2 Questions for Summer

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Daffodil
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Date Joined Nov 2010
Total Posts : 90
   Posted 6/13/2011 6:56 PM (GMT -6)   
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Hello and Happy Summer to All!!

I had my permanent ileostomy on March 25th. I could not be happier with my choice. I had the roughest few weeks, but I have managed to make peace with my bag. (haven't named it yet!)

Along with my colectomy, ileostomy, and hysterectomy, I got a diagnosis of ovarian cancer. I have truly handled the chemo very well. No ugly side effects, except hair loss! I actually got worried I wasn't getting chemo until my hair came out!

Anyway, life goes on, so here are my questions...

1. No one has ever told me, in the hospital or on here, that it's ok to use water and clean out your bag. I have been doing this with no adverse reactions for over 6 weeks. It's so nice to have a clean bag. I am still trying different bagging systems, 1 and 2 piece. Convex seems to work best for me. I have noted that the filter doesn't work after getting wet?

2. I have a pool and wonder what you swimmers think is the best bag. I seem to have family and friends always here, and I DO love the water. Is there a small bag? It seems I want to change a lot since I am in the water. I don't seem to have a lot of problems with my skin and adhesive.

Thanks in advance for any help you can give this happy Mississippi girl!

Mollie

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/13/2011 7:19 PM (GMT -6)   
Mollie~Glad things are going so well with your ileo...many name their stoma's but it's not mandatory!! I think I named mine when he was being bad during a change mad

Yes, you can rinse your pouch out. It's really a personal choice and I haven't heard of any problems with doing so!

As far as swimming...I don't change anything. I wear the same appliance (Coloplast Assura Extended Wear) when I am in the water. Yes, you can change to a smaller pouch (if you wear a two piece) to go swimming but again, it's personal choice! I do use Sure Seals to get a little more wear time from my wafer but it's just what I found that works for me smilewinkgrin

Many ostomates find their 'preferred' methods by trial and error. Personally, I've gone through many stages including changing my pouch on a daily basis, using pouch deodorants and changing the pouch sizes for different activities! There really is no right or wrong...if you think you'd like something, try it, if you don't...at least you gave it a shot yeah
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/13/2011 7:46 PM (GMT -6)   
Rinsing is fine! Sometimes I rinse with a mixture of mouthwash and water ifive had something realy stinky. But usually I don't bother anymore, the longer I have my bag the lessi have done that.

You can change to a smaller bag but really is more trouble than its worth. You will bjust have to empty more often and the bigger one hides just as well. I always wear a sure seal which really helps!
All your wounds should be healed by now but if for some reason they aren't you should check with the dr before getting in the water otherwise have a blast!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Daffodil
Regular Member


Date Joined Nov 2010
Total Posts : 90
   Posted 6/13/2011 7:46 PM (GMT -6)   
Thank you so!! Equestrian Mom for your response!

I sort of figured that was all kind of right, and guess it was nice to get affirmation!

Love this forum, and new friends!

Thanks again!

Daffodil
Regular Member


Date Joined Nov 2010
Total Posts : 90
   Posted 6/13/2011 7:48 PM (GMT -6)   
And you too summerstorm!! Thanks!!

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1251
   Posted 6/14/2011 5:24 AM (GMT -6)   
Daffodil said...
1. No one has ever told me, in the hospital or on here, that it's ok to use water and clean out your bag. I have been doing this with no adverse reactions for over 6 weeks. It's so nice to have a clean bag. I am still trying different bagging systems, 1 and 2 piece. Convex seems to work best for me. I have noted that the filter doesn't work after getting wet?


Rinsing is a personal choice. For me, I don't bother rinsing because 2 minutes later my bag is going to be dirty again so, in my opinion, it's a fruitless exercise BUT you do what you feel comfortable with. Some people say the water erodes the wafer a bit, others say it doesn't make a difference.

Filters ARE useless after getting wet! One day they'll invent one that works hopefully :)


said...
2. I have a pool and wonder what you swimmers think is the best bag. I seem to have family and friends always here, and I DO love the water. Is there a small bag? It seems I want to change a lot since I am in the water. I don't seem to have a lot of problems with my skin and adhesive.


I wear a one piece and so can't change bag sizes at whim. I swim regularly during summer and just wear my regular mid sized bag. Just wear a bathing suit with a ruffle or a splash of colour over the stoma site and no one will know it's there. I wear mine across my tummy pointing towards my groin area so it all fits neatly inside my bathing suit.

If in doubt as to whether your current set up is up to the job, try soaking in a bathtub for 1/2 hour or so and see how it does.

Good luck.
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!

Post Edited (Shaz032) : 6/14/2011 5:39:43 AM (GMT-6)


windy city
Veteran Member


Date Joined Dec 2010
Total Posts : 607
   Posted 6/15/2011 9:04 AM (GMT -6)   
I rinse my bag everytime I empty. I have a 2 piece, don't change pouches, and don't remove it & rinse it out. Tried before, was messy & compromised the seal by pulling & pushing. It's easy to rinse at home and it doesn't take longer than few seconds. If I'm out, I just dump & wipe & I'm not worried like I used to be in the beginning. I used to bring my squirt bottle with me & look at the time, ansy to get home. I know that it will fill soon again, but I don't feel cleen without rising and it's kept odor out, never used deodorizers. Odor is only in the morning upon waking. I make sure I don't get water too far up and the filter only works the first few hours. As for swimming, I've taken tips from everyone as my next adventure on swimming is upcoming.

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 6/15/2011 12:48 PM (GMT -6)   
I use a two piece system and never change the bag to go swimming, too much hassle. I wear bikini top and surf shorts which hides the bag and also the many scars from multiple surgeries.

As for rinsing I have never bothered. TBH when I first had surgery done it didn't occur to me and now having a high output stoma at times can empty 10+ times a day so doesn't take long to get dirty again. Mind you I don't have the bags with the intergral clips I use the separate ones as can't stand the ones that are built into the bag.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Daffodil
Regular Member


Date Joined Nov 2010
Total Posts : 90
   Posted 6/16/2011 6:27 AM (GMT -6)   
Good Morning!

Thanks everyone for your advice and opinions!

My surgery was March 25th and I couldn't be happier with my ileosotomy. I am still learning, trying different bagging systems, and getting all the advice I can! I have decided that I think sweat is the worse enemy to a good seal. I spent all Sunday afternoon outside in 100 degree heat, and the seal didn't do well. I have been swimming this week and it hasn't been a problem at all. Really feels great to be in the water!

Have a great day, and thanks again!
Mollie
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