I am glad my site helped. I know has scary it is. From my bed in the hospital when first facing the possibility of surgery, I searched out every outdoors person on the internet with an ostomy that I could find and emailed them. It felt strange to be emailing strangers with my medical woes, but they all helped me so much.
My stoma is 2 inches to the right of my belly button and then 2 inches down. The top edge of my stoma is in line with the most bony part of my hip bone. I had no idea where my stoma would be. I wore my favorite jeans (and brought my climbing harness and backpack which had waistbands I also wanted to work with my stoma) with me to my meeting with the stoma nurse and she figured out a good spot. You don't want the stoma to be right under a tight waistband or above it. If the stoma is above your waistband, the waistband will cut off the pouch mid-way so that output can't slide to the bottom. This can cause blowouts. Overall, you want your stoma to be below your waistband/beltline.
With my usual mid-to-low rise pants, the bottom edge of my waistband falls right at the top edge of my stoma. So the pants do overlap the pouch, but just at the very top. Once in a while, the waistband of my pants sinks down so that it is right over my stoma. However, I am thin so when this happens, my jeans are actually more resting on my hipbones than my stoma. Even when my waistband ends up positioning over my stoma, because of the hip thing it is not tight or cinched over my stoma. Nothing is constricted and things flow just fine. Hard to describe in writing. Hope it makes sense. Everyone is built so differently, which is why it is hard to say exactly. That is why that meeting with the stoma nurse is so crucial!
Also, I am not sure if you are getting a reversal or not, as stomas can be a bit different with the different types of surgery (can be loop or end). I am not clear on the difference, but someone else on here could chime in. My ileostomy is permanent so I have an end ileostomy. One of the key things a GI nurse told me was not to get a stoma that is too short or flush with the skin. Flush stomas can pump stool under the wafer. I had forgotten to ask my surgeon about
this at the consult, so right before I was wheeled back to the operating room, I asked him to please make sure my stoma was long enough. He laughed and said not to worry and that he made them all a good length. My stoma ended up being great! It roughly 1.25 inches tall and points toward the bottom of my pouch. Because of this, I have only had one leak in seven months (which was more due to incision drainage a couple of days after surgery getting under my wafer).
Best wishes and let me know if you have any more questions.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010
Post Edited (Blueheron) : 6/21/2011 7:04:33 AM (GMT-6)