Thanks for your reply... no he's just doing the ileo... but I'll have an end ileo instead of a loop this time. He may never remove the rest of my colon.. we'll just see how it goes. The stoma wasn't in a bad place before, so they could just use the same site, however I would like it a bit lower if possible (I still yearn to wear a bikini if at all possible..), so the stoma nurse will come along and mark me up and we can see where is best.
I do totally trust him and know he'll do a good job - and you're right he does feel really bad.. :-( poor guy. He's done everything right and everything in his power to try and help me and it's turned out like this. He's very frustrated. But at the end of the day it's my decision and I know (so long as it works!) that I'm doing the right thing for me and my quality of life.
I've not come across too many people who've had an ileo then had it put back! it's lovely to hear from someone who knows what I'm going through. I love your last line on your signature.. and I'm hoping I'll feel the same and be able to eventually offer support to others going through this too.
He said he presented the case to some other surgeons and at least 50% of them said not to give me another stoma. But as I pointed out they have no idea how I feel and unless any of them have had an ileo themselves then they can't really comment! in many ways I'm better placed to know what I want as I know I felt better with it before. I was just thinking that today my stomach wasn't feeling quite as bad.. but then felt really lightheaded and weak and realised I've hardly eaten a thing in the last 3 days... cant' go on like this.
You're absolutely right! I can't wait to get back to tri training.. THANK YOU
Sarah - 38 year old mum of 2 boys, runner/triathlete, health and fitness writer from UK
June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - DX colonic dysmotility due to surgery/nerve damage
Meds - Prucalopride but not working