Hey thanks all of you for your support....
Yeah its doing my head in thinking about
waiting six more months.....it does seem pointless doesnt it??? like i said - why now - i suppose at least it may give me some peace of mind to 'know' whether food is passing through at the correct speed. I am paranoid that they have damaged my bowel or something.. But what realy annoys me is (like you HOdaya) - why the hell did they not say i had a pelvic problem before i had the reversal - it MUST have showed up on the tests i had two years ago
... didnt think mentinoing that.. i am gonna call tomorrow and ask for my outpatient appt to be brought forward to end august which is three months away and near the anniversary of my reversal. I think, had i insisted, he would have put me on the waiting list for an ileo ... but he said usually it is for ppl who are at their wits' end with it all... may be i have just adjusted but i am not 100% quality of life as before.... yeah i may get better but in my mind i doubt it cause nothing happens without the prune juice - the prucolapride just makes the juice work faster that is all really. i dont want to keep forcing my body into action for the rest of my life and then wait a few painful hours for it to kick in...
I wanted to be pain free etc for my 50th birthday this year which is on 10 November - i am gonna be 50!!
The prof i am sure would not have given me a six month appt cause he was the one talking about putting the ileo back - i will try to get an appt with him but all of london prob want to see him as i wasnt the only disappointed one that day.
i I must remain positive and it really helps to have my friends to speak to on here.
mirlax kills me with bloating and wind janie but thanks and i am glad you are living life to the full now - you are one of the lucky ones.... along with Amanda - do you remember her - she is connected to some of us via Facebook and she is doing fantastically well but dont really communicate much now... its great to put a face to a name.
love peace and health to you all. xx
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR procedure - mucosal prolapse/ODS/diagnosed slow transit constipation
2007: Sigmoid resection (MRI showed twist) - made colonic inertia worse (cleared obstruction though)
March 2009: Total colectomy with ileorectal join and loop ileostomy
23 Sept 2010: Ileostomy reversal - not going well