I had a good trip this past weekend to see my friend. I was a bit of a wreck too much of the time, but I still had a lot of fun, and woke up this morning feeling happy and glad I'd gone.
At the airport in Boston for the trip out I got motioned to the x ray scanner -- had never been in one before. I had printed out the blue card from the United Ostomy site; it's supposed to be a universal medical card for discreet screening (there's a space to write the condition). I wasn't so worried about discretion, more thinking that it'd be easier to explain with the card. Not really. I handed it to the TSA guy, and he said in a loud voice, "What's this?" as if he'd never seen the card, much less the condition. I said I had a "medical thing" that would show up on the machine. He handed the card to the woman at the other end, and I went in, held my arms up for 7 seconds, and came out. She tested my hands for explosives at the other end, gave me the card back, and I was on my way. It wasn't a big deal, but it was pretty weird.
I then sat in the airport worrying that the trip was a mistake, because my butt wound was hurting again, for the first time in a month..... but it's only an hour long flight to Baltimore. I got an aisle seat and was squirming on my waffle pillow, and then paranoid that what if I had to go to the hospital on my trip, just being really wacked -- I didn't bring my computer so I wouldn't be able to get to this list, and besides are there any good hospitals there (um, oh yeah, maybe say Johns Hopkins?)
I was tired a lot of the time at my friend's and worried that I was overdoing it --it was very hot and humid, plus there was a lot going on and I didn't sleep great ... sometimes I think I'm not supposed to be tired anymore now that I'm better, that being tired is a sign of something seriously wrong.... but I did calm down, and had a really nice time.
The flight back was full, the other two people in the row were really big guys and I lost about 1/4 of my seat to that, the flight was bumpy, but I still did much better than the way there, and my wound wasn't hurting as much. I had my card out at security, but I got motioned to the metal detector that time and didn't use it.
I think it would have been better to not travel alone my first time .....
But no issues with the pouch at all, didn't have to change or anything; it didn't fill up with air or anything on the plane.
All in all, a success. And today I feel fine, don't need a day in bed to recover or anything (in the past, I might have needed a week..... and if it triggered a flare, well who knows.... )
Oh one funny thing.... I was reading on the couch in the morning, no one else was up, and I started to smell something.... hurried to the bathroom worried I had a leak.... nothing. Turned out the cat had farted. I don't have a pet.... hadn't occurred to me.....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery