HODAYA AND I MET, YEAH!!!!

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esoR
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Date Joined Jan 2007
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   Posted 6/11/2011 6:07 PM (GMT -6)   
Hi everyone,

Am back from Israel where Hodaya and I met for coffee one evening and then toured the whole next day together in Jerusalem along with my trip friend and our private taxi guide. Jerusalem is just beautiful. We went to the Wailing Wall where you write a prayer on a piece of paper and stick it in a crack in the wall. Then you pray. THen you back away from the wall as it is not the custom to turn your back on a holy site. Then we walked up the street where Jesus carried his cross. The stations of the cross are marked and there are TONS of vendors and gift shops all along this street, I think It was Via Del A Rosa. We saw several other holy sites. The day before, earlier in the day before we met Hodaya, my friend and I were taken to Nazareth, the Jordan River, and the Sea of Galilee. The only place that was super hot was the wailing wall. They had this neat fountain that I kept dowsing myself in. If I ever get back there I want to see Bethlehem and the Dead Sea. We did not have time for everything in 2 days. Interestingly, to go to Bethlahem, our Jewish driver/guide would not be able to take us to Bethlehem as that is Palestinian territory and we would have to have gotten a Palestinian driver. So too bad the rules are such and the world is not yet truly united, but hopefully some day that will happen. We can hold the hope. I did discover this great popsicle in Jerusalem sort of an ice cream surrounded by sherbert called a Twister. Those were super. I had two.

It was so much fun meeting Hodaya. She is just beautiful, she is extremely fluent in English, you would never know she had a bag, and I see a bright future for her in whatever she decides to do. Hodaya, meeting you was one of the highlights of my trip. It is so amazing how the internet has brought us all closer. I put a special prayer in the Wailing Wall for Lizzie. Israel is a beautiful country with an amazing past. I bought a special book about religious background and customs that I will be reading as soon as I get rested. I hope we both continue to do OK Hodaya and that somehow we meet again some day.

Back home in the states as of June 10 and been sleeping ever since. Really tired, but did get laundry done, mail opened, some bills paid, etc. Now going back for another 13 hours of sleep just like last night. Glad I could come to see you in May as it was the earliest I could do what with my March trip and all. I can imagine the Wailing Wall is VERY hot by now.

Tracy, thinking of you and wishing you well on your surgery. Call if you have time. Sure glad your surgeon is good and is using the adhesion barrier. So much of us in so many states of decision making, surgeries, healing, and hoping. This site is a God-send that unites us all in spirit and even some of us in person. Rosemary

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 6/11/2011 7:41 PM (GMT -6)   
How wonderful Rosemary. Happy you had such a great trip and able to meet up and spend time with Hodaya.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 6/12/2011 7:02 AM (GMT -6)   
welcome home Rosemary!! :) i can't even describe how excited i was to meet you and more over to be able to spend a whole day with you!!! it was truly amazing and SO much fun! one of the most exciting things that's happened to me since all my surgeries in the past few yrs. thanks to you i went a head and got out there on a tour all day!! something i havn't done in a long time and it was great! and you're such a sweet lady!
 
so glad you enjoyed your visit. if you ever decide to come again, pls let me know, i'd be so very happy to see you again and you know you are also always welcomed in my home! so sweet of you to put a special prayer for Lizzie on the wailing wall :) i feel very blessed and thankful for having the chance to connect with everyone here and being able to meet you Rosemary...... that's just amazing! you're amazing! i believe we'll both and everyone else stay ok. meeting again would be awesome! and getting the whole gang together even more awesome :))
 
oh yeah, it's getting soooo hot here... gotta get my air conditioning fixed! take your time to rest now. you've been thru a loooong trip. i was very moved by your post. you're truly a sweet sweet lady, Rosemary! and i wish you all the best life has to offer! you absolutely deserve all the best, honey!!! and yes, this site is def amazing! love you much!!!!!

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 6/12/2011 8:33 AM (GMT -6)   
Thanks hodaya. We gotta get everyone well and meet somewhere. Gotta get Lizzie well too. - I think we could all be guests on a talk show and educate viewers more than a panel of docs or maybe with a panel of open minded docs who will listen to patients; my dream is to bridge the gap. Glad We took you on tour. Rosemary

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 6/13/2011 7:12 AM (GMT -6)   
Glad you had a great trip and visit. Thanks for the update.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 6/13/2011 9:24 AM (GMT -6)   
Sounds lovely Rosemary - i will go to go to Jerusalem and all those holy places when i am well too!.xx
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR/ODS/diagnosed slow transit constipation
2007: Sigmoid resection -MRI showed twist - (made colonic inertia worse but cleared obstruction)
March 2009: Total colectomy/loop ileostomy - quality of life 100%
23 Sept 2010: Ileostomy reversal - not going well - motility/rectal issues being investigated

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/13/2011 11:47 AM (GMT -6)   
Big reunion in Jerusalem when we are all well. Rosemary :-)

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/13/2011 12:25 PM (GMT -6)   
sounds GREAT to me :):):)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/13/2011 1:11 PM (GMT -6)   
So Hodaya,

Glad I asked you about the weather there. I think when I was there was the hottest I could tolerate but sooooo worth it. It is likely worse now. It's 65 or 70 here. Ahhhh. My kind of weather. Rosemary
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