Eating Pizza or Hotdogs

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Chron'sFighter4Life
New Member


Date Joined May 2011
Total Posts : 6
   Posted 5/25/2011 6:32 PM (GMT -6)   
Hey! I have an ileostomy and have had it since October 5th of last year (it is temporary and will hopefully be reversed before the end of the summer). I haven't eaten pizza or hotdogs yet b/c I have read where some people have issues with digesting it.. I really would like to try it though! What are your thoughts? Will it hurt me? Should I try it?
 
THank you for your time! :)

smackie
Regular Member


Date Joined Feb 2011
Total Posts : 55
   Posted 5/25/2011 7:57 PM (GMT -6)   
I have an end ileo and I've had no problems with either.

Had pizzas with chicken / sausage / mushrooms / capsicum / pineapple, and a lot more.

I'm more of a bbq sausage fan than hotdogs though - but haven't had a problem with either.
Jul 06 - Dx with Coeliac
Sep 06 - Dx with Crohn's
Oct 10 - Pancolitis subsequent to a campylobacteriosis infection
Dec 10 - Dx Crohn's (GI) / Dx UC (Surgeon) / Dx Indeterminate colitis (Pathologist)
Dec 10 - Subtotal Colectomy & End Ileostomy [complicated by high dose IV steroids]
2011 - The year of recovery
2012 - Ileosigmoid anastomosis? J-pouch? Total proctocolectomy?

Blueheron
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Date Joined Feb 2010
Total Posts : 720
   Posted 5/25/2011 8:06 PM (GMT -6)   
I had surgery in November of last year. I eat both of these with no issues at all. I ate pizza very soon after surgery, but only with ham as a topping because I was scared of the veggies. Now I eat whatever toppings I want and just chew them well (I haven't tried fresh mushrooms yet... canned seem fine). I also ate sausage soon after surgery, but peeled the casing off. Now I don't bother and just eat it as is and chew well. Hot dogs don't have much of a casing so I would think they would be fine. The thing with food is that you just have to try it to know whether it works for you. If you live in fear of trying certain things, you may be limiting yourself unnecessarily. You are far enough out of surgery that you should be able to try more foods. Just start with small amounts and chew really well.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 5/25/2011 8:24 PM (GMT -6)   
I have no problems with either, pizza comes out really fast and triples in mass for me though lol. But I eat it anyway, I just have to empty sooner.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/25/2011 9:42 PM (GMT -6)   
Crohn's Fighter 4 Life...

Now I am just 2-weeks post-op, but my Ostomy Nurse said hotdogs are a "no" for me to eat. She said it can cause blockage. For me, I don't want to chance having a blockage cuz with my luck it would happen...Lol And I do love me some hotdogs...bummer :( i wasn't told there is any problems with pizza, and I have had one piece, just haven't felt like eating it since surgery. Used to eat it weekly. I think what I will also miss eating and thats a crisp lettuce salad. My doctor did a Loop ileostomy and its temporary. My doctor wanted to see how I would do with an ostomy as my motility of intestines had just quit moving to push stool thru. I am really happy with mine and can't wait to get it permanently done.

Good luck 2 U, I only wish you the best. Are you wanting it reversed? I would love to know your opinion on that since you have had it temporarily since Oct?

Your Healingwell Friend,
Serenitee
______________________________________________________________________________________________________

Loop ileostomy, Anxiety & Depression, Bipolar 2/Borderline, Shoulder surgery March 10, 2011, 2010-Vaginal Vault life with enterocele & rectocele, 2004 abdominal hysterectomy bladder lift, Benign Tumor on head removed, C-section and ruptured appendix, 8-pregnancies 7-births, 4-knee surgeries...That is just some of my surgergies.

supernova
Regular Member


Date Joined Jul 2006
Total Posts : 69
   Posted 5/25/2011 11:25 PM (GMT -6)   
Hey! Hope all is going well! Had my ostomy surgery done on March 1st of this year and I eat whatever I want. Pizza, hot dogs, nuts, popcorn, lettuce.. I'm not afraid to try anything. I had UC though.. I don't know if that makes a difference. Just make sure to chew well and drink liquids! Have a great one!! ;)

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/26/2011 2:21 AM (GMT -6)   
I can't imagine taking a chance of blockage...being sick and living in the bathroom, i don't see taking the chance on creating a problem that otherwise wouldn't be there if i took that chance and ate something that just might not make it thru the stoma.
But good-luck with whatever you decide. Maybe you should ask your Ostomy Nurse, or Doctor for their advice.
Serenitee
Loop ileostomy May 10th 2011, Bipolar 2/ Borderline, Anxiety/Panic-Attacks, Major Depression, DDA-Dual Diagnosis...Recovering Addict/Alcoholic. 9 years-clean from Meth and 8 months sober.
Just recently weaned off of Effexor XR, Prozac now in its place. Gabapentin, Zyprexa, Vistaril, Trazadone

Blueheron
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Date Joined Feb 2010
Total Posts : 720
   Posted 5/26/2011 7:54 AM (GMT -6)   
Remember too, that what one is able to eat in the eight weeks after surgery may be very different than what they can tolerate after that. I was very cautious during that initial period, but have since expanded my diet. And I went very slowly. The first time I had a salad I had about six pieces of lettuce. When I saw it caused no problems, I tried a slightly larger amount. Still no issues. Now I am eating a cereal bowl sized salad. I think small quantities on this stuff is key. I will never be doing the all-you-can-eat salad bar:) Definitely ask your nurse and doctor, but it sounds like their opinions vary greatly too. For instance, my nurse said almonds were fine in small quantities if I chewed them well and drank a lot of water (after that initial 8 week period of course). The only thing my surgeon said to avoid were tough, fibrous veggies such as Chinese vegetables. Good luck!
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/26/2011 8:14 AM (GMT -6)   
Blueheron's advice is right on target. 
 
Hubby went very slowly his first few months.  He is slowly introducing new things and in small quantities to see how it reacts.  I did make some hot dogs even though they really are not good for us as we know and the outer skin just seemed too tough and chewy....so he took the skin off which was far more trouble than it was worth.  Then we went out to a B-B-Q at someones house a month or so after that and he tried one - took small bites - chewed really well - the skin on those were not as thick it seemed as the ones I made and he did fine.  Went to a Japanese Steak house a few weeks ago...he was very selective in what he ate and ordered the shrimp and scallops.  He did eat the small salad that night and did fine and only had some of the veggies that were not so hard. 
 
When I make italian sausages - after they are cooked - I remove what is left of the outer skin just in case.  I made a huge batch for a party last weekend, sliced them up  and put them in a crock pot to keep warm and the skin was almost non existent when it was time to eat them due to the slow cooking I guess.
 
Pizza has not been a problem - cheese or pepperoni has been fine to eat.
 
Since it is now 5 months he does seem to be able to eat most things and stays away from the stuff told not to take a chance with (celery, coconut, pickles, things with outer skins etc.)  Fortunately he is not a big steak/beef eater so that is not an issue for him.  He would prefer a lean hamburger over a steak so that helps.  I have made filet mignon for me and given him some nice tender slices and that type of beef is certainly easy to eat, chew and digest.
 
Of course no matter what it is.....chew, chew and chew some more and smaller meals and lots of water.  So far he has not gotten into any blockage type trouble other than a semi-blowout one night at home after eating a shrimp chow mein dinner with fried rice which was way too much food even though I had it cooked softer than the usual stir fry.  It was overload for him that night for sure and wasn't pretty...lol.  We are being more careful now.

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 5/26/2011 10:53 PM (GMT -6)   
I worried a lot about blockagest at first but then realized that I was still missing out on things I loved and I had done that long enough. So I tried things in very small amounts with lots of water. When I eat popcorn I usually eat a piece of jelly bread right after. the main problem with popcorn is when it comesout its icky feeling in the bag. The only thing I have had trouble with so far are mozeralla cheese stcks. But then I just got in the hottub and then threw up a few times lol.
Another ucwife what kind of hot dog do y'all eat? I've never seen any with skin you could take off
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/26/2011 11:12 PM (GMT -6)   
As I recall I had the Ball Park Beef Franks...I fried them well done on the stove first which makes the skin kind of blister and puff out a bit and hubby cut the hot dog in 5-6 pieces and then cut the skin off. As I said it was more trouble than it was worth and he likes almost burnt well done hot dogs...once you take the skin off it isn't the same.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

fit4ever
New Member


Date Joined Aug 2010
Total Posts : 18
   Posted 5/27/2011 12:22 AM (GMT -6)   
Being a nutritionist I would advise against eating hot dogs for anyone. But especially those of you with Crohn's or UC. Those disease put you at higher risk for cancer of the GI tract and the nitrites in hots dogs, sausages, processed lunch meat, etc. is proven to increase the risk of cancer. Regarding pizza, there appears to be a link to the gluten in flour and Crohn's and UC, pizza has gluten. Personally, I wouldn't take any chances. Unprocessed, natural foods are your best choice. Processed foods, sugar, soda and such cause inflammation in the body. As you all must know, Crohn's and UC are caused by inflammation.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/27/2011 7:53 AM (GMT -6)   
You are so right about the processed foods but old habits are so hard to break. I/we have gotten more sensible as we have gotten older but of course most of the harm has been done. I honestly try to keep things as healthy as possible and kind of happy he isn't eating the hot dogs as often now. The concern of a blockage at least for now is quite real to him and something he definitely wants to avoid and not contribute to.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 5/28/2011 8:30 AM (GMT -6)   
I am totally crazy about eating healthy/organic/non processed foods...just ask my family! BUT I do love a hot dog every once in a while! Yes, they are the perfect size to cause a blockage but as long as you chew your food you can give it a try. Sometimes I find that (I did this before my stoma...don't do it know) you can just chew a bite or two to get the flavor and spit the food out...gross but effective when craving something.

We are all so different, so this is more personal, but the only limitations on the foods you eat are the ones you put on your self. If there is something you want to have, eat a small quantity the first time...if it goes ok, increase it the next time and so on.

Give it a try but use moderation!!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/28/2011 11:11 AM (GMT -6)   
Believe it or not I have told my husband when he is in the comfort of his own home and we are alone if he wants some grapes or something he is very leary about eating the skin of....then by all means chew, get the flavor of it and spit out the skin instead of being so totally deprived of something. When possible I will remove the skin for him depending on the item so he can eat it and not have second thoughts.

And yes every once in awhile a hot dog satisfies a craving although I don't eat them often at all.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/28/2011 9:27 PM (GMT -6)   
i had two hotdogs tonight, lol.
when i eat fresh pineapple or oranges i spit the stringy parts out. And yeah it's kind of gross, but its grosser looking at them when they come out, yuck
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 5/29/2011 2:00 PM (GMT -6)   
Having had an ileo for many. many years the only food I avoid are mushrooms. I had a blockage once with a very chewy one, they do actually have a fiberous skeleton and I have a stricture and this particular field mushroom didnt break down properly and got stuck in stricure. Managed to free it without surgery, gently massaged area to push it along but have avoided them since. Others have no problem with mushrooms, it's just me. I regularly eat pizza with all sorts of toppings but don't eat sausages or hot dogs or burgers unless veggie ones as don't like minced up meat, thought of what goes in it turns my stomach.
 
Every person is different and you only learn what you can and can't tolerate by trial and error. Try small amounts and chew well. Eat what your fancy and there are very few foods that shouldn't be eaten.

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 5/29/2011 5:39 PM (GMT -6)   
Hubby also likes escargots but like mushrooms I would think no way so he has taken that off his list for sure. A guy who mentored us before his surgery who had a temp ileostomy before his j-pouch had a terrible blockage with a mushroom so we were well aware of that as a possible problem and decided not worth it.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 5/29/2011 7:21 PM (GMT -6)   
fit4ever if the disease was all in the colon, doesn't the extra risk of cancer go away w/the surgery?

I was almost gluten free before surgery, but I am really enjoying eating wheat now.... just missed a lot of things. A lot of gluten free packaged foods are more processed than the regular equivalents (not to mention way more expensive)..... and when the disease is completely sapping all energy, well it's hard to cook everything from scratch. I actually was a vegetarian for 25 years, but started eating fish after I no longer could eat so many of the protein containing foods I used to eat.... might go back, we'll see.

Really, I want to enjoy my life now..... not in a stupid way, but I got so tired of having to think about how every food affected my health... so, will pay attention to possible blockages and try to be healthy, but not in a stressful way. Stress is bad for health too.

I just tried some mushrooms this weekend -- grilled, cut in pieces, and I chewed and chewed like they were gum. Just ate a few. Totally fine .... I've enjoyed some pizza too. Don't eat hot dogs, even the vegetarian ones, don't like them. I am still scared of stringy veggies.... someone I met had to have surgery from eating too many raw bean sprouts. It is so hard to experiment when the consequences of getting it wrong can be so harsh.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 5/31/2011 4:38 AM (GMT -6)   
I just had my surgery last Wednesday and both my stoma nurse and the doctors at the hospital told me to eat whatever I want, just to chew really well. I had expected them to tell me to do the low residue diet for at least a couple of weeks, but nope!
So I've been eating a lot of tomatoes (skin peeled) and bits of other fruits and veggies since Saturday and I haven't really had issues so far. I can just see the seeds come out in my bag. It's been months since I've been able to eat raw fruits and vegetables and now that I'm UC free that's all I want to eat.
I also had sushi and a couple of bites of pizza yesterday. Is it too soon?

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 5/31/2011 11:55 AM (GMT -6)   
When I first had my surgery 20 years ago they never mentioned to me about taking it easy for first few months and as I was starving I ate everything in sight and loads of it and never had any problems. If you haven't any narrowing in the small bowel then should not cause you any problems. All I would say is chew well and if fiberous/tough or hard to digest normally then take it a bit steady.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Chron'sFighter4Life
New Member


Date Joined May 2011
Total Posts : 6
   Posted 6/2/2011 4:25 PM (GMT -6)   
Thanks everyone for all the great advice! I guess I will just have to see what is best for me because evryone is different!

-Thanks again! :)

p.s. @ Serenitee : Yes I am definitely wanting it reversed as soon as possible, however I know that I must wait until the doctor says it is the right time to do so because I would never want to do it too soon and be in a lot of pain like I was before! Unfortunately, I just went to a colon/rectal specialist on Tuesday and he told me that he would wait until the end of the year before doing the reversal! I'm not happy about this but I guess I just need to do whatever is best for my health :(

- Good luck with everything! :)

run4pancakes
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Date Joined Oct 2008
Total Posts : 938
   Posted 6/13/2011 9:23 PM (GMT -6)   
I eat pizza, but I haven't tried mushrooms or pepperoni. I mostly eat cheese though I've had ham, onion, and peppers. I also have not tried hot dogs or sausages with the casings yet, but I'm about to because it's grilling season and I love them! My husband has been peeling the casing off of the apple chicken sausages I love and then grilling for me. I'm not too worried about hot dogs, but I do love brats and smoked sausages.

I agree with the advice to start small, chew well, and drink lots. I remember when I decided to try tomatoes, I ate one tiny cherry tomato just to see what would happen. That's the way I've experimented with new things as they come along.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 6/13/2011 10:06 PM (GMT -6)   
We tried corn on the cob the other night. 2 small ears - all white - super sweet - I tested it first and the kernels popped right off the cob and was not "mealy" at all and he ate it really slowly and chewed really well....he enjoyed it so much. No problems afterwards. I wouldn't push it and pig out and have a bunch of ears but for such a simple thing I was so happy to see him enjoy it so much. It's the little things in life sometimes...lol.

We have had sausages quite a few times....after I cook them I remove the skin.

Made tacos last week and chopped everything up fine....they were sooooooooooo good.

I find I am eating much slower too so he doesn't have to feel like he is a slowpoke so he can take his time and chew, chew, chew.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 417
   Posted 6/14/2011 12:31 PM (GMT -6)   
NASCARon said...
I eat everything... including popcorn. the only time you have to be careful is in the first 6 to 8 months


NASCARon: Did you mean 6 to 8 weeks instead of 6 to 8 months??? That would be a long time for me to wait (weight!!!)! LOL!

I just passed the 8 week mark and will start consuming other foods now...cooked only vegetables..though, I have been warned to the nth degree..no more popcorn ever! And, no celery!
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