? On proctocolectomy

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rita5287
Regular Member


Date Joined Feb 2010
Total Posts : 42
   Posted 5/20/2011 2:29 PM (GMT -6)   
Will being in a flare effect m surgery? It's nxt week n I started to flare up last week. My surgery is on the 26thatthe USC med center n la ca. I ca twang to get it over with to start healing! 2yrs of my life this disease has taken frm me!
Diagnosed w/UC 4-7-09. Have had 4 colonoscopies. 1 sigmoid colonoscopy n 1 endoscopy. Went from proctitis only in rectum to full pan colitis. No Meds have worked for me not even remicade. Been hospitalized 3xs n 5 mnths. Have Gastritis also. Current Meds: pred 40mg 7days tapper to 5mg. Nexium 40mg. Asacol4800mg. Xanax1mg.Tylenol w/codeine.having proctocolectomy on 5/26/11.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 5/20/2011 2:39 PM (GMT -6)   
If you're on prednisone, it will take longer to heal from the surgery. I was on 40mg two weeks before surgery, and they had me taper 10 mg a week, which was a lot, but they didn't want to do the surgery on more than 20 mg (my surgeon was initially OK with being on more, but only before she realized I'd been on it a lot in the past two years).

Some people have emergency surgeries with ruptures and such, so it's clearly possible to do the surgery in a big flare.... but the healthier you are before, the easier recovery will be, in general. Of course, if we were all super healthy, we'd never need the surgery in the first place!

Good luck
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 5/20/2011 5:18 PM (GMT -6)   
I was in a year-long flare that was at its WORST when I had my surgery. I was on 60 mg of pred, and had been for over a year. Like blueglass said, it can definitely be done, but the recovery may be harder. I didn't have any problems recovering at all, but it was maybe because my body was so glad to be rid of that awful colon!!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/20/2011 6:04 PM (GMT -6)   
No. Just like the others have said, it may take a little longer to heal, BUT you WILL heal!!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

rita5287
Regular Member


Date Joined Feb 2010
Total Posts : 42
   Posted 5/20/2011 11:17 PM (GMT -6)   
Thank u all so much for ur feed bck. I just want to get this over with already. N having to go the e hospital bfor surgery will just b soo sad for me. I just out on the 5th of may. I was there for a week. Pls keep me n ur prayers!! God bless u all!!
Diagnosed w/UC 4-7-09. Have had 4 colonoscopies. 1 sigmoid colonoscopy n 1 endoscopy. Went from proctitis only in rectum to full pan colitis. No Meds have worked for me not even remicade. Been hospitalized 3xs n 5 mnths. Have Gastritis also. Current Meds: pred 40mg 7days tapper to 5mg. Nexium 40mg. Asacol4800mg. Xanax1mg.Tylenol w/codeine.having proctocolectomy on 5/26/11.
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