Villager, happy to vent by proxy for you, glad it helped.
I am better this morning, as I often am in the morning.
Thanks UC wife.
I started off on lovenox injections twice a day (it was heparin in the hospital, lovenox at home) until my INR was in the range so I could switch to oral meds. The docs said the issue is not only getting rid of the clot, but preventing recurrences, and 6 months is a best guess time based on research on dvt's (clots in the leg). So, even if I had a clean scan now, wouldn't satisfy them that it wouldn't recur.
I think the issues w/the wound healing now are mechanical -- it's just in such a bad place. It got down to 3 cm pretty steadily, and I am mostly functional -- just can't sit too long on hard flat surfaces, even w/my pillow. My surgeon assures me that my WOC nurse has healed wounds that were "50 times worse" and she just had me change to a different packing material that will keep it drier. It wants to close from the outside not the inside now....
I stopped taking a protein supplement because I've gained so much weight, now I weigh as much as I have ever ..... it's good, but I don't want more. I think I will check in w/my team who haven't mentioned protein for a while. The shake I was using was intended to be high calorie, and certainly I could supplement with something else that would be less so. Appreciate the reminder.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery