My husband and I were floored after the doctor informed him that he had colon cancer which had spread to his liver. The m.d. called it Stage IV cancer, which is the worst. When we asked the m.d. about
his life expectancy, he replied, "This is Stage 4 ... the End Stage". (Terrible bedside manner).
He is still in the hospital and was scheduled to come home today, but at around 4:00 pm, he had to have a blood transfusion (since is RBC count was low). He had surgery on Tuesday to remove the mass on the colon. The doctor called me and told me that the surgery went well and hung right up. I had many questions about this cancer.
At this time, the local hospital has assigned 4 doctors to manage his care; an oncologist, his internist, a GI doctor, and the cancer surgeon (with a terrible bedside manner). It's very difficult to reach any of these doctors. I have left messages with all of them and only 1 returned my call.
My husband is in a considerable amount of pain and the doctor doesn't want to increase his doses. He was given IV dilaudin for post-surgical pain and the following day, they reduced him to 1 10 mg Oxycodone pill every 12 hours with 1 5 mg. percocet (6 hours after oxy pill) for breakthrough pain. I returned from the hospital a few hours ago and contacted every one of his "assigned" doctors. He's badly in need of pain relief.
He's still very "gassy" and the gas moving through his bowels is like torture. But his doctors simply refuse to increase his doses.
Anyway, their plan is to treat him radically with chemo. I asked one of the doctors if they'll be scanning him any more to see if the cancer has spread anywhere else in his body. The doctor replied, "We'll be scanning things every so often".
I have a bad feeling about this "team" of doctors that have been assigned to him. Each one contradicts the other.
I'm seriously considering taking him to a specialized cancer treatment facility. My husband was in such a bad mood tonight, he told me that he'd rather go home and die if he has to spend another day in a hospital.
Can anyone suggest a good cancer treatment center ... some kind of medical facility which specializes in cancer treatment. I'm very worried that they'll send him home with inadequate pain relief. Why are they letting him suffer?
One more question: if they removed the "mass" from his colon, does that mean the cancer is gone (from his colon)? I'm so confused.
Thanks in advance for any help!