Ostomates Have ?

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Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/23/2011 9:41 PM (GMT -6)   
Hello, me again...I have a loop ileostomy and J-pouch. The last couple days i felt like I needed to pass gas through rectum. Then just a short time ago I all of a sudden need to push a little and stool came out of rectum. I've gone 2x now...Is this normal when you have an ileostomy? I never did get all the way empty for surgery, so is this a normal thing. And now my bladder is bothering me again since surgery. I don't know if somehow the bladder was compromised during ileostomy.

Pleez help, I am worried and scared.

Your healingwell friend,
Serenitee
______________________________________________________________________________________________________

Loop ileostomy 2 weeks ago...Bipolar 2 and Borderline...Depression and Anxiety really bad...2-rectoceles, 2-bladder surgeries...Vaginal Vault lift, hysterectomy, 4-knee surgeries, shoulder surgery, tumor on head, C-section and ruptured appendix, and more.

Post Edited (Serenitee) : 5/23/2011 9:46:40 PM (GMT-6)


elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 5/23/2011 9:44 PM (GMT -6)   
It's normal, don't worry! Even if it keeps happening a long time after surgery, it's normal. With a loop ostomy, it's actually possible for small amounts of stool to "bypass" the ostomy and exit rectally. Totally normal.
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/23/2011 9:49 PM (GMT -6)   
Thank You my husband and I were really worried. Thank you for being there and answering so quickly. Do you have an ostomy?

Serenitee

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/23/2011 10:28 PM (GMT -6)   
totally normal! and it's a good thing it is coming out.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/23/2011 11:26 PM (GMT -6)   
Do you know why its doing that? Is it because there was some stool still in system? At what point do I need to be concerned there is a problem? I thought when they do the ileostomy they actually cut the intestines in order to make the stoma, so shouldn't there be no way that stool can come thru.

Serenitee

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/24/2011 12:12 AM (GMT -6)   
it's not b/c there was stools still in the system. you shouldn't be concerned at all. it is normal with loop ileostomies. with loop ileostomies they take out a loop of the small intestine through the abdomen wall and cut it in the middle, but not all the way, so stools can pass from the upper loop into the lower one ending up in the rectum/j pouch and it is supposed to come out. even w/o stools passing, the rectum/j pouch keeps producing mucous and that mucous needs to come out through the anus.

with end ileostomies (permanent) they take only one edge of the small intestine (not a loop) so there's no way stools can pass from the upper gi tract into the rectum.

here are some illustrations which can help you understand it better:

http://home.earthlink.net/~bobbau/loop-end-ileostomy.html

http://www.mountsinai.on.ca/care/ibd/for-patients-ibd-support-network/about-ibd/surgical-options-pelvic-pouch

http://www.ncnm.ie/isccna/ileostomy.htm

so don't worry, it is perfectly normal and as long as you have a loop stoma, you'll still have bms through the anus too. my rectum also produces lots of mucous, but i cannot expel it b/c of my severe anismus. i do enemas to help with that, but even enemas don't help much. it makes me very uncomfotable that it stays in there. be thankful you're able to pass it :)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 5/24/2011 4:43 PM (GMT -6)   
Hodaya is right - with a loop ileostomy, they do not cut the intestine; there is still a physical connection between the mouth and the rectum, but there are holes in the intestinal wall where the stoma is so that stool will tend to exit there instead. But it is possible for stool to slip past the hole and exit rectally. Don't worry if it continues, I would only worry at all if you're having a LOT of stool exiting rectally. And yes, I have an ostomy, but like you, it's temporary - I'm getting a j-pouch. :)
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/24/2011 5:41 PM (GMT -6)   
Anyone know how long you keep your temporary ileostomy before getting a permanent one?

Serenitee

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 5/24/2011 6:07 PM (GMT -6)   
Most people do not have a temporary ileostomy before getting a permanent one, they just get the permanent one straight away. And since you have a j-pouch won't you not be getting a permanent ostomy?
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 5/26/2011 8:34 AM (GMT -6)   
You might be thinking of temperary ostomy wrong, its temperary in the terms of you can change back to being connected....its not temperary in terms of your waiting to get a permemant one. You 'get a permenant one which actually might not be getting anything it might and most likely will be keeping the same one, it comes about when you need ur rectum removed because its highly diseased and nothing is helping stop it'. So its not as if your waiting to get a permenenent one, its not like 30 day tags on your car lol.

Also you might find that you pass a somewhat mucus type substance from your rectum for quite a long time, Ive heard of people passing it for years, your rectum is still going to create mucus as if it were creating it to pass stool, so its still functioning normal which should make you happy. It happened to me the entire time I had my chances of going for a reversal, it was just not going to happen fo rme and my rectum still gave me problems so i got it removed making it perm.

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/26/2011 3:29 PM (GMT -6)   
Crohns Patient...

Thank you so much for clarifying what I had been thinking in my own head. Now i understand the difference between the permanent and temporary. Truly appreciate you letting me know. I'm sure I sound like an idiot...Lol

Serenitee

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 5/27/2011 8:15 AM (GMT -6)   
I got thinking in the middle of the night that I might have sounded rude telling you what you were thinking. But I'm glad to see I 'assumed' right, because you know what assuming does dont you? I hope you have a better understanding now, and I'm glad I could help. lets just hope that it stays a temperary ostomy and you still have the opurtunity to reverse at some time in the future.
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