Vent,question, I don't know.

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TickledPinkTwice
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Date Joined Mar 2011
Total Posts : 242
   Posted 5/22/2011 4:47 AM (GMT -6)   
I go back to the surgeon Thursday to see if he wants to surgery. He said pending on the SBFT results, which the hospital report said was normal, so I don't know. I just don't know what to do. On top of the pain that is just with the Colonic Inertia, I have had 3 impactions in a month. Worst pain of my life!!!!!! It seems like the severity of my symptoms increases every month. So first off, I don't know what I am going to do if he decided against surgery,we have spoken and he stated that the surgery is imminent but here is the issue if he says Thursday ok lets do it. I was going to plan on doing it 6/24. My husband starts vacation that day plus on the 17th my work has a huge event that I have pretty much done all the work on. The issue is, if he does offer it I don't know if I can wait that long. I don't know what to do. I am tired of feeling this way but I don't want to get in trouble with work. What would YOU DO?
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
5/26-Surgeon Appt

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 5/22/2011 5:07 AM (GMT -6)   
hi Mary,

first off, please CALM DOWN!!! yeah, surgery is never convenient at any time of our lives, is it?? esp a big surgery like a colectomy. in the middle of life to go and have this kind of surgery, it has to interfere with our activities.

i'd say, first of all, go see the surgeon and hear what he has to say, instead of trying to guess what he'll say. i believe it will be surgery for you, you cannot go on this way in no way. if you feel you can't wait till 6/24, then if i were you, i would try to talk to my employer, explain the situation i'm in and how surgery is urgent for me. maybe he/she will be very understanding..?? i think they should be understanding under these circumstances. GOOD LUCK and let us know how things go.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 5/22/2011 10:38 AM (GMT -6)   
If he said surgery is imminent I'm wondering why he might say no on Thursday! That's weird.

Anyway, if he DOES say no I'd ask why, reiterate the amount of discomfort you're in, and then if he still says no, I'd find another surgeon and have your records transferred. It's YOUR life. You have a right to be comfortable.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 5/22/2011 11:49 AM (GMT -6)   
Tickled pink:

What 2bconlon free and 80'schick said is correct...go see the surgeon and do what must be done..sounds like you need surgery....

When I went to see my surgeon for pre-op, he told me I might not make it (eg, would be in the hospital before the appointed date)..and, he was right! I was in the hospital two nights before....amazing the pain and suffering human beings can put up with!

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 5/22/2011 12:50 PM (GMT -6)   
Mary,
Yes, like Hodaya said, calm down!  I am pretty sure surgery will be coming for you.  I know I am getting very anxious and frustrated and don't know how much longer I can take.  It seems like forever for me till my surgery date now, even though I am sure it will be here before I know it now!  Of course, I am starting to become a nervous wreck now, plus on top of my losing my job at the same time.  I still don't feel good most days, and get very frustrated on my inability even to work hard at passing my gas, but I know one day I will feel better to live a normal life every single day.  Not just here and there; every once in awhile; plan my clean out days; etc.!  I get tired of cancelling events with people and being grouchy, and it does bug me that everything revolves around food because I worry oh gosh, how constipated am I going to get, how bad am I going to feel afterwards, etc.  It does sound like surgery is for you, and just talk with the surgeon when you think will be the best date for you.  It is hard to predict what date, like me=losing job, it is coming at the most inconvient time and I am still upset, but I am trying to look at it now as a summer of healing and starting a new life after all these years of suffereing now knowing it was colon inertia affecting me!  Keep in touch, and I will let you know how I am doing and hopefully try to keep updates when I get my surgery on the 2nd.

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 5/22/2011 5:49 PM (GMT -6)   
Thank you all. I posted right after it happen so I was in a lot of pain, so I probably did sound crazy. He told me pending the SBFT results depends on surgery. He said that he guessed the SBFT would be fine and not delayed but it ended up being really quick so that is where my own personal concern about him doing surgery came from. I am just going to be honest with him and hopefully it will work out. As far as taking off work, my boss is really a pretty cool guy so I am just going to talk to him too. I have a small tendancy to freak out if you haven't noticed already:)
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
5/26-Surgeon Appt

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/23/2011 4:15 AM (GMT -6)   
everything will be fine, Mary. glad your boss is a cool guy. hopefully he will be very understanding of your condition. let us know how everything goes. thinking of you sweets!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 5/23/2011 5:06 PM (GMT -6)   
Hopefully your boss is understanding. I know I'm very lucky with mine. I mean they can see when you're at work that you're not feeling well. It's not like you're making it up! I would just be totally honest with both about how bad things are and reiterate that you can't go on that way, that you need to get your life back. Most people will surprise you with how understanding they can be and those that aren't, aren't worth worrying about!
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

rita5287
Regular Member


Date Joined Feb 2010
Total Posts : 42
   Posted 5/23/2011 10:56 PM (GMT -6)   
On the 26th I'm having a proctocolectomy w/ hopefully a temp ILEO. I am 26 also. Surgery is a big thing n u can't go bck. I waited awhile n tried tons of Meds. Nothing worked. Pray n have a good support team! Hope u make the right decision. God bless u
Diagnosed w/UC 4-7-09. Have had 4 colonoscopies. 1 sigmoid colonoscopy n 1 endoscopy. Went from proctitis only in rectum to full pan colitis. No Meds have worked for me not even remicade. Been hospitalized 3xs n 5 mnths. Have Gastritis also. Current Meds: pred 40mg 7days tapper to 5mg. Nexium 40mg. Asacol4800mg. Xanax1mg.Tylenol w/codeine.having proctocolectomy on 5/26/11.

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 5/24/2011 8:29 AM (GMT -6)   
Oh believe me I had exhausted all other options and this is not something I take lightly. I have tried all the medications and also changing the diet. Each month is progressively getting worse and worse. I know this is what needs to be done but now than later.
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
5/26-Surgeon Appt

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 5/24/2011 5:31 PM (GMT -6)   
Mary, I feel the same way!  Here I am 26 turning 27 this summer, dealt with constipation all my life.  Never understood why tummy hurt a lot, and then just thought maybe I didn't eat enough, then learned about IBS.  I never in my life thought there was an actual disease of colon inertia until last year on my first transit study.  I am like, I am too young for this.  I really kept quiet about my distention a lot during my college career until it started to get really bad about 4 years ago.  And for the past 3 years, I tried every single diet, supplement, crazy cleanse thing to fix my constipation and nothing ever helped until this past year I just relied on several dulcolax, which I still have problems with that on occasion.  For example, taking 6 last night and drinking miralax, and just let out a little bird dropping this afternoon.  I am ready to eat a normal diet, put some weight back on me, and not feel bad!  Surgery is coming soon!!!  Let us know how your appt. goes with the surgeon on Thursday for you.  Hang in there!!!

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 5/24/2011 7:06 PM (GMT -6)   
Thank you, I will and good luck to you too. I know what you mean, there were days during college I would be in so much pain that I would have to leave early. Do you find there is only one type of laxative that will work for you? Senekot is the only laxative that MIGHT work and I have to take like 12 to get them to work:( If I don't have surgery what other option is there for me? My colon won't magically start working:/
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
5/26-Surgeon Appt

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 5/24/2011 8:11 PM (GMT -6)   
Sometimes I wonder how I advanced as far as I did in school.  I graduated my B.S. in Biology with full intentions of becoming a physician assistant.  I studied, studied, studied, and I put in a lot of hours to get good grades.  I think about it now, and I am like no wonder I never pursued further with my education because I always felt weak and never very good!  For the past year, I do just enough to get through my day at work, and then come home and sit on the couch because I don't feel good! =(  Also, I would love to further my education.  Now I have just decided I would love to get my master's or wish I did a back-up and got a teaching certificate to teach biology and math.  However, this disease has taken over my life.  Like I said, maybe me losing my job right now when I am about to have surgery will be a fresh new start for me.  I hope so!!!
 
As for laxatives, I tried senokot several times, and it does not work very well for me.  The only thing I find that works the best for me is dulcolax, which I absolutely hate!  One-either it is going not going to work, or work!!  Plus, I get awful cramps and chills with this laxative sometimes, but I don't know what else to do.  I try to take a stool softner just to give me something a little extra sometimes, so I won't cramp as bad b/c also, I feel one little extra pill can make a difference of going! or not going! =(

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 5/25/2011 9:16 PM (GMT -6)   
I know what you mean about the fact that it eithers works or does not work at all. The cramping is so bad. I am the opposite Dulcolax doesn't work on me. Yea the stool softener is a big waste of time but it makes you feel like you are at least trying.lol


I think after surgery you will be a whole new person so I say go and get your Masters. Once my daughters reach preschool age, I am going back to get my masters. What do you currently do now?
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
5/26-Surgeon Appt

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 5/26/2011 8:19 AM (GMT -6)   
Well, I have had lots of experience in the healthcare field.  I have worked at a nursing home before, as a phlebotomist, and for the past 2 years I have worked in medical records.  Today is my last day, since I got let go.  I am def. considering doing something more once I get better though!
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