Will I ever truly get control of my bowels back?

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sjone
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 5/5/2011 11:26 AM (GMT -6)   
I had my loop illeostomy reversed 23 days ago after 10 months with a bag as part of my treatment for rectal cancer. FINALLY the diarhhea is kind of slowing down (I was actually constipated, but it didn't stop me going 70 tmes a day), but i still 'leak', and especially when I pass wind. I've also been practising 'holding it in' with about an 85% success rate. My surgeon says this will improve with time as the lower bowel re-learns how to work.
 
Does this all sound right? Will my bowel one day function more normally again anddo the leaks ever stop? I'm kind of not 100% convinced of anything I've been told by my Dr as it has been such a tough few weeks with so little progress (he also says that at three weeks, it is still very early days).
 
Any thoughts, experiences or advise most appreciated...
 
Thanks all.
 
 

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/5/2011 11:43 AM (GMT -6)   
Although we have no experience in this regard and others will chime in it will take time as your Dr. has said.

I'm thinking the j-pouch org. site would have a lot of info there to help calm your fears too.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/5/2011 1:32 PM (GMT -6)   
Well I had jpouch surgery, so it's a bit different, but from my experience I can tell you that leaking is normal in the early days and especially when passing wind. It should improve but it might take more time than you think. Recovery from my surgery was about a year and I saw improvement in six week increments. I assume you still have your colon and rectum? You can start doing kegels to strengthen your sphincter. My sphincter was traumatized during surgery which was the initial cause of my leaking. Kegels ended that.

Sue

sjone
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 5/5/2011 4:33 PM (GMT -6)   
Hi Sue

That's helpful, thanks, and yes, I do still have my rectum and colon, although I did have a fair bit of my bowel and some of by rectum removed. I do also have a jpouch, which I am looking forward to hopefully increasing in size a little so I don't have to go to the loo as often as I do now. I think that's how it is supposed to work? This is all a mystery to me.

Simon

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/5/2011 4:39 PM (GMT -6)   
There are over 6000 jpouchers at www.j-pouch.org If you should need some tips or to tap knowledge, stop by and visit.

Sue

sjone
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 5/5/2011 4:49 PM (GMT -6)   
Thanks Sue. I spent quite a bit of time on this site this evening and it is great.

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 5/5/2011 6:44 PM (GMT -6)   
Three weeks is VERY early after such a huge surgery! I'm now 5 months out and I feel amazing. Sometimes I don't go for 7 hours or so, and feel pretty much back to normal. At 3 weeks out I was nowhere near where I am now.

Hang in there and it will get better little by little! yeah
21 Year Old Male

Diagnosed with Moderate/Severe Ulcerative Colitis May 2008
3 Flair ups (first flair- 2 months/Second Flair- 2 months/ Third flair- One week, then surgery)

-Full Ileostomy surgery done on july 22!
-J pouch DONE--January 6th

Living a COMPLETELY normal and active life with a J pouch!

sjone
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 5/6/2011 1:18 AM (GMT -6)   
Thanks Chevypower. Gives me hope!

Simon
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