Total colectomy on Friday

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fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 5/11/2011 7:48 AM (GMT -6)   
I am just 48 hours from having my colectomy and I am getting andious.  I am really hoping they will get through this in just one step because if I wake up needing a bag I will cry.  I know that so many of you on here have already been through this and deal with it but I don't that I will be able to. 
 
I know there are risks and I just hope they get in there and don't find anything else. 
 
I have been on here in one forum (colon inertia) and have had so much support.  Any last minute pointers?  My uncle told me Day 3 is the worst as far as pain.  My grandmother and uncle and a cousin have already been through colon cancer (no, I don't have it) but have only had portions of their colons removed. 
 
 
OOOHHHH  so nervous!!!  confused

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/11/2011 7:50 AM (GMT -6)   
Good luck fitgal........I know it is easier said than done...try to relax and think good thoughts.

Let us know how you make out. Prayers and {{{HUGS}}}
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 5/11/2011 7:56 AM (GMT -6)   
Thank you UC! I am heading for the mall soon since I don't think I will be doing it any time soon. How long should I expect to be on the couch? My couch, not a shrink.... ;-)

(I am 43)

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 5/11/2011 8:20 AM (GMT -6)   
Best wishes for your surgery.

You may be at the mall sooner than you think:) That is where I would go for my walks starting two weeks after surgery. It was winter in Colorado at that time and very chilly! I even tried on a couple of clothes while I was there to make myself feel better about my ostomy. Though surgery is very hard, you will find that you will also often surprise yourself with the progress you are making.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/201

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 5/11/2011 9:02 AM (GMT -6)   
Hi Fitgal,
You will be fine , the surgeons are amazing at what they can do these days. I know no matter what any of us say you will be feeling anxious about it as we all did before surgery. But I focused on how much better I was going to be and I truely am, and its not the end of the world having an ileostomy. Even though I did think it was when I first had mine done but 2 years down the track life is pretty good. Just make sure you walk heaps and everyone heals differently but I was up and out of bed less than 12 hours after my ileostomy, wanting a shower lol. They didn't want me up that fast but I wanted to get up so with their help I had a nice hot shower the next morning. I really don't think you will be laying on the couch for long, you will be surprised at how much you can do, but don't overdo it either cause you will tire easily. All the best, will be thinking of you. Keep us posted
Take care
Doreen

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 5/11/2011 1:30 PM (GMT -6)   
Thank you all for the well wishes and comments/ suggestions. It helps to know that I'll be much happier in the end and feeling so much better. It will be good for the mall to know that I'll be back to keep them in business sooner than later. Actually it will be a great place to walk since I live on a long and windy road in the woods. Not exactly a safe walk with the cars out here.

I printed a bunch of discount coupons for a few stores but went off and left them in the printer tray. I skipped major Michael's purchase since I would have saved 20% off a relatively expensive purchases (large 24X48 canvases for my daughter). I stopped to return a couple of things and ended up buying a Schwinn bike - regularly over $200, mismarked at $99. I needed one and even though I won't be on it right away, I'll be so happy to ride it :-) !!! A little trouble getting it into the car but the front wheel comes off very easily.

I will keep you posted once I am able to get on my laptop.

Thnx!
nanci

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/11/2011 2:07 PM (GMT -6)   
oh fitgal, i understand how nervous you are, but you'll do great!! i'm sure you will!! make sure to walk a lot after the surgery. i was up walking the wards day after surgery. so did so many on here. walk and rest! also, when they tell you you can start eating, go VERY slowly and only liquids first. if liquids give you trouble, go right back to iv. and when starting eating solids, always remember to chew, chew and chew some more!

everything will be ok. you'll be riding those bikes in no time, i'm sure! pls update us as soon as you can after surgery. my prayers are with you!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 5/11/2011 3:54 PM (GMT -6)   
Hodaya - you are AWESOME always!!! Thank you so much and of course I'll keep you updated

nanci

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/11/2011 3:56 PM (GMT -6)   
:)))))))
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 5/11/2011 4:27 PM (GMT -6)   
fitgal:
 
turn  Just remember, they will put you to sleep, then you will be waking up..granted, it will be a challenge, but as time passes (more quickly than you think), you will be getting up out of bed!
 
Hope the food in your hospital is good when they start letting you eat normal!
 
enigma
 

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 5/12/2011 10:34 AM (GMT -6)   
     Wow...you are having surgery on Friday the 13th?  LOL!  Only joking, my daughter's birthday is tomorrow and she was born on Friday the 13th.  She always had great luck too!!!  You will do fine, I'll say some prayers for you tonight.  Good luck and God bless.

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 5/12/2011 11:21 AM (GMT -6)   
Christine,
My son said 13 is his luckiest number. He was also bor on Friday the 13th. It was always his baseball jersey number through all of his school years until another kid had a growth spurt and Ty had to give up his jersey.

Thanks for keeping me in your thoughts!

I'm not enjoying my clear liquid diet today - especially after having a $220 grocery bill. The shopping part wasn't bad but putting it all away was difficult. Fortunately most of it was for my kids and not the things I'll be able to eat right away. My one son (Ty - 19) is coming home from college today and eats a lot even though you wouldn't know it. I think I bought about twenty boxes of cereals. Several for oe of my daughter who is gluten intolerant. Limited selection for her unless I want to pay an arm and a leg. Can't do that snce I have to save them for gas!

Wow - Ty just pulled up the drive from school!

Thanks again ;-)

nanci

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/12/2011 2:16 PM (GMT -6)   
Nanci----{{{HUGS}}}}

let us know how you are doing when you are able and up to it
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 5/12/2011 2:59 PM (GMT -6)   
Good luck tomorrow!! Glad your son made it home safely.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step April 4, 2011. So done with this disease.

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 5/12/2011 4:17 PM (GMT -6)   
Fitgal,  Good luck!!!!!!!!!!!!!!  (((((((Hugs)))))))  turn

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 5/12/2011 6:05 PM (GMT -6)   
Thanks to all of you! I am trying to down my drink but I'm having trouble and wondering how I can drink 64 oz. of this. It's only Gatorade G2 with 14 scoops of miralax. The Dulcolax was at noon and hasn't done anything - that doesn't come as a shock! Then I started the drink about 30" ago but I haven't even finished the first 32 oz.

I also made some really good (based on experience, obviously not tasting it) Mexican for my family. It's one of my son's favorites and since tonight is the only meal I will be cooking for him before he leaves again. I didn't have to clean up the mess because they felt bad for me.

HB - I'll post a reply to your test update.

I just want to go to bed and wake tomorrow and get this show moving!

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 5/12/2011 6:34 PM (GMT -6)   
Hope it goes well. Thinking of you.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 5/12/2011 7:01 PM (GMT -6)   
Goodluck tomorrow!! :)
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis & Migraines. Battling Extreme Exhaustion | Past Meds: Prednisone + Cortifoam + Asacol (3600) + Canasa + Rowasa + 6mp + Allopurinol
Currently: Asacol (3200mg) + Canasa + Rowasa

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 5/12/2011 9:32 PM (GMT -6)   
Thanks blue and notso...

I couldn't keep the second bottle down. Not sure how that will affect my "cleansing," but I my body ran out of space to keep it.

blueglass, It sounds like you are traveling down a rough road these past few months. I hope things are on the upswing.

thanks again to all!
g'night

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/13/2011 1:09 AM (GMT -6)   
Nanci,
You're in my thoughts and prayers for a successful surgery! It's all going to be okay. :-)
(((hugs)))
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/13/2011 4:08 AM (GMT -6)   
Nanci.... best of luck sweetie! thinking of you ans sending many prayers you way!!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

windy city
Veteran Member


Date Joined Dec 2010
Total Posts : 607
   Posted 5/15/2011 1:32 PM (GMT -6)   
Hope your doing well and keep us posted! Keeping you in my prayers-Christine

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 5/15/2011 5:47 PM (GMT -6)   
rolleyes  I am not feeling so great but I was happy to wake up and have no stoma.  I knew there was a big possibility.  I did find out that my colon was over seven feet long!  That's two feet longer than I am tall. 
 
I have three small incisons for the cameras and one long from my belly button down about 4-5 inches. 
 
I know I need to walk a lot, which I did today.  No gas yet - lots of burping and hiccuping (uncomfortable). 
 
Tired right now...
 
Thank you all for thinking about me. 
 
BTW, I weigh 14 lbs more than when I came in.  WOW shocked

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 5/16/2011 7:42 AM (GMT -6)   
     Hi fitgal...glad to hear everything went ok.  You weigh 14 lbs more???  You would think it would be 14 lbs less.  How are you feeling today?

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 5/16/2011 10:13 AM (GMT -6)   
Glad to hear things went well. Hang in, and keep getting better.

Thanks for thinking of me.... I am doing pretty well now, just have this stubborn butt wound that is not closing up all the way..... but I went to a great concert last night, could not go to night concerts at all with IBD....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery
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