eating beans, flushing, etc.

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blueglass
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   Posted 6/2/2011 6:44 AM (GMT -6)   
I've started eating some gassy, high fiber foods like refried beans, veggie burgers, whole grain bread, etc. Haven't been able to eat these things in years, and I like them, so it's good.

Not surprised that there's gas in the bag after eating them (and I'm not stinking up any rooms!), but I have been surprised by the quantity of my output -- feels like I'm emptying all the time, and it's really thick. Any thoughts on that?

Also, does anyone have any tips for getting thick ileo poop to flush in a toilet, especially the big, elongated public ones? I have tried putting paper down first, and that helps sometimes, not always. I am finding that I often try flushing 3 or 4 times and it still doesn't go down. I hate leaving the toilet messy that way, not sure what else to do, though.

I only recently started emptying from a sitting position, due to my still unhealed butt wound -- just has hurt too much to spread my legs enough. Before I was kneeling on one knee from the front, but this is not good w/public bathroom floors, especially now that I'm wearing shorts. I still feel a bit limited in mobility, so I can really only empty near the front of the toilet, and this might be the problem.

Sorry for the gory details..... well, not really... appreciate any suggestions.

Oh, an aside.... went to a support group last night and there were a lot of people there who had urostomies. Haven't seen anyone with one on this list. They seem harder to manage .... easier to break the seal.... they were very envious of getting even 4 days on a pouch, a lot of them feel lucky when they get 2 days.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 6/2/2011 7:20 AM (GMT -6)   
glad you're able to eat the foods you like again :)) yay for that! lately i tried some beans too and it was ok. it did make the output thicker like it did to you, but as opposed to you, for me it slowed things down and i have less output. much less, if any. so i'm sorry i can't help with any ideas about this. i don't dare trying whole grain bread and rice - last time i tried it caused me a blockage, so i'm still very scared to try again. but our systems work differently. (my motility is abnormally slow).

about flushing, i dont have that problem, maybe it depends on the type of toilet. some toilets's stream is not strong enough. maybe that's just the problem.

it is hard in public rest rooms. at home i empty sitting on the toilet and spreading my legs, but public rest rooms are not always clean enough to sit on, so i'm kneeling, but my knee is on air and not touching the floor, cuz the floor is also yuchy :P so it is hard for me too and i can't think of a more comfortable way. i'd be glad too if anyone comes up with an idea :)

i havn't had the chance to meet a urostomate so far. sounds like they're having a harder time than us.

well, i feel like i havn't been able to help you at all :/ but just felt i'd respond anyway.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 6/2/2011 7:32 AM (GMT -6)   
Could you bring one of the smaller travel size package of antiseptic wipes in your purse and wipe the toilet seat down so you can then sit on it to empty?
 
At home hubby has a long neck ketchup bottle filled with water.  He keeps this on the back of the toilet. If his output gets a bit stuck or lumped in the toilet he blasts it with water from the ketchup bottle to break it up so it flushes easily.  Maybe that might help?
 
Hubbys output seems to be on the looser side for the most part.  He drinks so much water....I think I put the fear of God in him as well as his post op advice from the nurses and trying to keep blockages at bay.  But on occasion it does get thick depending on what he has eaten.

run4pancakes
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Date Joined Oct 2008
Total Posts : 938
   Posted 6/2/2011 7:37 AM (GMT -6)   
I tend to be thick as well. At home I keep the container that they gave me to measure output and fill with water to dump on there and rinse it down and then I flush. I haven't really had trouble in public bathrooms....I guess most of them are strong enough to take it all down?

I will sit on a toilet seat before I ever struggle with making it difficult to empty my ostomy. (I understand with your wound healing issue it was different) Yes, there are germs on them...but guess what? Your skin is meant to protect you from that stuff. I refuse to worry about it. I have enough real worries in life.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 6/2/2011 7:58 AM (GMT -6)   
Sorry, I wasn't clear -- I do sit on the toilet seat now, as of about two weeks ago.... it's just that I usually only can empty so it gets stuck on the front, where there often isn't any water..... can't yet spread my legs further to get it further back, although then I'd have to worry about splashing.

I've never been worried about sitting on a toilet seat. It's just that it killed to spread my legs at all for the first two months after surgery..... I am very thankful I had that thing that let me stand up to pee.... my wound healing would have been set back even more....

I got an abscess in the butt wound, so they had to take most of the stitches out after a week, so that's why this is harder than usual for me.... good news is that I am getting a lot better! It seemed stuck for about 6 weeks, was 2 cm deep the whole time.... then the nurse changed the packing material, and it shrunk to 1cm in 2 weeks. Now I'm not packing at all, and it's on its way to closing.

I wondered if I wasn't drinking enough water.... but i have to pee so often, seems like I should be ok. Guess I could carry an empty ketchup bottle around and fill it if I need it.... already feels like I'm always going camping w/my emergency supplies, extra pants, etc..... course, I did most of that with ibd too.

thanks for the quick replies
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 6/2/2011 8:16 AM (GMT -6)   
I have been having the same problem with thick output. EWWWW I milk the stuff down and out of the tail, but am still dealing with some splash back. YUCKY I try to sit as far back on the toilet as possible and pour it directly in the front where there is no water. Only problem with this is that it can be harder to flush!

I have found that if I eat fiberous foods such as bananas, advacoda, sweet potatoes, beans, that I have ALOT of thick output.

But with rice, potatoes, pasta, potato chips, tortilla chips, white bread, my output is less and more liquidy. So, these are the foods that I consume the most....BUT, uh huh, I have gained a few pounds eating these high calorie foods.

I am almost a year out with my temporary, loop ileo, but will be having another surgery in June to have the loop taken down and turned into an end ileostomy. I have read ends are easier to manage, so we will see.
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia.
June 20, 2011-I will have a total colectomy, hernia repair, tummy tuck, and end ileostomy. I will keep my rectum since it is healthy.

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 6/2/2011 8:20 AM (GMT -6)   
How about straddling the toilet seat the opposite way? You'll be sitting on the more narrow end if you can tolerate it and then you have more water available to empty into????
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 6/2/2011 8:28 AM (GMT -6)   
Interesting idea UCwife..... as answers4me says, though, I wonder if that could be worse if it leads to splashing..... It could give me more control though.... I'll report back.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 6/2/2011 9:06 AM (GMT -6)   
ohhh, now i understand. yeah it happens to me all the time too, that it gets stuck on the front where there's no water. at home i have a hose next to the toilet and i clean the front with it. but in other restrooms, where there isn't a hose, i just clean it with a flushable wipe. gross, i know, but, like you, i hate leaving a messy toilet, esp at friends and family's toilets.

so glad your wound is healing nicely :) wow 2 cm deep.. that sounds painful!

maybe you can try drinking some grape juice when you eat fiberous foods, it may help dilute the output.

that's an interesting idea you're suggesting, UC wife!! i will def try it too next time i empty, blueglass. i'm drinking my prune juice right now, so it should be in about 2 hours. i'll report it too, so we can compare notes hehe ;)

Post Edited (2b ColonFree) : 6/2/2011 9:10:09 AM (GMT-6)


Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 6/2/2011 9:17 AM (GMT -6)   
Just thinking out loud here with that suggestion..........not sure if that is really an acceptable alternative....yikes with the splash back aspect....hopefully it will work in those type of situations and not be too too uncomfortable on the butt cheeks.

Another thing I buy...500 to a box @ Sams club....those disposable thin plastic gloves they use in deli depts...they are super thin and you could keep a few of those in your purse if you ever needed to take extra toilet paper to unstick a glob of poo put on one of the gloves. The glove can be turned inside out and put in the sanitary napkin holder in the stall????

I use those constantly when preparing food and light cleaning...really keeps my manicures longer lasting when I don't want to wear the heavier duty rubber gloves.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 6/2/2011 9:44 AM (GMT -6)   
OK, I tried it and no can do -- too much stress on the butt wound, but it was a good idea.

I have also pushed stuff in w/toilet paper, and it is gross, but if pushing it in w/something is required, then gloves are a great idea -- much less disgusting (I'd probably use gloves and tp). I was hoping there was some other magic way.

Funny, I was thinking that disposable gloves are bad for the environment.... but then so is flushing the toilet four times for one load..... and so are our pouches and things.... and tons and tons of stuff in the hospital.... hard to be pure that's for sure.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/2/2011 11:10 AM (GMT -6)   
tried it too. went ok actually, maybe b/c i don't have a wound like yours. but i was so scared to get a splash back at me, so i put down there tons of tp. but i could try w/o the tp and see if it splash back at me. it's just too scary to look at those water and empty... too scary :o
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 6/2/2011 11:23 AM (GMT -6)   
If the tp touches the water, and you empty on the tp, it should go down ok...at least it does for me :-) I stand to empty in public restrooms so that also helps with splashing.

I hold the 'flusher' down until the bowl empties. It's usually only a second or two longer than the normal flush. Sometimes it takes two flushes but it's rare.

I eat A LOT of fiber smilewinkgrin so my output is usually thick. It makes me drink more water to off set it...which is a good thing for me!

It will get easier, I promise!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 6/2/2011 11:51 AM (GMT -6)   
Supposedly putting some toilet paper in the clean bowl first does help the splash back effect??? Maybe when your butt is totally healed and you have no pain that might work better. I thought it might be tough on you right now to try but may help others.

Sitting here smiling at the ease with which these topics can be discussed and not feel awkward about it. It's great actually to be able to deal with the reality of a situation and discuss and trouble shoot to find solutions.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Blueheron
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Date Joined Feb 2010
Total Posts : 720
   Posted 6/2/2011 5:53 PM (GMT -6)   
I have been eating a lot of beans, legumes and veggie burgers too because I love them so much. I actually don't notice that they make more gas for me... my bag seems to poof up a bit no matter what I eat. They do definitely thicken my output though. Probably due to the fiber. I know I can see the little skins from the beans in my output also.

I have the issue with my output sticking to the part of the toilet bowl that doesn't have much water too. Like others, I try to fold some toilet paper there for it to land on which makes it flush easier. Doesn't always work though, so I just take a large wad of toilet paper and sort of wipe it into the bowl. I have never gotten anything on my hands doing this.

I really don't get how people sit backwards on the toilet. Doesn't the crotch of your pants get in the way of emptying? Maybe I am not picturing it right. I think if I left my pants up while emptying, stool might splash on them. When I sit on the toilet, I have to pull my trousers down towards my ankles so I can spread my legs wide enough to empty between them. When I have to do this in public restrooms, I just put a bunch of TP on the toilet seat. I have gotten too much splash back when I have tried kneeling. Actually, vault toilets like they have in campgrounds are pretty cool because I can just stand in front of them to empty... no splash back from the deep, deep hole.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Post Edited (Blueheron) : 6/2/2011 6:44:57 PM (GMT-6)


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 6/2/2011 9:49 PM (GMT -6)   
i dont see how you could sit backwards either.
I have that problem wtih the toilets too, i just take tp and push it down. i did discover that in some toilets, you can sort of lay paper over the poop where it covers it then the bottom of the paper will kind of pull it in, if that makes sense. When i remember i carry those little spray bottles of breath freshener in my pocketbook and if a toilet is really nasty you can spray that on the seat cause it has alohcol and kills the germs.
You might could try the adapt lubricating stuff, makes it easier to get the poop out but its really goopy. and it makes for some comical situations putting it in the bag in public restrooms :D
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 6/5/2011 3:14 PM (GMT -6)   
Ron, thanks. The funny thing is that I was thinking of that after all these posts (wasn't on line), i.e. if you want thinner poop, not so hard to get that if you have some water with you .... much easier than carrying enough to spray into the toilet or changing your diet. Haven't tried it yet....

I take it it doesn't wear out your bag to wash it so much? I know at the beginning a visiting stoma nurse told me not to wash it every time, that it was like giving yourself an enema every time you go to the bathroom and there was some reason that I don't remember why she thought that was a bad thing to do. She only came once. Mostly just too much work for me every time, but on occasion when there's a lot of stuff stuck in their I have rinsed it out, and it's seemed fine.

Everyone else, thanks too. Yes, it is great to be able to discuss these topics that are practical, yet not very polite in most company....

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 6/11/2011 6:21 PM (GMT -6)   
I just take a piece of TP two squares long and lay it on the front of the toilet bowl vertically so the end touches the water. Empty on the paper and it all flushes down. Nothing left on the bowl.

I cannot fathom sitting on the toilet backward. NOOOOOOOOO

Dan

4NCgirls
New Member


Date Joined Jun 2011
Total Posts : 6
   Posted 6/11/2011 7:24 PM (GMT -6)   
Great conversation! I had to laugh at all the suggestions!

Toilet paper down first on all public toilets..... a must!
I like how Dan puts the toilet paper out front.... great idea!

I usually flush right after I empty my bag because of the smell!
Then, once I am finished, I lift the seat to wipe down anything that may have 'sprayed' on the seat and the bowl. Then I flush again.

It is soooooo gross, but that is why you wash your hands after each bath room visit! I have to clean inside my bag before I close it as well..... my hands can't help but get 'dirty' at times......... love the glove idea!

Can't wait to be finished with all of this in August! Bath room visits are much more interesting these days!!

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 6/11/2011 7:25 PM (GMT -6)   
Yeah the backwards suggestion wasn't a very good one...you can tell I'm not the one with the ileostomy. I thought that might be a viable solution but you'd have to be in a state of undress then...lol.

The toilet paper suggestion certainly sounds like a help to minimize the splashing problem and not on the bowl itself.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 6/13/2011 6:46 AM (GMT -6)   
I have been using the toilet paper idea with some success, trying to get part in and part out of the water .... back to emptying on one knee from the front, as the butt wound took a turn for the worse, and I don't want to dump all my gauze into the toilet every time or to hurt the wound more.....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

run4pancakes
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Date Joined Oct 2008
Total Posts : 938
   Posted 6/13/2011 3:09 PM (GMT -6)   
Blueglass: I really feel for you with this wound situation. I know it's been a long tough battle and I hope you turn the corner soon. I wanted to clarify my comment about avoiding sitting on the toilet seat was not directed at you...I completely understand your reasonings. I really hope you start to heal up properly soon.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 6/13/2011 3:25 PM (GMT -6)   
gee blueglass I hope this starts to heal up for you soon - this sounds like a hard situation to deal with - sorry.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 6/13/2011 8:45 PM (GMT -6)   
Thanks run4 and UC wife ... it has been discouraging to take a step backwards, I kind of got used to things just getting better for a while. But it's not awful.... doesn't hurt much ... just a pain with the draining and bleeding and gauze and packing. It's such a hard area to heal when you're having problems.... I think I'd need a straight jacket and catheter to stay off it entirely, and we're not going there.... just wish I knew why it got worse.... it's not clear. (When I was sicker, I used to say that I didn't really live in a world of cause and effect anymore .... reminds me of that )

Oh, and I would so like to be able to go swimming.... guess it'll be even sweeter when it finally happens.

run4 -- thanks for the clarification, it's fine.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery
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