hi aarchi, i have bumped another recent post 'j-pouch vs ileostomy ... ' to the top of the list for you - it has answers from some perm ileo 'owners' & it may help
i see you are in East London & i'm presuming it is London, UK : have you contacted the IA (Ileostomy Association) http://www.iasupport.org/forum/default.asp - they are v active in the UK & in Ireland where I am - they have a forum & can arrange a knowledgeable visitor to talk to or meet
hope this is of use - cheers
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!