Pain behind stoma

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qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 5/26/2011 11:53 AM (GMT -6)   
I had my surgery nearly 7 weeks ago (see below), the pain settled down within about a month, and I could finally say to people that I wasn't in any pain, just some discomfort. However since the last week I have been getting increasing pain about 2 inches to the left of my stoma and also behind it. My output has always been on the higher end of the scale 800 - 1000ml, but randomly yesterday even though my diet intake was the same as the other days it went down to about 450ml, and today its going the same way. The output has always varied from bright green liquid to thicker porridge consistency either green or brown. Could this pain perhaps be the start of a blockage?! I just don't know what to do, it is unbearable overnight and I feel quite nauseos. GP said that the painful area to the left of my stoma feels like something not right under the skin but he isnt sure whether the pain is muscular or gastro.
24 y/o female from UK dx with UC (Proctitis) Jan 08. Never fully been in remission, resistant to all meds apart from Pred and Infliximab. Also dx with IBS. Proctocolectomy+pouch surgery w/ temp loop ileostomy 9thApril11.
Currently taking daily:Tramadol, 20mg MSR (slow-release Morphine), 40mg Loperamide, Cyclizine, 60mg Seroxat (anti-anxiety), Multivitamins+Iron

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/26/2011 12:03 PM (GMT -6)   
i'm not sure.. it could either be a blockage, hernia, inflamation of some kind or something else. have you tried to talk to you surgeon? i think its better he takes a look at it. let us know how things go. good luck.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 5/26/2011 12:12 PM (GMT -6)   

hey thanks for your reply. I am seeing my surgeon for a follow up appointment next week. I'm just nervous because its the weekend and also bank holiday on Mon which means I'm not going to be able to contact the stoma nurses or GP until Tues.

 


24 y/o female from UK dx with UC (Proctitis) Jan 08. Never fully been in remission, resistant to all meds apart from Pred and Infliximab. Also dx with IBS. Proctocolectomy+pouch surgery w/ temp loop ileostomy 9thApril11.
Currently taking daily:Tramadol, 20mg MSR (slow-release Morphine), 40mg Loperamide, Cyclizine, 60mg Seroxat (anti-anxiety), Multivitamins+Iron

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/26/2011 12:24 PM (GMT -6)   
oh that's good thing you're seeing him soon, but if the pain has been increasing and still going up, call his clinic and see if you can get in sooner. won't hurt to try. let us know.

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/26/2011 7:56 PM (GMT -6)   
qwerty1...

I just thought I would tell you I'm sorry your having problems. Problems can really interfere with just your daily living...I am 2-weeks post-op for a Loop ileostomy and doing pretty well. I do agree with 2bColonFree, and think you should definitely try to get in sooner, but if you can't just know if it gets unbearable I would go in to the ER. I really hope you get this worked out.
Your Healingwell Friend,
Serenitee

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 5/27/2011 4:55 AM (GMT -6)   
Serenitee said...
qwerty1...

I just thought I would tell you I'm sorry your having problems. Problems can really interfere with just your daily living...I am 2-weeks post-op for a Loop ileostomy and doing pretty well. I do agree with 2bColonFree, and think you should definitely try to get in sooner, but if you can't just know if it gets unbearable I would go in to the ER. I really hope you get this worked out.
Your Healingwell Friend,
Serenitee
Thank you for you reply! I am hoping to see the stoma nurse on tuesday so I'm going to try to keep popping the painkillers and hold out til then. Glad you are doing well, after only 2 weeks thats great...I had a temp loop ileostomy and internal pouch 7 weeks ago and have had nothing but problems, and been in and out of hospital since my first discharge after the op! But hey ho gotta get on with it :) All the best to you!
24 y/o female from UK dx with UC (Proctitis) Jan 08. Never fully been in remission, resistant to all meds apart from Pred and Infliximab. Also dx with IBS. Proctocolectomy+pouch surgery w/ temp loop ileostomy 9thApril11.
Currently taking daily:Tramadol, 20mg MSR (slow-release Morphine), 40mg Loperamide, Cyclizine, 60mg Seroxat (anti-anxiety), Multivitamins+Iron

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/27/2011 5:44 AM (GMT -6)   
If it is a partial obstruction (you still have some output) you could try Grape Juice, Strong Coffee or any other liquid that gives you quick transit time. I drink a Ginger Ale and can usually get things moving. Just be careful, too, with pain meds since they slow things down on their ownsad

Also try a heating pad. You may have to put it on your side depending on where/what type of incision you have. DO NOT put it on your wafer or incision skull

Just remember, no matter what day or time of day it is, and your output stops or you start vomiting...go to the hospital.


I hope you feel better soon!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 5/28/2011 5:55 AM (GMT -6)   
Thank you Equestrian Mom...I hate coffee so I might give tea a go as that always goes through pretty quickly doesn't it!?! My output is fluctuating between thicker and completely liquid. I will give your ideas a go :)
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