Length of wafer wear???

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ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 5/9/2011 7:22 PM (GMT -6)   
Well,
 
I thought after reading this site for 3+ months I would have remembered a few things...of course, no one knows what life is like with an ostomy 'til one has one...
 
Anyway, wondering about what a good lenght of time it is to wear the wafer, and when one should consider chaning early.....what are considerations for Florida humidity and temperature?  taking showers with appliance on?  etc.....
 
I seem to be doing okay with and eakin seal and hollister new image wafer (cut-to-fit).....however, I don't want to "push" wearing the wafer and ending up with a leak in the middle of a resteraunt...
 
Also, since I'm still recuperating..not back to work yet or going out too much (thought I did go out twice today in the van...in the morning to the bank/post office) and this evening to Walgreens (to get some ensure and grape juice) and to the car wash.....
 
So, I'm just wondering from all  you folks who are in regular, daily activity and going out to social events, what's your "safe" wear time for the wafer?
 
Thanks,
enigma!
scool  

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 5/9/2011 8:09 PM (GMT -6)   
Mine is about 4 days. Sometimes less, rarely more. But I have an allergy to the adhesive on most wafers so i use one that's all pectin, which doesn't stick as long. Everyone's is different; people seem to range from about 4-7 days.

You'll start to notice your patterns and when you need to change and stuff and when you have a leak you can usually tell before it becomes a problem because you can usually feel it. One member of this site says, "When in doubt, change that crap out!" aka, better safe than sorry :)
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

smackie
Regular Member


Date Joined Feb 2011
Total Posts : 55
   Posted 5/9/2011 8:15 PM (GMT -6)   
I generally either see the outer adhesive tape layer coming off or sometimes feel an itch. I use a one-piece hollister [until I change tomorrow] and get anywhere from 2-5 days out of it.

The main reason I have to change my bag is because I've burnt through the Adapt Ring or overnight I was really gassy and have caused a little leak around the Adapt ring.

But I've been using a pre-cut too big for me and will be getting a smaller size tomorrow - hopefully that will mean less burning on the Adapt Ring.
Jul 06 - Dx with Coeliac
Sep 06 - Dx with Crohn's
Oct 10 - Pancolitis subsequent to a campylobacteriosis infection
Dec 10 - Dx Crohn's (GI) / Dx UC (Surgeon) / Dx Indeterminate colitis (Pathologist)
Dec 10 - Subtotal Colectomy & End Ileostomy [complicated by high dose IV steroids]
2011 - The year of recovery
2012 - Ileosigmoid anastomosis? J-pouch? Total proctocolectomy?

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/9/2011 8:47 PM (GMT -6)   
So far with this new wafer he changed to he is getting 6/7 days. When he starts getting back into golfing and we go to use the pools I am guessing it will probably be less.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/10/2011 12:25 AM (GMT -6)   
My wafer comes off without much notice. But I have figured out I am going to need a new wafer after a sweaty run of more than 2 hours and after a couple of swim days. I think humidity makes it break down sooner and so does cleaning it too often with squishing water around the stoma.

I also see the edge loosen up or liquid coming thru flange outside adhesive part. Or just plan eruption hole, where goo is coming out!! I hate when that happens. Two years in Aug. and still don't have it all figured out. I think I'm getting to be a paranoid person. The minute I relax my vigilance on the whole thing and wham!! New disaster. Standing inline at son's wedding reception was horrible. Latest was whole wheat toast mush all over tight running pants after two hour run. Didn't even realize until I got home. Wonder if the person I drove home for 30 minutes could smell it!! She never said a word.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/10/2011 8:03 AM (GMT -6)   
i usually get 7 days wear time, but i guess it would be safer to change after 5 days. i know there's no way it will leak after 5 days.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 5/10/2011 1:45 PM (GMT -6)   
I usually change my wafer every 7-9 days and that has been the way for years. If it starts to itch around stoma then I know I have tiny leak starting and will change earlier but that is rare. With the convatec mouldable wafers they have an additional ring of adhesive sort of like mefix tape around outside of wafer and this gives you extra time if leak is starting and so you have time to get home before an accident happens.

I have been to Florida on holidays 3 times since my ileo and been in and out of swimming pools and showers and still stays for 7 days.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/10/2011 1:55 PM (GMT -6)   
That's encouraging news stripey regarding Florida and swimming pools as we haven't ventured into that yet to see how it works out with the pools. The consistent warm weather is here and will stay so we shall see how that affects it overall too.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 5/10/2011 3:31 PM (GMT -6)   
stripey,
 
that is amazing with the 7-9 days and going in the swimming pool and then into the Florida humidity!
 
You use a convatec moldable wafer?  I'm using hollister only because that's what I was sent home from the hospital with......I think I want to try the moldable wafers as it seems it would make things easier for change time or for emergencies....convatec is sending a couple of samples and I'm going to try the moldable from hollister when those samples get in......it's kind of hard to change things up, but I believe it will be easier down the road with the moldable ones....
 
Thanks!

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 5/10/2011 4:39 PM (GMT -6)   
I find that with the mouldable ones as it creates a good seal against the stoma and can move when I move it reduces any risk of leak and I don't use any paste or seals with it. Just the wafer and bag.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.
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