Confused need help

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lifeinterrupted
Regular Member


Date Joined Mar 2011
Total Posts : 103
   Posted 6/16/2011 10:07 PM (GMT -6)   
Hi all ;-)!! K it's been 2 weeks and I have changed the whole wafer pouch a couple of times but for some reason as reading he directions I wonder if I am completely confused, when my wafer is on should there be enough room to run my finger around my stoma in the wafer? I'm not sure I can explain except my stoma fits almost edge to edge in my wafer up almost to the Tupperware clicking part of that makes sense. Also I don't think I'm using the Eakin seal quit right it does not sit on my stoma as it should I think because it kind of pulled away I can see some of my skin around my stoma it is slight but I can see it and so I'm thinking output will get in there!!!! PLEASE help with any instructions!!!!! I would be so appreciative thank you ;-)
Dee stay at home mom of my 2 beautiful children
dx with uc July '10
June 02 '11 the creation of Stella the stoma LOL! ;-)

Prov3:5,6

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 6/16/2011 11:05 PM (GMT -6)   
Coloplast and Hollister wafers have a marked line on the back of their wafers that you are not supposed to cut past. As long as you are within that, you should be okay. You could also always order some samples of the next size up and see if you like those better if you are right between sizes. Getting the bigger size also means a bigger wafer footprint though, which is the downside. Convatec wafers are a little harder as they don't have those marking lines on the back. I just ordered the size the rep recommended and try to get my stoma in the middle.

Eakin seals can be tricky. I was having the same issues with my skin showing. Even though I would cut my wafer the right size, I could see that the Eakin was under there not really completely touching my stoma... and leaving some exposed skin. They do swell, but if your skin is showing several hours after putting the ring on that isn't good. One issue I was having was stretching them to the correct size. I would put them over the top of my stoma (like you would put a shirt over your head) and realize that I had stretched it too big. Or, I would get wetness on it as I slid it over the wet stoma and it wouldn't stick well. Now I tear the Eakin open on one side, hook it around the base perimeter of my stoma and then press the torn edges back together so that it is really tight around my stoma with no skin showing. This has solved the wetness issue and has helped me get it to the perfect size. When I do this I also try to get my stoma in the position that it normally likes to lie. I have a slightly longer stoma (1.25 inches tall) and so it sort of flops downward. I make sure it is in this flopped over position when I put the Eakin on. If I don't, as soon as it flops, skin shows on the top because the stoma sort of stretches away from the Eakin. Also, it is okay to manipulate the Eakin with your fingers a little bit to press it closer to your stoma. They still stay sticky. I asked the rep about this too and she said it is fine to touch them.

It is hard to describe this stuff in writing, but hopefully it makes sense.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 6/17/2011 4:36 AM (GMT -6)   
Hi Dee,
It sounds like your doing a bit better than you were and am very happy for you. This is just a slight hiccup and you will find whats right for you. I use the 2 piece coloplast (sensura) pouch and don't have to cut the wafer at all as its perfect size for me. Do you have a stoma size guide that comes in you box of pouches? I do and lucky for me coloplast have the exact size so my pouch fits very well around my stoma, but I had tried lots of seals including the sure seals and found it didn't work that well for me as I did have leakage under it and it became so itchy I had to change way too often because it drove me crazy, and also felt like I could smell it. So I went back to basics and use paste and it works really well for me so I will be sticking with that. My stoma doesn't stick out very far at all so the seals are not for me, but I had to have something cause I had a right hemicolectomy a few years ago and my stoma is close to that and the scaring has left a slight dip on my tummy and the paste takes care of that. If I were you I would go to see your stoma nurse and get her to take a look at it and she can suggest what could work best for you. I wish I could be more help, and hope that helps somewhat, please let me know how you get on. Take care and keep smiling
Doreen

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 6/17/2011 4:38 AM (GMT -6)   
Just read what I had written and I mean't to say my base plate fits well around my stoma not the pouch lol. I'm having a blonde moment :-)

lifeinterrupted
Regular Member


Date Joined Mar 2011
Total Posts : 103
   Posted 6/17/2011 10:48 AM (GMT -6)   
Thank you ladies!!!! As usual I need help lol!! ;-) it is such a learning curve Im sampling a hollister convex cut to fit right this sec but I don't think I like it but what I was saying about having enough room to run my pinky around my stoma in the wafer there is enough in this one to do that. Also my stoma is a loop and oval so might be a little more difficult. I tried the convatec Moldable and there was not enough room to do that. So now I'm waiting for my coloplast cut to fit convex samples to get here. Hoping that goes really well!!! I've heard really good things about coloplast and their adhesive being skin friendly and I definitely like their paste!!! So I got the medium sure seals and these things seem gigantic!!!! Anyone get the small and works as far as size? Thanks again ladies foe your help!! ;-)
Dee stay at home mom of my 2 beautiful children
dx with uc July '10
June 02 '11 the creation of Stella the stoma LOL! ;-)

Prov3:5,6

Post Edited (lifeinterrupted) : 6/17/2011 9:53:01 AM (GMT-6)


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 6/17/2011 7:46 PM (GMT -6)   
Don't know if these might help but another product I tried was stoma collars from salts (Dermacol is the name of the collar) the product number is DC23 but once again check the size of your stoma and give them a call as well for some samples. Glad to be here for you, good luck and let me know how u go, :-)
Doreen
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