Sno, I am sorry to hear this news, and I worry about the same thing for myself -- I have also taken 6MP (couldn't get up to the right dose, due to liver function issues), remicade, cimzia, antibiotics, humira, etc. I had the surgery because steroids were the only drugs left, and even they didn't always work that well. Fortunately, now the docs are thinking I'm more likely to have UC than Crohn's (was the reverse for the last several years).
Did you have small intestine issues earlier?
I hope things get under control soon and your gi doc figures something out....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery