alternative therapies... what are your thoughts!?

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Ironmum
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Date Joined Oct 2010
Total Posts : 776
   Posted 5/19/2011 6:00 AM (GMT -6)   
What are your thoughts/experiences on alternative therapies for colonic dysmotility?? (caused by nerve damage after surgery - see signature) in particular acupuncture, homeopathy, cranial osteopathy...

Have to say am sceptical.. BUT feel I need to give it a try...

Had some acupuncture today and he says 'ahhh... your liver is turned off'... from feeling my pulse rolleyes
Sarah - 38 year old mum of 2 boys, competitive runner/triathlete, health and fitness writer

June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - dx colonic dysmotility April 2011. Currently taking Prucalopride 2mg p/d

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/19/2011 6:19 AM (GMT -6)   
I have the opposite problem, so not sure my experience is relevant. When I got diagnosed with IBD, I didn't think it was a big deal, and I was sure I could handle it with attention to diet, supplements, and some alternative therapies. It was very disappointing when things didn't work out that way. I did a lot of acupuncture, which had helped me in the past with back problems and menstrual cramps, but never helped much with IBD -- once I went to acupuncture the day before I flared, and the practitioner did not predict it. I did craniosacral therapy and thought it was helping, but again, flared. The one thing that has helped a lot is massage -- doesn't improve symptoms directly, but just makes me feel better even if I'm sick.

One thing to watch out for in alternative practitioners is whether they have humility about what they do. Some people are such true believers that if you aren't getting better, they blame you; I got sour because of some of these experiences. Generally, people tend to come back only if the treatment is helping, which can give the practitioner an inflated sense of how well it works. On the other hand, I have had practitioners tell me that I needed to be on stronger western drugs, that I was too sick for what they were doing to help me. It can be nice to be with someone who sees you as a whole person, not just go to this doc for this body part etc.

Hope the acupuncture helps!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Ironmum
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Date Joined Oct 2010
Total Posts : 776
   Posted 5/19/2011 6:32 AM (GMT -6)   
good idea blueglass and thanks for the reminder. Must book in for a massage!

i think a lot of these guys have such belief in what they do and their own particular therapy that it so hard to work out what's right and what works. I've had acupuncture before for various sports injuries and found it helps, but not sure how putting pins in my feet and hands can help my colon! ho hum... he's a good guy though and not forcing his particular therapy down my throat.. just saying 'lets give it a try'.

But goodness only knows if the homeopathy is doing anything...

Strangely having a slightly better patch at the moment... probably co-incidence but long may it last!
Sarah - 38 year old mum of 2 boys, competitive runner/triathlete, health and fitness writer

June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - dx colonic dysmotility April 2011. Currently taking Prucalopride 2mg p/d
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