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Regular Member

Date Joined Sep 2006
Total Posts : 241
   Posted 5/31/2011 12:24 AM (GMT -6)   
I had an ileostomy two months ago. The area around the stoma has been swelling and tonight it is about half of the size of a softball. Not painful just big. Should I been concerned??? Thank you

2b ColonFree
Veteran Member

Date Joined Nov 2008
Total Posts : 2603
   Posted 5/31/2011 1:54 AM (GMT -6)   
i don't think it's normal, i never had any swelling around the stoma. i'm not sure what it could be. does the area hurt? i'm thinking maybe it's a hernia..? are you going to see your surgeon any time soon? if there's a stoma nurse you're seeing, let her take a look at this, see what she thinks. let us know.
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Veteran Member

Date Joined Dec 2010
Total Posts : 3332
   Posted 5/31/2011 7:19 AM (GMT -6)   
I second Hodaya -- check in w/your surgeon or nurse. Doesn't sound normal to me.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 5/31/2011 8:28 PM (GMT -6)   
I hope you have already called your doc...please have it looked at to be on the safe side.
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 5/31/2011 8:34 PM (GMT -6)   
Have you been coughing a lot? Mine once swelled to twice it's size after a bout of bronchitis (I think cos I strained my tummy muscles from coughing so much). After a few days it went back to it's normal size though. I just cut the hole in my wafer larger to accommodate it in the meantime.
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums


I'm not a complete idiot - some parts of me are missing!
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