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Regular Member

Date Joined Aug 2010
Total Posts : 130
   Posted 5/13/2011 9:16 AM (GMT -6)   
Hi all, it’s a full year since my perm ileo op & thankfully it has been a very good year , I promised myself that I’d celebrate the occasion at 3pm each may 13th, that was the time I was wheeled into the operating theatre, so here I am 3pm GMT May 13 enjoying a coffee in a bar in middle Ireland, I am on one of my regular 3 hour motorway drives from the east coast to the south west, I usually never stop on these trips (before it was because I always needed to get to the loo at home, now its because I don’t need to stop)

You might be interested to hear that the little town I’m in is named Monegall in county Offaly & as it happens President Barack Obama will visit here next week - his family tree has been traced back to the Kearney family here in the 1690s – the town has been painted up & is festooned with USA flags

So heres wishing the President a great visit & wishing many future years of good health to all of us & especially those who are in the midst of recovery from recent surgery (fitgal , serenitee, enigmawrap & newone) & those who are struggling with complications

UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!

Veteran Member

Date Joined May 2009
Total Posts : 827
   Posted 5/13/2011 10:19 AM (GMT -6)   
Great news that you have had a healthy year!....ENJOY
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

Veteran Member

Date Joined Feb 2010
Total Posts : 720
   Posted 5/13/2011 5:40 PM (GMT -6)   
Yay! Congratulations on getting through the first year and back to health.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/201

Veteran Member

Date Joined Dec 2010
Total Posts : 3332
   Posted 5/15/2011 7:20 AM (GMT -6)   
Congrats, villager!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Veteran Member

Date Joined Oct 2008
Total Posts : 938
   Posted 5/15/2011 8:32 AM (GMT -6)   
Happy one year anniversary! I hope the future holds nothing but good things for you!
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD

Regular Member

Date Joined Nov 2010
Total Posts : 422
   Posted 5/15/2011 1:42 PM (GMT -6)   
Villager:  tongue tongue
Congratulations!  One year on, and many, many more years of enjoyment to come! 
Your celebration plan is pretty good....I will have to follow that.

Veteran Member

Date Joined Oct 2010
Total Posts : 776
   Posted 5/17/2011 1:30 PM (GMT -6)   
lovely to hear that! well done and thanks for sharing your positive news.. really helps!
Sarah - 38 year old mum of 2 boys, competitive runner/triathlete, health and fitness writer

June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - dx colonic dysmotility April 2011. Currently taking Prucalopride 2mg p/d

Regular Member

Date Joined Aug 2010
Total Posts : 130
   Posted 5/17/2011 4:06 PM (GMT -6)   
thanks all for joining me in my celebrating my happiness so far - despite my own good experience i do genuinely feel for those who are about to have surgery & those who are having dificulty with healing & getting back to health - my heart goes out to those who are sincerely worried about the surgery, recovery & life - there are so many unknowns in ones mind when the decision is made for an operation

it is easy on this side of it all to forget the terror when on ostomy is first mentioned by the doc, the stress of waiting before going to hosp & the unrealness of 'this is actually happening to me' when walking into the hosp & wondering if 'normal' life is over

i wish all of us a continuing wonderful outcome & while i'm a great believer in natural/ alternative medicines / therapy, i am immensly grateful to modern medicine, my surgeon & the nurses for what i consider to be the best result for me & one which i could not have believed possible

UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 5/17/2011 11:09 PM (GMT -6)   
Happy first anniversary! So glad you're doing well. I like the idea of traveling across Ireland to celebrate. My fifth anniversary of good health is this year. I think it's time to book a trip to Dublin! :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.
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