ucfree-question for you...

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Regular Member

Date Joined Jan 2008
Total Posts : 60
   Posted 6/14/2011 1:47 PM (GMT -6)   
I am looking into an Phoenix belt for my daughter.  I saw a post from you stating you had a brand new one that you didn't need.  Would you happen to still have it?
Also, how did you find the sizing to be?  When I measure my daughter at stoma level she is about 34".  The size range is so big (32-40), and I have to wonder if she will shrink some as time goes on.  She just had her surgery a week ago, and still seems a bit swollen and can't get into her pre-surgery clothes yet (size 6 jeans).  I worry about getting the medium and it only fits her for a couple weeks or something.
Thank you! 

Veteran Member

Date Joined Feb 2010
Total Posts : 720
   Posted 6/14/2011 9:11 PM (GMT -6)   
I would probably wait. My belly was pretty swollen for several weeks after surgery. It took about 8 weeks until I was comfortable in my pre-surgery clothes. I ordered some wraps, but they just hurt too much to wear before that point.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Regular Member

Date Joined Oct 2005
Total Posts : 291
   Posted 6/17/2011 10:21 PM (GMT -6)   
Blueheron is right ... waiting would be a better idea.
I wish I had the belt still, I would have sent it your way ... I donated it to my hospital and they use it as a demo piece for new patients. :(

I think the phoenix belt was not a bad belt but it was bulky for me. The new design was not great. Also, rotating the pouch sideways was no fun.

I went to Target, got a BellyBand .. it's for pregnancies :) Works great!
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