I had a wound vac. Mine was on my abdominal incision which was hard to deal with because it was so close to my appliance that every time I had the wound vac dressing changed (about
every other day), I also had to change my appliance. It was also extremely painful for me (especially the sponge dressing changes) which my surgeon and nurse said hardly ever happens. It just seemed to be aggravating some tender nerves. I was prescribed Lidocaine to put in the wound before dressing changes which helped a lot. I also took Vicodin. The plastic sheeting they used to tape the sponge down and keep the suction was very irritating to my skin because it doesn't breathe at all, but skin prep helped some. After I finally had the wound vac off, my skin irritation healed quickly. Leaks in the suction were annoying, but easy to fix.
Still, even with all these annoyances, I would do it again in a heartbeat. It was on my wound for six weeks and then I had Silver Alginate dressing for another week and everything healed up beautifully. I can't even imagine how long it would have taken just packing the wound.
I toted the wound vac around with me everywhere, though that might be harder with a butt wound. Not sure. I even wore it to my meditation class a few times which was funny because it sounded like a coffee percolator. The noise was so distracting that I ended up turning it off during the actual meditations after making sure it was okay with my nurse, but you can't leave it off more than a couple of hours or you have to get the dressing redone. I could still wear my clothes with it. The tube just stuck out of the top of my waistband. It basically looks like a purse and you can hide the hose (which is kind of gross because it is clear and shows the drainage) by folding it under the flap of the carrying case and then tucking some in your clothing too. I was able to shower with it on by taping saran wrap over the dressing and turning off the suction. Sleeping with it was a bit weird because you have a tube stuck to you... but the hose is pretty long so you have some leeway. One night my machine turned off in the middle of the night because I did not hear an alarm on it telling me it was running out of juice (I had forgotten to plug it in to recharge). I had no idea how long it had been off, so I had to call the nurse in the middle of the night to come and redo the dressing. Boy did I feel stupid. So yeah, it is a bit of a pain but I would highly, highly recommend it.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010
Post Edited (Blueheron) : 6/9/2011 8:43:25 PM (GMT-6)