if that makes sense.
and then the sure seal!!! how do yall wear a sure seal wtih them? the sure seal was way too big, so it wouldnt' go around the middle, so i had to cut it into four pieces and piece it around, so that it would go on.  it took me sooo long to do it.
 
there has to be an easier way to put this system on, someone help me!
 
 
oh and i have the coloplast too, which i really like the wafer on it better, but i don't understand the bag, once you put it on these little tabs go togehter, then you can't take it off, so what if you don't have it on all the way the first time?

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/3/2011 6:38 PM (GMT -6)   
I've had ALL of those issues, too, don't feel like you are alone!!!

Convatec-I cut the sure seal in half and put it together to fit. I also cut the square tape to a round shape so it didn't interfere with my scars. Maybe you have a moldable wafer that is too big...I know there are at lease two sizes. I actually like the Hollister pouches the best but Convatec's is last on the list for me!

Coloplast-the pouch is different but I haven't had a problem with them once I really paid attention to the clicking! There is a little tab at the top (not the part that clicks/locks it on)...if it is on correctly and you pull on that it WON'T come off. Trust me on that...BUT if it is not on properly and you pull that tab it WILL come off!!! You can change the pouch or open the lock and re-lock it. It's not a one time and it's done kind of thing...if I am not comfortable with the lock I re-open and re-close it. I always make sure that is on tight before I do anything else:) I use the extended wear and really like the wafer...the small sure seal works with it too:)

Good luck!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/3/2011 8:16 PM (GMT -6)   
I have the smallest convatec I think I'm just doing somethng wrong

So with the coloplast you can remove thebag without undoing those tabs? I broke two tying to figure it out!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 5/3/2011 10:09 PM (GMT -6)   
I am trying Convatec right now too, and actually like them pretty well. You do have to push pretty hard to get the tupperware part to seal well. I start in one section and sort of work my way around the ring until it is sealed all the way. Then I check all the way around with one of those free mirrors I got in my starter kit just to make sure I got every part closed. It sounds like the moldable you got may be too big for your stoma. You might want to try the next size down. I can't use the moldables because my stoma is oval and I am right between sizes. I have been sampling the Sur-fit Natura Durahesive cut-to-fit wafers with the addition of an Eakin Ring, and they have been working very well for me. My skin loves them so far. I am not a huge fan of the pouches after getting used to the wonderful Coloplast tail closures, but they are okay and I have had no problem with the velcro closure on them working or getting messy. I have yet to try Sure Seals, so I can't comment there.

As far as Coloplast, I loved the pouches, but the wafer gave me these itchy little bumps right around the perimeter. It wasn't bad enough to completely rule them out, but I am trying other things to see if they are better. The locking mechanism of the Coloplast Sensura wafer is a little temperamental. I almost broke it the first time I was playing around with it too. First, making sure the click locking mechanism is open (press on the center of the little square until it pops open), snap the white ring on the pouch to the flesh-colored ring on the wafer. When the locking mechanism is un-clicked, the ring it is on will rotate. However, whether this mechanism is locked or not, you still won't be able to rotate the whole pouch when it is attached to the flesh colored ring on the wafer. In order to rotate the pouch, you have to completely remove it and then snap it back onto the flesh-colored ring in a different orientation. Once you like the position, close the clicker locking mechanism by sliding it together until you hear "click". This will keep the bag from popping off. When you want to remove the pouch or switch its position, press on the clicker part and the white locking ring should release. This may be the part you missed. However, once this is unlocked, you still have to remove the pouch from the flesh colored ring, which is the tricky part. Grab a part of the white ring on the pouch that is a half-circle, tag-like thing with a hole in it. Putting your thumb behind this for leverage, sort of peel the bag forward and it should pop off the flesh-colored ring on the wafer. Hard to describe in writing, but hopefully if you look at it while reading this it will help.


Good luck!
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/201

smackie
Regular Member


Date Joined Feb 2011
Total Posts : 55
   Posted 5/4/2011 12:10 AM (GMT -6)   
Blueheron,

I have used the coloplast sensura 2pc "click" that you are referring to above.

You DO NOT need to take the pouch off the wafer to rotate it. This was one of the reasons I liked it. It takes a bit of practice and you need the force in the right place but you can rotate it whilst it is still connected.

First time I tried to rotate it I was out at dinner and the pouch came off the wafer...wasn't fun. I learnt quick to rotate it whilst still putting pressure on the bag so it stays on.

Just waiting for my order for them to come in at the moment so I can stop using Hollister pouches with tape which are giving me a rash.
Jul 06 - Dx with Coeliac
Sep 06 - Dx with Crohn's
Oct 10 - Pancolitis subsequent to a campylobacteriosis infection
Dec 10 - Dx Crohn's (GI) / Dx UC (Surgeon) / Dx Indeterminate colitis (Pathologist)
Dec 10 - Subtotal Colectomy & End Ileostomy [complicated by high dose IV steroids]
2011 - The year of recovery
2012 - Ileosigmoid anastomosis? J-pouch? Total proctocolectomy?

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/4/2011 2:59 AM (GMT -6)   
never tried convatec's moldable, tho i'm curious to try it. the only ones i've tried so far are hollister and coloplast sensura. i like coloplast better cuz the wafer sticks on my skin so much better. i like hollister very much too, but the wafer just falls off of me after 2 days, even if i use the adhesive spray.

it may take a bit of practice to get used to a new system, but you'll figure it out. couple weeks ago i opened the lock to check on my stoma and then forgot to lock it back, and OMG... couple hrs later the bag got full (up to the ring) and i was bending over to pick up something and.... the bag with all watery stools in it fell off of me and you all get the picture lol
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 5/4/2011 5:37 AM (GMT -6)   
I just recently tried Coloplast (I am horribly allergic to Convatec--not an option!), and I loved the wafer but HATED the closure of the pouch! It leaked out the edges of the velcro part...and it's so hard to clean it and empty... gah.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 5/4/2011 6:44 AM (GMT -6)   
Stephanie are you sure you were using the coloplast pouch properly? There's a little flap with two velcro circles that you fold back before you empty.... then after you clean, you unhook that flap and roll it up with the rest. I have never had any trouble with leaking from the velcro with these pouches.

BTW, coloplast has videos (more like slide shows) on their website for each product. These might be useful for you and for summerstorm.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/4/2011 8:14 AM (GMT -6)   
summerstorm...what's the part #? Maybe we aren't talking about the same thing.

80's Chick...their pouches aren't the best, but if you roll the end as tight as possible they won't leak...took a while to master it, but I don't have problems now.
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 5/4/2011 8:19 AM (GMT -6)   
Smackie- Wow! The Sensura Click pouches do rotate on the wafer!!! The last one I had on must have been a defect because I would have ripped my wafer off trying to spin in. It wouldn't budge when unlocked. I just played with a bunch in the box though, and they all rotated just fine. Now I am even more sad that my skin doesn't seem to like Coloplast. The pouches are perfect. Oh well.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/201

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/4/2011 8:30 AM (GMT -6)   
Wouldn't it be nice if the pouches were interchangeable. Like many of you my husband prefers the Hollister pouch as we have changed to the Convatec Sur Fit Natura wafer which seems to be better for his skin at the moment. The convatec pouches are not as rigid on the bottom opening to empty as the hollister new image lock and roll ones are.

It is more important to have a wafer that isn't irritating him so he has resigned himself to getting used to the pouch for that system.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 5/4/2011 10:41 AM (GMT -6)   
Summerstorm, from the sound of it you are using the wrong size wafers from convatec. The gap between your stoma and wafer plastoc ring edge should be 1 cm all round and the whole in the middle for the mouldable bit should be smaller than your stoma size by half a cm all round. If you phone convatec up and give them your stoma size they should be able to advise which size wafer and mounldable hole you should be using. You don't need paste with them and don't need sure seals or anything else as once they're stuck the wafer isn't going anywhere.

As for putting the bag on top, I click mine together before I put the wafer on and then push gently through the bag after I have stuck wafer to my skin and push the mouldable bit down inside the ring to create a good seal. Obviously changing the bag between wafer changes you do need to push bag on and they are tight bit start on one side and gently push down as you go around until you hear it clicking onto the wafer.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 5/4/2011 5:23 PM (GMT -6)   
     I never could get the hang of the Coloplast Sensura two piece system.  Even the nurse who used to come to my house couldn't figure it out.  So, I thought the heck with it and just went to the one piece.  I LOVE it!  Never had any problems.  I never had a problem with any leaking.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/4/2011 10:25 PM (GMT -6)   
well i use the sure seals so it doesn't get wet and i don't have to dry it.
but i did call them and give them my size, cause first they sent the largest size and it was way too big, and this one is 75mm around and i cut mine at 1mm on my hollister wafer, so thats what i rolled it to on the convatec.
i noticed other problems im having with it too, its lower down on my stomach and the bag is made of something kind of odd that my tape won't stick to so im having a hard time keepign it stuck to my stomach. i like the pouch ok, but it seems hard to get all the stuff out.
i dont like putting the bag on first cause then i can't see whats happening when i put it on.
so once i mold the thing there should be a gap between it and my stoma? i really don't get this!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 5/4/2011 11:20 PM (GMT -6)   
With the Convatec two piece.......with your finger wet the plastic ring on the wafer and the pouch with a little water. It will snap a little easier.

Dan

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 5/5/2011 2:41 PM (GMT -6)   
Summerstorm, no there should be no gao between the mouldable wafer and the stoma, the hole that your stoma goes through should be too small for your stoma so that it grips it snugly. I use a 57mm wafer and my stoma is 45mm wide and so the hole in the mouldable bit is only about 30mm across, that way ot fits really snugly.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/5/2011 9:50 PM (GMT -6)   
sorry stripey i mistunderstood, thats my problem, my stoma is actually more than 1 across, but i cut it at 1 (i think it's inches on the hollister) so it doesnt' have any gaps, but with this one it starts at just a tiny bit less than 1, so there is nothing to roll back. i need to see if they have another smaller one, they are gonna quit sending me samples! this will be the third time, lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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