Blueglass- good job on your trip. Especially with your wound. It would have been so easy to say to yourself that you couldn't do it and not go, but you faced your fears and went for it. Bravo!
At seven weeks I went on a week-long trip to a condo in the mountains that was a five hour drive away. I was so apprehensive, especially since it was right when my abdominal wound started to act up again, and I was afraid of being so far from my hospital. Half way through the trip, my wound began to seriously tunnel, but I stayed in contact with my surgeon over the phone daily and he walked me through what to do. We even drove two hours into Durango one day to try to hunt down some really thin packing strips. What a crazy adventure that was! Not an easy place to find obscure medical supplies but we did find one tiny drug store that had them. In retrospect, I realize that that trip was a real turning point for me. I gained a ton of confidence. It was my first time emptying at rest stops and my first time changing my appliance somewhere other than the hospital or my house. It was also my first glimpse of the "normal" life I was about
to have again. It also showed me that I could be adaptable and deal with challenging situations on the road if needed.
Today I had a first too. I went for a run! I have been hiking a lot, but finally got brave enough to try a short jog. It felt so good!
Good job everyone!
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010
Post Edited (Blueheron) : 6/13/2011 9:06:09 PM (GMT-6)