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lifeinterrupted
Regular Member


Date Joined Mar 2011
Total Posts : 103
   Posted 6/11/2011 1:42 PM (GMT -6)   
K did wafer/pouch change I am kind of worried I put tiny bit too small of a wafer on it is pre cut convex wafer by convatec will it choke my stoma if a little too small or will the wafer soften up around it and will it be ok? How would I know if it was hurting my stoma? Hate being a newbie!!!!!! :-/


Any quick replies would be greatly appreciated thank you!!!!
Dee stay at home mom of my 2 beautiful children
dx with uc July '10
June 02 '11 the creation of Stella the stoma LOL! ;-)

Prov3:5,6

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 6/11/2011 2:52 PM (GMT -6)   
I am really not sure of the answer but hubby uses the convatech moldable ones....it seems when we open up that center hole it ends up getting a bit smaller when we put it on...maybe we are not turtlenecking it exactly right. However it has not given him a problem that I can see.

Just watch it....or call convatech if you are really unsettled about it?
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

lifeinterrupted
Regular Member


Date Joined Mar 2011
Total Posts : 103
   Posted 6/11/2011 3:15 PM (GMT -6)   
Thanks uc wife, I just want to make sure I'm not choking it, eeek!
Dee stay at home mom of my 2 beautiful children
dx with uc July '10
June 02 '11 the creation of Stella the stoma LOL! ;-)

Prov3:5,6

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/11/2011 7:25 PM (GMT -6)   
Dear Life,

If indoubt, redo it, the worry is not worth it. Rosemary

4NCgirls
New Member


Date Joined Jun 2011
Total Posts : 6
   Posted 6/11/2011 8:39 PM (GMT -6)   
I use the moldable wafers by convatec as well..... love them!
I don't leak, don't need to cut them, and my skin seems to get less irritated by them as well.

I don't think you can really hurt your stoma, but I agree, if you think it is too small -- redo and start over!.

With the moldable wafers, they actually 'turtleneck' your stoma and get smaller.......... seems to work better for me. I had a heck of a time leaking at the beginning. So frustrating. After a month, I finally figured what worked for me --- belts are great too! I have to wear mine all the time because I have high output :-(

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/11/2011 10:00 PM (GMT -6)   
i wouldnt worry, i always cut mine smaller, if it is too small when you take it off your stoma will look funny colored, then just cut it a bit bigger next time.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

lifeinterrupted
Regular Member


Date Joined Mar 2011
Total Posts : 103
   Posted 6/11/2011 11:08 PM (GMT -6)   
Thanks ladies for the input ;-) what I was thinking is that I was not leaving enough room for it to do it's thing u know peristalsis for it to push everything out,
I just ended up redoing it after all :-/ I just wanted to avoid taking another wafer off cause I just changed on thurs do to another mishap on my part! Wish all the learning didn't take so long :-(

Thanks again ;-)
Dee stay at home mom of my 2 beautiful children
dx with uc July '10
June 02 '11 the creation of Stella the stoma LOL! ;-)

Prov3:5,6

Post Edited (lifeinterrupted) : 6/11/2011 10:13:19 PM (GMT-6)


blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 6/13/2011 8:17 AM (GMT -6)   
Dee

It is just hard at the beginning. I changed some wafers an hour later because I was too worried I'd done something wrong..... I got a lot more confident, although there have been some setbacks.... with the setbacks, I get very conscious of the pouch for a while... but I really do have a lot of time now where I barely think of it at all... at the beginning, it's just such a huge change, I don't think there's any way around some issues as you work it out. Great that you asked.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery
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