I'm reading Cutting for Stone, by Abraham Verghese, who is a doctor. It's on the best seller list now, and I thought I'd share this quote, because you sure don't see quotes about colostomies in every novel that you read (it's on page 372 in the paperback edition). A man, Etien, has just had emergency surgery that resulted in a colostomy. He is worried that no one will every marry him, and his doctor, Ghosh, responds:
"Etien, that's not the part of your body I cut off, the marrying part. You'll find a woman who loves you, and you'll explain it to her. If she loves you for yourself, you'll both be glad that you are alive." Ghosh's facial expression brooked no argument, but then he softened. "Etien, imagine if all humans were born with their anus on the belly and that's where everyone's waste emerged. Then imagine if someone said they were going to operate on you and reroute your bowel so it opened behind you, between your buttocks cheeks, somewhere where you couldn't see it except in a mirror, and where you could hardly reach it or easily keep it clean..." It took a few seconds, but then Etien smiled. He dabbed his eyes. He ventured a glance down at his colostomy. It was a small step in the right direction.
... I guess he means looked down at his stoma, but a lot of people don't know that word.....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery