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nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 5/30/2011 8:37 PM (GMT -6)   
My name is Sana and I'm about to turn 21 in a couple weeks. I just had my first surgery (the first one out of three!) last Wednesday and they sent me home on Saturday. I was only in there for 2 full days, and I expected my stay to be much longer. Everybody said I would be in the hospital for at least 5 days.
I'm doing alright at the moment (so happy to be rid of the UC), just trying to adapt to the stoma and the bag. They sent me home with 3 see-through bags (Hollister) which I absolutely cannot stand. Constantly being able to see what's going on in there makes me much more fussy and paranoid. Does that make sense? Also, the home care nurse came to help me change the bag yesterday and then last night it leaked and I'm not sure why. I also had a leak my first night in the hospital, right after surgery, and that left me kind of panicky.

I just have a few questions. The stoma nurse at the hospital gave me a tube of Adapt Paste to use when I change the bag. Does everybody use this, or maybe some other sort of adhesive? Also, what do most of you prefer, the one piece or the two piece? How about filters? If you guys could also let me know what brands you prefer, because I don't think I want to stick with the Hollister bags.
Is it normal to feel itching underneath the wafer, nearer to the stoma?

And this is a bit random, but did anybody have really sore shoulders for a few days after their surgery? So far the only thing that seems to help that is the percocets that they sent me home with, but I do want to get off of those sooner rather than later.

I have been reading through this forum for about a month prior to my surgery, but for some reason I can't seem to remember any of the information now that I need it. I'm just overwhelmed with everything that's out there and I'm not even sure where to start.

~Sana

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 5/30/2011 8:53 PM (GMT -6)   
sana
You only need the stoma paste id you have any uneven areas around your stoma. Rule of thumb "less is better". There is enough adhesive on the wafer. If you use any powders or skin preps they generally reduce wear time and promote leaks. As for the shoulders, if any air was left in your abdomen during the surgery it migrates to your ahoulders to be released from your body. Sounds strange but I was there. It is really painful. It will go away. I use convatec. I have tried other brands but prefer convatec. You should talk to a nurse at convatec for advice. They are really helpful and will send samples. Phne # 800 422 8811.

Dan

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 5/30/2011 9:21 PM (GMT -6)   
Sana

Congrats on making it through the first surgery smoothly. It is a lot to adapt to the pouches etc, but you will experiment and catch on. Definitely get some opaque pouches, it's very nice to not have to see everything in there; totally get it that you don't want to look at it all the time.

Are you ordering from edgepark or some big supply company? They can send you samples of a lot of things. Is the skin around your stoma red and irritated? That can cause the itching. I use something called an eakin seal under the wafer -- it's a round sticky ring, and it protects the skin around the stoma. Some people use the paste for this too, but I find that the eakins are easier and they work better (there's also one called the adapt ring, that's similar).

Did you have laparosopic surgery? The pain in the shoulders is part of that, they fill you with gas and it migrates there.... it's very weird. Goes away soon.

The filters don't work at all with an ileostomy, but if you are getting a lot of air in your bag, you can use something called EZ vents, which are like the opening of a beach ball. You attach them and then can let out air without opening the pouch.

I like the one piece pouches because they are lighter, but a lot of people prefer two piece -- with a two piece it's easier to put on because you can see your stoma the whole time, and you can also swap between different sized bags (seems like more trouble than it's worth to me). I like the coloplast sensura one-pieces .... the ends of them are much easier to clean than the other brands. It's best to get a lot of different samples though, and try them. People have different body shapes, skin sensitivities, and stoma shapes, and different products work better w/each.

I second Dan on the "less is better." I had trouble at first w/leaks because I was using too much stuff. If you use adhesive remover (which you might not need to) be sure to clean it off w/soap and water, as it will compromise the pouch. Skin prep can also shorten wear time, I only use it if an area not under the eakin is irritated.

Another thing that a lot of us like is sure seals -- these are kind of like breathable saran wrap that sticks really well. They go on the outside of the wafer. If you have a leak, they can keep it in so it doesn't get all over -- very good for peace of mind when you are trying to figure it out. They are like the tegaderm used to hold IV's in place.

Did the stoma nurse give you a way to contact her, to call or email w/questions? I had a lot of them for mine, and still sometimes do.

Another good thing is to have something to put in the bag for deodorizer. You can get M9 drops that help, or I learned from this list about using 3% hydrogen peroxide, which you get at any drug store.... it works better for me, and it's way cheaper. Definitely nicer to empty the bag if it doesn't smell so awful

Good luck!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 5/30/2011 9:46 PM (GMT -6)   
Dan, I do think my stoma might be a bit uneven, I'm just not sure to what extent. The stoma nurse seemed to think I needed the paste and I just went with what he told me. And I'll look into convatec, thank you!

Blueglass, I have no idea where I'm ordering from! My stoma nurse told me that the home care nurse takes care of that at first (and he wrote down a bunch of order numbers for her), so the home care nurse is ordering all of my supplies right now. I'm going to see her tomorrow so maybe she won't have ordered anything yet and I can do it with her. I'm not sure how all of this works yet. I'm kind of confused about how ordering everything is going to work and where I'm supposed to be ordering from.
When my bag leaked last night the skin looked alright. I'm just not sure how the skin is doing since I've changed the bag, all I know is that it has been itching so I'm paranoid. I also haven't used any sort of skin prep or adhesive remover so those wouldn't have caused the leak. The only thing I use is that paste which I put directly around the edges of the hole in the wafer. I'm definitely going to look into getting eakin seals. And the sure seals as well.
Do filters really not work with an ileostomy? I vaguely remember my stoma nurse saying I would be able to get bags with filters, but I might be wrong.
Also, he did give me his number but it's been memorial day weekend so I haven't really had a chance to call since I got home on Saturday! But the home care nurse is coming tomorrow and hopefully she'll be helpful (though I'm a bit concerned after the bag leaked, considering it happened after she changed it with me).

Thank you for everything!

nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 5/30/2011 10:01 PM (GMT -6)   
Ooh, another thing! When I sleep (still on my back at this point) it seems like a lot of the output stays at the top of the bag and on the stoma. Is this ok? Any advice?

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 5/30/2011 10:19 PM (GMT -6)   
Nettiemoore:

that's normal when you sleep..we would all need to get hospital beds that incline so that would not happen...or, I've been thinking about some kind of "hard" pillow that would at least lift your back and head at an angle so that the contents of the bag would go down and not stay at the top..have to work on that...

Also, are you letting the paste sit for a minute before you apply the wafer to your skin? If you paste and then put on, the paste will still be "guey" and not "more solid" so it won't work as well...

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/30/2011 10:37 PM (GMT -6)   
the filters were work for maybe a day, i use a bag with filters, just cause thats what i use, not for the filters.
the shoulder thing is normal, another that may happen is really bad back pain, you wont notice it but you are probably leaning over because your stomach incision hurts, try really hard to keep your posture correct.
leaks can happen for lots of reasons, the hole can be cut too big, or you have messed up the application, or you had a faulty wafer, or bag. Usually, its user error. And at first thats really normal.
Usually, home health care nurses are not experts on ostomies, and nothing against them, they just dont know alot about it. My at home nurse suggested i take a pin and make tiny holes in my bag to let the gas out, i told her not to come back, lol.
You need to measure the stoma every single time you change for the first two months, at least. I cut my hole a tiny bit too small, and then i use paste, i apply the wafer, then the bag, then use the hairdryer on it for a few moments, to warm it, makes the seal better. dont do that until after your incision heals, it will hurt.
its a huge learning curve, but you will get it! And you are healthy!
good luck, and ask any questions you need to
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/31/2011 2:52 AM (GMT -6)   
hi Sana,
 
your stoma is a loop and you still have the rod (bridge kind of thing) underneath the stoma to keep it from sliding back into the abdome. they use this rod for reinforcement to stablelize the stoma, then take it off after 10 days-2 weeks. this rod causes lots of leaks, so dont worry about it, cuz once they take it off, the whole appliance will sit much better around the stoma and leaks will be rare. this rod is also the reason for your itching. sure seals can really help, esp while you still have the rod.
 
leaks can also happen cuz of the stoma keeps shrinking and changing shape in the first few mons, so as summer said, you need to measure your stoma every time you change the appliance.
 
i use coloplast sensura 2 piece. like blueglass said, the opening is much easier to clean. also, i found their wafer stick much better on my skin. i also have a loop stoma and mine is really retracted, so  i use a convex wafer (you cant use while still with the rod). i also use hollister's adapt rings #7805. but right now i don't recomment you the rings b/c of the rod. as long as you still with the rod, i suggest LOTS of paste around the stoma to seal all the gaps the rod is creating. i tried all pastes and liked convatec's paste best - it's the most solid and stable one of all the pastes i've tried. but once the rod is off, i highly recommend adapt rings of eakin seals.
 
the shoulder pain is normal. you probably had laparoscopic surgery, so they fill you up with lots of air. this air goes through the peritoneum omentum (it's a kind of an internal skin that covers the gutts). then it is transfered to the lungs and goes out from there. it takes about 2-3 days to be all over.
 
summer, how creative of that nurse to think of making those pin holes in the bag (really impressed). but hey, i'd say why work hard, better yet wear a srainer instead of a bag. 
 
Sana, good luck, let us know how things go.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 5/31/2011 7:18 AM (GMT -6)   
Sana,

Yes, when you have homecare, they order supplies for you, forgot about that. Definitely talk to the nurse about what you're ordering -- she can get samples for you too. Do you have a regular stoma nurse at the hospital too? When I got discharged I was sent home w/a piece of paper and a name to call at edgepark. Of course, you can order from wherever your insurance will take, but it was easy w/edgepark, they know a lot, set up the insurance for me etc.

I didn't know about the rod, as I have an end ileo, interesting.

You can insist on having a WOCN (ostomy nurse) come from the home health place.... depends on where you are, but I was disappointed in the nurse who came, I got poop all over me and the bathroom when she was "helping" me change the pouch (she was supposed to be holding the paper towel over my stoma). When they finally sent a WOCN, she was very good.

It is overwhelming at first, but remarkable how fast you can catch on.... I've learned so much about this new ostomy world.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 5/31/2011 11:30 AM (GMT -6)   
Enigma, I just apply the paste to the wafer and then stick it on my skin without waiting. That's the way my stoma nurse did it and it seemed to stick alright. Then when I did it myself it definitely was more gooey and a lot of it seemed to melt off throughout the day and now I don't see any paste around my stoma at all. Odd.

Summer, your home care nurse sounds a bit crazy! I'm not sure what she must have been thinking, but I can imagine later on she realized what she said and probably felt a bit foolish.

ColonFree, I'm not sure what rod you are talking about. My surgeon never mentioned this. I'm going to see him in two weeks, wouldn't he have given me some kind of warning if he was going to be removing something from my stoma? I'm a little bit confused. Also, I've been out of surgery for almost a week now and I still feel the pain in my shoulders unless I take my painkillers.

Blueglass (and everyone else!) thank you so much for all of your help! I'll definitely be talking to the nurse about what she's ordering. And I'll be calling around to get samples. Although aside from the main three brands, I'm not sure what other kinds of samples I should be looking to get.
21 years old
UC since September 2008, diagnosed in April 2010

Going for a J-Pouch in 3 steps!
Surgery #1 - May 25th, 2011

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/31/2011 12:36 PM (GMT -6)   
with loop ileostomies they always have to place the rod and they take it out after 10 days-2 weeks. my dr never explained to me about the rod either and i saw it only after the surgery. you're supposed to have this rod, unless there's a new technique to do loop ileostomies w/o a rod..?
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/31/2011 8:20 PM (GMT -6)   
Paste can be more irritating since it contains alcohol:( And, you should let it dry for a minute or so before you apply it to your skin.

You can ask for samples of Eakin and Adapt Seals. They can be used in place of stoma paste and aren't as irritating and don't 'melt' away as quickly.

You've gotten some great information already and don't be shy with the questions! Glad you are doing so well:)
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 269
   Posted 5/31/2011 10:34 PM (GMT -6)   
When I had my ileostomy surgery almost a year ago I had the rod thing underneath the stoma as well. Surgeons definitely didn't wait 10- 14 days to take it out though. I think they removed mine about 3 days after surgery.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/1/2011 4:24 AM (GMT -6)   
that is strage they removed yours only 3 days after surgery!? i remember after one week after surgery i asked my surgeon if they can remove it already and he said not before it's 10 days post op. he also said that 2 weeks is best. just strange.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/1/2011 4:25 AM (GMT -6)   
oh and blueglass, yes, they don't use the rod with end ileostomies.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 6/1/2011 8:23 AM (GMT -6)   
I still have no idea what this rod is, I'm pretty sure I don't have one!
21 years old
UC since September 2008, diagnosed in April 2010

Going for a J-Pouch in 3 steps!
Surgery #1 - May 25th, 2011

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/1/2011 10:40 AM (GMT -6)   
guess you don't. just read somewhere that some surgoens do loop ileos w/o the rod. if you don't have the rod, then def use adapt rings or eakin seals, those are the best for sealing around the stoma. does your stoma stick out enough? if not, a convex wafer should help with that too. also, an ostomy belt. that helps a lot too to hold everything nice and tight. i never thought the belt was needed, but started wearing it few weeks ago and it's a big help.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

CorgiMama
Regular Member


Date Joined May 2010
Total Posts : 26
   Posted 6/4/2011 9:34 PM (GMT -6)   
I had my surg last March and I too had really sore shoulders.  I remember them hurting more that the surgical wounds!  I had asked one of the residents or nurses while still in the hospital and they told me that they were probably sore from they ways they had to move me around during surgery.  I remember thinking what the hell kind of positions was I in?!?  I like the excess air in the body explaination better :)
I was sent home from the hospital using paste too (the kind in the tube).  I have found that coloplasts strip paste leaks less for me, and I only need to use 1/2 of a strip per change.  The strips are real thick like putty, not gooey like the tube paste.  I didn't like the Hollister bags.  I now use Coloplast Assura two piece systems with filters (the filters are useless once it gets wet they dont do anything for you).  The wafer is clear and you can see if something is starting to leak before it actually does. I've never tried these Eakin's or SUre seals every always mentions.
I change about every 4 days.  Usually on the fourth day things get a little itchier than normal and I know its time.  If the skin looks irritated I use a skin barrier wipe for extra protection. 
Its just a trial and error game in the begining until you find what works for you and give you your confidence.
I haven't tried swimming yet, that is my goal to conquer for this summer scool

Bad flare in 2007 tried several meds w/ no relief




Colectomy w/ permanent iliostomy in March 2010

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 6/5/2011 9:22 AM (GMT -6)   
Sana - hope your shoulder pain is better. As stated above, hubby had that and complained more about that than anything else. His butt area having been sewn up due to removing his rectum and anus took awhile to totally heal and was tender but that healed beautifully in about a month or so.

He needed paste in the beginning due to a crease at the right and left sides (like 3 o'clock and 9 o'clock positions) to prevent any leaking. As he gained some of the weight back he lost those creases kind of disappeared and he needs NO paste now. So as you heal and go along things will change a bit from what you were shown in the hospital.

Plus I honestly feel as great as the Ostomy nurses are -- I find and get a heck of a lot more insight and info right here on the forum with the "been there done that" approach of our fellow ostomates. It has helped me greatly figure things out for my husband.

Just take each day as it comes - try not to get too overwhelmed and be prepared to make some changes along the way if by chance the system you are sent home with from the hospital isn't ultimately the right one for you which could happen. Hubby had good results for 3 months with the hospital assigned appliance and had to switch to something else that seems to be perfect for him now. Good luck and keep us posted and ask away.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 6/5/2011 12:38 PM (GMT -6)   
Thanks, UCwife!
I don't have the shoulder pain anymore. I hadn't even noticed when it stopped!
The paste is so frustrating, it keeps sticking to the opposite side of the bag and it gets all melty. I guess because my stoma heats it up. I was thinking of trying the Eakin Seals, I'm just scared of doing it wrong so I'll probably stick the paste for a little while longer. I always feel like output is getting through to my skin but then I take my bag off and find that everything's fine.
And yes, this forum is insanely helpful. I've gotten so much more information here than I ever did from my nurse or from my doctor. I'm so thankful for all of you on here.

I'm really glad your hubby's doing so well!
21 years old
UC since September 2008, diagnosed in April 2010

Going for a J-Pouch in 3 steps!
Surgery #1 - May 25th, 2011

nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 6/5/2011 12:40 PM (GMT -6)   
Ooh, and I have a random question!
Are we still able to get a significant amount of nutrients from raw fruits and veggies without our colons? I love eating them and have missed them so much, I just have no idea if I'm getting anything out of them.
21 years old
UC since September 2008, diagnosed in April 2010

Going for a J-Pouch in 3 steps!
Surgery #1 - May 25th, 2011

rita5287
Regular Member


Date Joined Feb 2010
Total Posts : 42
   Posted 6/5/2011 1:26 PM (GMT -6)   
Nettiemoore,
Hey there. I had my 1st surgery on the 26th. Surgery went really well n was able to have j pouch set up. N no chrons as once thought. Bad 1st night I went code blue due to over dose on pain Meds!! Very scary. In ICU for 3 days. Total hospital stay 6 days. Went home a day or two too soon but as of now feeling better. I have the same bag questions?? Pls let me knw wat helps u!! I have the holster 1 apply bag. So far so good I just have a lil irritating skin around stoma. I'm guessing cuz of gummy paste ring I put. I have creases as 3 n 9 o'clock so have to use it to fill creases. No leaks at home. Caught one just n time n changed it. I clean skin w/ warm rag than put powder than wipe than adhesive pad let dry than gummy ring to fill n creases than apply bag n hold for 2 mins. Seems to do the trick. I've been having gas problems. N pain is a killer still n have numbing parts n stomach n sensitive parts. Didn't have laproscopic surgery so scar is about 6 inches frm belly button to pelvic bone. No real pain there. In want to sleep just NORMAL!! Haven't found a good spot yet. N bck is sore!, cuz I use those muscles to hold myself up. Let me knw updates pls.
Continue healing. God bless
Diagnosed w/UC 4-7-. Went from proctitis only in rectum to full pan colitis. No Meds have worked,Been hospitalized 3xs n 5 mnths. Have Gastritis also. Current Meds: pred 20mg 7days tapper to 5mg. Nexium 40mg. Xanax1mg.had proctocolectomy on 5/26/11. Went really well despite code blue! Healing now. Ostomy is gonna take sum getting used to! Nxt surgery n 3mnths!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 6/5/2011 2:47 PM (GMT -6)   
Hi Sana and welcome!
(I teach 5th grade and have a student named Sana this year :))

I'm glad to hear you're doing ok!

As for what brand to use, I like Hollister and some hate it. I hate Convatec and some love it. It is really an individual preference. Try as many as you can and use the one you like best! Most companies are happy to send you a sample. Call around!

I also use a 2 piece. I like to be able to look at my stoma if something feels weird, or switch bags if the bag gets gross or I want a different size. Again, that's individual preference.

If you have a loop ileo, you may be having leakage issues because it is not sticking out far enough. That is common. You may need to try a convex wafer. When you're calling around for samples, ask for that too.

I used to use paste and then tried the Eakin rings/adapt rings and I really like them. You really can't mess them up, and if you're really nervous to try them, just try it on a day that you're going to be home for a while. The first bit of having an ostomy is really about trial and error. Each person and each stoma have different needs.

Hope that helps!! :)
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 6/5/2011 3:05 PM (GMT -6)   
Hey Rita!
I'm sorry about your overdose in the hospital, I can't believe they would let that happen.
I haven't really had any skin irritation (yet!) so I don't really know what to tell you about that. I haven't tried using any powder or adhesive removers because I don't seem to need them at this point. But I'm also using a hollister one piece and the paste. I clean around my stoma with a wet paper towel (sometimes with water and sometimes with saline that the home care nurse gave me. I'm not sure if that's necessary.). Then after I apply the paste to the wafer I wait a minute and then put the bag on and hold it for a little bit.
Gas has been really uncomfortable, but I'm not sure what to do about that. I tried taking gas-x but I couldn't tell if it made a difference. I usually just wait it out.
I tend to sleep on my back. I got used to that during the 3 months before the surgery when I was in a severe UC flare up. But the other night I slept on my side for the first time and it was alright!
How come you didn't you have laparoscopic surgery?
Take care! Your take-down is so soon, I'm jealous :]

Stephanie, that's pretty cool! I've only ever met a couple of other Sana's, so I get kind of excited when I hear about more.
I wore a two-piece when I was bed-bound in the hospital and then I tried it again when I got home and it just didn't work for me. I think because it sticks out more and gets knocked around some, and once it started to open up a bit.
To be honest, I'm not sure if I have a loop or end ileo. I feel like I should know. But my stoma does stick out a good amount.
Thanks for all of your help! I definitely need to try the Eakin seals, everybody seems to love them.
21 years old
UC since September 2008, diagnosed in April 2010

Going for a J-Pouch in 3 steps!
Surgery #1 - May 25th, 2011

nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 6/5/2011 3:12 PM (GMT -6)   
Stephanie, one more question since you also use the Hollister bags. When you empty the bag do you worry about getting the end really clean before closing it? I tend to get OCD and paranoid so it takes a long time every time I empty and I go through a lot of toilet paper.
21 years old
UC since September 2008, diagnosed in April 2010

Going for a J-Pouch in 3 steps!
Surgery #1 - May 25th, 2011
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