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Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/18/2011 4:29 PM (GMT -6)   
I just have to thank all of U for your help through out this ileostomy surgery process. I've have learned so much from all of you, so again "thank-U." Question, any tips on making it not smell? Do you pretty much need to buy special deodorizer for the pouches? And next question...R u supposed to use an adhesive remover to get the sticky off so as to put a new one on? Cuz i've noticed after changing a couple times the flange part doesn't want to stick as well. So i didn't know if i need special adhesive remover?

Thank you to all, and have a great day.
Serenitee
______________________________________________________________________________________________________

ileostomy one 8-days ago...Bipolar 2/BPD, DDA, Depression, Migraines

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/18/2011 5:23 PM (GMT -6)   
when you say smell, you mean it smells when you empty the bag, or does it smell when bag is closed? i've heard ppl here recommend hydrogen peroxide 3% (not more than 3%!!) as best odor eliminator. also, i've heard M9 drops are really good.

about the adhesive remover, i never remove the wafer w/o it. hollister's adhesive remover (comes as a spray) is the best adhesive remover i've tried. after removing the wafer with the spray, i take coloplast's adhesive remover wipes to make sure i got rid of any left overs from the old adhesive. after all is clean i use skin prep and then put on the wafer. many on here say the skin prep makes the wafer to not stick well on their skin, but i found just the opposite - if i don't use the skin prep, it won't stick. so you should try both ways and see what works better for you. best of luck, let us know how it goes.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

villager
Regular Member


Date Joined Aug 2010
Total Posts : 130
   Posted 5/18/2011 5:31 PM (GMT -6)   
hi there, in the first few weeks i found that the smell was not so good, one food i found yielded a bad odor was fish so i dont bother with fish now - i did use M9 drops & NaScent drops & there are sprays like FreshAire made by Salts - i find now 12 months on that the odor has diminsihed considerably so i only use the drops or spray if i'm visiting or in a situation where a smell might be extra embarrasing - i sometimes keep a bathroom air freshner refill from the local supermacket in my jacket pocket just in case - overall i find it not a big problem - this is a vast improvement from my experience when with UC - i'm not fobbing you off atall atall when i say that this topic has come up before & there is wealth of responses somehwere in the past here - i think if you use the forum search with the word smell or odour you might find it - if its any colsolation you are arriving at the same questionS as we all seem to have done in the same timeframe as we all have done

re the adhesive remover, i use Apeel or Lift Plus to detatch the wafer, then i use SkinSafe protective film to wipe where the wafer covers, this seems to remove any residue off the skin, this has dried by the time i'm all cleaned up & then the new wafer seems to stick ok, i tend to warm up the wafer & seal by lying on them while detaching the old one & cleaning up & this heats the adhesive so it sticks better (i do all the changing lying down - i've just gotten used to this method) - i was also told the first 2/3 minutes after putting the new wafer is important for sticking purposes so i give the wafer a good 'massage' with my fingers for a minute or two then i'm good to go

hope this helps - cheers
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/18/2011 5:35 PM (GMT -6)   
Serenitee,
I'm so glad you're doing well! Hydrogen peroxide and Hollister M9 drops are great deodorizers, and adhesive remover wipes work well to get the wafer and any sticky residue off.
You're doing great!
:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

villager
Regular Member


Date Joined Aug 2010
Total Posts : 130
   Posted 5/18/2011 5:36 PM (GMT -6)   
just to add - i believe that some people dont use an adhesive remover to detach the wafer - i dont think i could get the wafer off without a remover spray - i think it would result in damage to my skin

cheers again
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/18/2011 6:23 PM (GMT -6)   
I don't use remover by the time I change mine just pulls right off. If you have a lot of sticky left when you change you are probably changing too soon. As for skin prep that shortens my wear time a lot so I ont use it either
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 5/18/2011 7:14 PM (GMT -6)   
Serenitee:

Glad you are recovering so well! Just remember to take it easy...

As far as odor...well, that is a personal thing and a social thing, depending on where you are...I've been using M9 drops here and again..they seem to help some..but, as in someone's earlier post, I think the odor will lose a little of it's sharpness as time goes by..also, as my hospital WOCN said, "..everybody's #$$% stinks!"

As far as removing adhesive/etc.....that is another personal thing..I haven't used any yet, as by the time I take mine off for chaning, nothing is sticking (may be a little residue)....I have been using some skin prep but with or without it doesn't seem to affect anything sticking....

You might want to check out the UOAA forum and search through there....there are folks who jog every other day and manage to keep there wafers on for 5 days! Amazing....

Regards,
engima

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 5/18/2011 8:36 PM (GMT -6)   
Love using a capful of hydrogen peroxide! It's so cheap and works great.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/18/2011 10:05 PM (GMT -6)   
In the beginning few weeks or so, the odor was very strong for hubby and definitely diminished. Diet does have a lot to do with it as well. Some people chew wintergreen lifesavers. He likes the honey lemon eucalyptus cough drops to keep his throat moist and nose open with his allergies...we honestly think the eucalyptus somehow neutralizes things.

Definitely do not leave too much residue on your skin. Maybe you are changing too quickly if there is no leaking or problem you may want to wait another day or two before removing the wafer. If you use any adhesive removers be sure to clean off anything left from the remover. Protective skin barrier wipes do work for some and others don't use them. Hubby uses a light application of it before applying his wafer.

Things can get very confusing. Keep a log of what you do each time you change if you vary anything up to try to see what combination gives you the best result for longest wear, no skin irritation, no leaking etc.

For the first 3 months things went very well for hubby until his skin decided it no longer liked his wafer's adhesive. I kept a log as he started to get leaking issues and every change when we tried this differently or that differently I could keep account of what we did or didn't do to end up with favorable results. Not rocket science but definitely a learning curve for some until you get the right thing for you. Don't let it discourage you at all. I am sure you will find what is right for you.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/18/2011 11:50 PM (GMT -6)   
WoW...Words just can't Thank You All enough for all the suggestions and advice. I honestly could not do this without y'all helping me. I was taking notes on paper as I was reading everyones suggestions and definitely going to try everything.

Warm wishes for you all.
Serenitee
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