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smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/23/2011 4:21 AM (GMT -6)   
It's now 4 am , I still can't to sleep,I have severe constipation, almost a month no poop, I know a man he just cut 10" colon in nov, since then he have twenty time dirrehas per day, up to this moment still the same,he claim his butt extremely sore,And he said the surgery is extremely pain, he usually can stand for the strong pain, but he said he cannot tolerate, and the surgery is extremely risky, he may die. He suggesting not removing the whole colon, the laxative is not working, I really cannot stand it.

Anyone can give me some opinion, i am worryI even can't clean up before surgery. And I am afraid for the pain. On June 15 I go back to see the doctor in hong kong. And I afraid to die. Any suggestion would be welcome.

Smarty

Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 5/23/2011 8:18 AM (GMT -6)   
Smarty, I don't know exactly what is going on with you but it sounds like you need to see someome very soon. I can't imagine going a month without having a BM (poop). You must feel absolutely terrible. I remember my GI's physician's assistant telling me that they see people who haven't had gone in two weeks and they are asking to have their colons removed. June 15 is almost two months away. If it were me, I would be on my way to a hospital emergency room. Good luck. I hope you find some relief very soon.

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 5/23/2011 11:02 AM (GMT -6)   
Agree with Scrap Girl, sounds like you need urgent medical attention and you need to see a Doctor... keep us posted and good luck.
Sarah - 38 year old mum of 2 boys, competitive runner/triathlete, health and fitness writer

June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - dx colonic dysmotility April 2011. Currently taking Prucalopride 2mg p/d

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/23/2011 7:19 PM (GMT -6)   
I'm so sorry for you. You need to see a doctor as soon as possible. Please don't be afraid of surgery. So many people get their lives back because of it.

Take care,
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/24/2011 2:11 PM (GMT -6)   
Hi everyone

Thanks for your suggestion, I am very scare for the surgery, I am afraid I can't stand for the pain as I see the forum, other have tc describe the pain like a truck ran over the body. I know a man remove his 10" colon in nov, he have 20 times diarrhea per day, even up to now still the same, and he said he can' tolerate the pain for the tc and the burn of the annus.

My brother know 4 persons remove the whole colon, all die.

All my friend and family and doctor here not suggest me to do it, they said I will die.

Any comment is appreciated.

Smarty

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/24/2011 3:15 PM (GMT -6)   
Smarty,

it sounds like your family doesn't want you to have this surgery and are saying things that are not true. I am not sure what country you are in but there are more health risks by NOT dealing with your situation. The surgery is surgery...but you get pain medication to help you through it. I've never for one second regretted having my colon removed.
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 5/24/2011 4:23 PM (GMT -6)   
Hi Smarty,
I have dealt with constipation problems all my life.  As a child, I was lucky if I was able to go to the bathroom once a month.  For the past years, it has gotten progressively worse.  I get distended and bloated about everytime I eat, having problems passing gas, and all the tests I have had done shows that my colon became very redundant, loopy, and I have had several kinks.  Like you, I have to take several laxatives in order to go, or even my several don't always work.  I am scheduled to have surgery next week to have my colon removed, June 2nd.  There are lots of people on here that have had their colons removed and have life happy lives.  Yes, recovery will be hard, but I think it will be worth it at the end.  Read the colectomy threads on here, and I hope everything works out for you!

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/24/2011 5:06 PM (GMT -6)   
Hi

thanks for your reply.

I came from Hong Kong, and I living in calgary now. The main things is the laxative always not working, even the laxatives for colonscopy. All doctors said they can't do it because of the poop inside, only one doctor agree to do it, she said she only need to clean rectum and the rest doesn't to clean. Is it very dangerous. I saw a news in Hong Kong the man was removed the polys after surgery he was coma, and the man his nose was bleeding some green stuff, after one week the doctors found the man's whole organ full with poop, at last he die.

I am very scared now, but I booked the flight to HK on June 15

smarty

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/24/2011 6:09 PM (GMT -6)   
Dear Hurtboy

I hope your surgery is very successful and recovery fast. For me, I am very scared the pain after surgery, I usually cannot tolerate the pain, even a little.
I heard that is huge pain people can't tolerate. Can I doctor the doctor he make me sleep for 10 days after surgery.

smarty

AuntieTina
New Member


Date Joined May 2011
Total Posts : 2
   Posted 5/25/2011 5:12 AM (GMT -6)   
Smarty,

I am also from Canada, close to Vancouver, BC, and I know there are many skilled doctors and surgeons in our country, perhaps with more experience than the doctors you have spoken to in Hong Kong. Please, please see a doctor and ask to be referred to a gasteroenterologist or a colorectal surgeon.

For immediate relief, have you tried using multiple fleet enemas? I need to use multiple fleet enemas per day to achieve a bowel movement, or I would not go for weeks at a time. The pain is so bad. Also, try to drink Miralax mixed with a warm drink 1-3 times per day to help keep stool softer.

The pain after surgery will be controlled very well and I think it would be better to deal with that rather than dying from a bowel obstruction. Most people in Canada have a patient-controlled pain pump or an epidural for at least the first few days. I would urge you to seek medical care before you travel to Hong Kong.

Best wishes to you and I hope you are feeling better soon. I know what a struggle it is living with this problem.

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/25/2011 9:17 AM (GMT -6)   
Auntietina

Thanks for your suggestion, I try enema before,it doesn't work, I also try the laxative you suggest, same. I went to emergency couple times, they just gave me enema,also not work. They said they won't do surgery for me, too dangerous.

Do you think am I die in this surgery

Smarty

AuntieTina
New Member


Date Joined May 2011
Total Posts : 2
   Posted 5/25/2011 2:31 PM (GMT -6)   
Smarty, why is surgery too dangerous for you? You need to see a doctor who specializes in gastrointestinal disorders or a colorectal surgeon. An emergency doctor is not specialized enough in this area to make that decision.

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/25/2011 4:12 PM (GMT -6)   
Anyone have ibs cause by stress remove the colon

If my constipation cause by stress, surgery work ? I know someone still have constipation after surgery.

My colon is very strange, I did the marker test in Calgary, after one week, still there. I always have one month no poop, but last year I suddenly recover for 2-3 months, a few times per day. But suddenly it stop again.

Any suggestion is appreciated.

Smarty

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/25/2011 4:16 PM (GMT -6)   
Auntietina

Thanks for your suggestion, I will find coro-doctor in hk, every night I can't sleep, i am very scared the surgery.

Smarty

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/25/2011 6:26 PM (GMT -6)   
I am very scare, I am afraid I will die in this surgery, I just search google and yahoo, the total colectomy mortality rate is high

I can't sleep, help

Smarty

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 5/26/2011 7:12 AM (GMT -6)   
There are always risks involved in any type of surgery but I amongst many others on this forum have had our colon removed and we are all still here, and I must say the pain from the disease was far worse than the pain after surgery. I actually felt so good after surgery that I wanted to get up and have a shower straight away so I did with the help of the nurses. Yes it does hurt but its not that bad, and I really think its very unlikely you will die from this surgery. You have to do what is best to treat your illness but make sure you get a couple of opinions from gastro specialists and colorectal surgeons and write down all the questions you want answered and ask away. Im sure they will be able to tell you what would be the best treatment for you and if that is surgery then try to relax, your not making yourself any better stressing this much. Keep us posted on what you decide
take care
Doreen

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/28/2011 8:57 PM (GMT -6)   
Hi adorable

Thanks for your opinion. Here In Calgary the g.I. Doctor and colorectal doctor not suggest me to do it, they said is very dangerous.

Today I feel very pain of my colon, but the doctor here ignore me, they always think constipation is not a big deal. My boyfriend said if I do the surgery he won't take care of me, he can't stand for someone always diarrhea.

I don't know how to do, the laxative just not working.

Thanks
Smarty

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 5/30/2011 10:18 AM (GMT -6)   
Please Smarty do not look on the internet about mortality rates for a total colectomy operations - it is rubbish that you are gonna die after this operation!!!!!  ARe you otherwise fit and healthy??? I cant understand your GI dr and colorectal surgeon saying it is dangerous - why is that did you ask??? in any event you are blatantly suffering so what are they gonna do about it mad   ????   Those people who die on TV have probably got other issues going on with their health - really dont be scared!
 
if you are fit and healthy - (i know your bowel is not working) then you have NOTHING TO WORRY about!!! do you need to go back to HOng Kong.  you need surgery and if you are worried about the diarrohea then you can have an ileostomy as an option.  please, it is routine surgery - people all over the world have their bowels removed/resectioned etc every day.
 
I am sorry your boyfriend is so unsupportive mad you could do without that - but ignore him and do the right thing for your health.  how old are you and do you live in Canada permanently? Also there is a powder mix in a sachet that you can get from the hospital or your doctor which is called (in the UK) Picolax - they give it to you to clear your bowel out before surgery.  it might take a while to kick in cause you sound like you could be really full of poop.  thats what i used all the  time when my bowel just packed in working.  i hope you are okay and get help.
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR procedure - mucosal prolapse/ODS/diagnosed slow transit constipation
2007: Sigmoid resection (MRI showed twist) - made colonic inertia worse (cleared obstruction though)
March 2009: Total colectomy with ileorectal join and loop ileostomy
23 Sept 2010: Ileostomy reversal - not going well

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/30/2011 3:34 PM (GMT -6)   
Dear 2much2b

Thanks for your opinion. I will try your laxative. On June 15 I will go back to hk to see the surgery doctor and g. I. Doctor, I already immigrant to Canada,Calgary. The g.I. Doctor is a Christian, he will come to our church on june17 to talk about god message. At that time I won't be here. He is the doctor handling scar (everyone wear smask) sorry I don't know the spelling. He is the docor he is brave to fight the infection and live In hospital at that time. He also the principle of Chinese university of hong kong. In hk many surgery doctor only focus on money first. It's quite expensive to see him, I through a pirvate clinic in hospital to see him, if through government public clinic I have to wait quite a long time, last time I wait 2 years.

I am still scare for the pain, the severe dirreha, infection, intestine Adhesive ,incontience and other complication. I am a zero pain tolerable, I know I am so crow ward.


Thanks again.

Smarty

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 5/31/2011 3:07 AM (GMT -6)   
Bless you and i am praying for you Smarty. Yes all surgeries carry a risk but so does giving birth too!! Try to have faith you will be okay - the pain is a nuisance but we all get through it so please remember that... and also keep walking around after your surgery because it helps with the bowels waking up as that is the only pain that i found annoying but remember it will pass after a few days. i know you are scared and that is normal... thinking of you.
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR/ODS/diagnosed slow transit constipation
2007: Sigmoid resection -MRI showed twist - (made colonic inertia worse but cleared obstruction)
March 2009: Total colectomy/loop ileostomy - quality of life 100%
23 Sept 2010: Ileostomy reversal - not going well - motility/rectal issues being investigated

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 5/31/2011 8:41 PM (GMT -6)   
Dear 2much2bear

Thanks for your support, thank you.

On June 15 I will come back to HK, at that time I will live with my brother, he really doen't like me to do the surgery. I won't tell him I will see the surgery doctor there, otherwise he will get mad to me.

Also, I have to see my sister in HK, she got cancer and spread all over her body, she only left 2 months.

I already over 2 years haven't checked I have polys or not, in the past, the polys had grown only 1 year, because I checked in HK in the past, the doctor found the polys again just after 1 year. But, the doctor here they don't allow me to check it, he say I can check every 5 years. I also don't know this time I come back I can do the surgery or not, because the laxatives seems not working.

Thanks again
smarty
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