Not doing well

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answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 6/23/2011 1:16 PM (GMT -6)   
 I am still in the hospital. I have a post-op ileus. I had an ng tube, but I continued to thow up, so the doctor had it removed today. The stoma has  produced 30 or so cc's of output and no gas.
 
I am still in alot of pain, despite the catheter.
 
Please pray for me that my intestines wake up. I feel terrible. I am on NPO and can only wet my lips with ice chips.

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 6/23/2011 2:58 PM (GMT -6)   
hang in there Tracy, so glad to hear from you! i know exactly how you feel right now... you'll make it, an ileus passes eventually and you'll hopefully be on you're way to recovery soon. my prayers are with you sweets!! thinking of you!!!

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 6/23/2011 4:33 PM (GMT -6)   
So sorry, I hope things improve soon. Hang in!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/23/2011 6:19 PM (GMT -6)   
Tracy,

Good to hear from you. I was so worried I called your hubby yesterday. He sounds very nice and you are lucky to have him. He said you were having a rough day. Yes, eventually the ileus passes. Mine was 3 weeks; yours will be NO where near that long because I had been unable to eat for 7 months before my adhesion lysis and ileo, so my guts had been asleep even BEFORE the surgery.

I remember the pain of ileus though, it was horrid. I assume you also have IV hydration and pain meds. Throwing up even with an NG tube? Not a good thing.

I will pray for you. We are all cheering you on and in your corner. I think it was the colon removal that was the biggest part of your surgery, that may be why this surgery is harder to recover from. You had more done. Hang in my friend, Rosemary

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 6/23/2011 6:21 PM (GMT -6)   
Oh, yeah, I forgot about you having the indwelling epidural. Good thing you have that. If you need more pain relief have something put into your IV.

Good luck, keep us posted, Rosemary

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 6/23/2011 7:41 PM (GMT -6)   
Sorry you are having such a hard time of it...hope this passes real fast for you and on to normal healing and recovery.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Janiepain
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Date Joined Jan 2007
Total Posts : 662
   Posted 6/23/2011 8:10 PM (GMT -6)   
Tracy,
Hang in there girl. We're all praying for you!!

Janie

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 456
   Posted 6/23/2011 10:43 PM (GMT -6)   
Sorry to hear about the Ileus :( I know a lot of people here have gone through it too, hopefully it wakes up soon! I know when I had my surgery I wasn't able to eat for almost a week and then they let me eat, I threw up and couldn't eat for another week. Hang in there and keep us updated

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 6/23/2011 10:59 PM (GMT -6)   
That does sound hard!! I will pray for you and hope things improve quickly.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 6/24/2011 4:35 AM (GMT -6)   
I have had a little output, but no gas. My stomach is distended and I am having a hard time doing the amount of walking that I need to do.

I feel more exhausted than last tim and have been sleeping alot..

I am still NPO and have the epidural pain pump since I can't eat ice chips.

I had an attack of vomiting last night and it was horrible. Rosemary, you never threw up with the NG tube? i dont plan on eating anytime soon.

The little bit of output that I have had is green and STINKS> Is this how it is going to smell since it is an end and not a loop? it smells like poop from a colon???

my docsaid he expected that my intestines would wake up slowly with the inertia. My brain is still so foggy and I am thanking the LORD that my husband, mom, friend, and sister have all taken turns stayinh up here with me.

Lixxie texted me and said the new adhesion spcialist turned her away. She was on her way to Mayo CLinic.
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia.
June 20, 2011-I will have a total colectomy, hernia repair, tummy tuck, and end ileostomy. I will keep my rectum since it is healthy.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 6/24/2011 4:42 AM (GMT -6)   
Output that's green and stinky is bile, and I think everyone has it at first with an end ileo -- but it will be better once you can eat.

Vomiting is awful, I feel for you. I vomited all night when I got home from my surgery,and I think it was one of the worst nights of my life....

Hang in. Hope things start to improve.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 6/24/2011 10:11 AM (GMT -6)   
Hey there answers
 
You are only on day 4 so please give it time - it is hard but give it several more days  and you will feel better.  Glad you have an epidural pump - i was told that some meds make it hard for the bowel to wake up e.g. Morphine.  You have had a lot done but you will be fine in the end wink   xx
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR/ODS/diagnosed slow transit constipation
2007: Sigmoid resection -MRI showed twist - (made colonic inertia worse but cleared obstruction)
March 2009: Total colectomy/loop ileostomy - quality of life 100%
23 Sept 2010: Ileostomy reversal - not going well - motility/rectal issues being investigated

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/24/2011 11:07 AM (GMT -6)   
Hi Tracy,

Hang in. No, the green smelly stuff is just bile. End ileo output is mostly no odor at all. I think you are in a catch 22. You need the pain meds. Pain meds slow things down in addition to the ileus. They also make you sleepy that is why you can't walk as much as you are supposed to. BUT without the pain meds you'd be on the ceiling. So in time my guess is they will taper the pain meds, thus allowing you to walk more, this in turn will wake up your guts.

I remember practically having to walk to Canada. No I never threw up with my NG tube. When I started to throw up they put the NG tube in and I deflated like a balloon and felt SOOOOOO much better. The suction on the NG tube just draws up and out all the fluids that cannot at this time pass out into your bag. I was like a God send to me. Are you sure they had the suction turned up sufficiently? To my knowledge the NG tube should eliminate the vomiting issue and deflate you so you feel so much better.

If they have to put it back in, have them spray your throat with numbing agent and have them give you sips of water as you swallow it. It's not as bad going in as one would think. THEN make sure they turn the suction on enough. I think the additional surgey of having your colon removed is what made this surgery much harder to recover from. That is why my ileo doc just left mine in me as my situation was different from yours and he knew I couldn't tolerate too much surgery as I had alllllllll those adhesions.

Hang in and try my ideas if you need to. Don't hesitate to ask your questions and concerns. So glad you have people to be with you. Good luck Rosemary

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 6/24/2011 12:49 PM (GMT -6)   
I am still feeling very nauseas. YUCK.

Rosemary, I forgot to ask for my colon. DANGIT Because Dr Singh said the entire right side of my colon was full of mucous. This shows that my rectum will never work. I told him I only had 2 successful attempts at getting mucous out with enemas and he said that he could definitely tell. Isn't that weird?

He said getting out the rectal mucous should not be as much as a problem, but if I did have issues, that he would just suction it out in his office.

My stoma does not look good. It is swollen, seems short, and looks oval shaped. Dr Singh and the stoma nurse both said it will look better as the swelling goes down. I sure hope so.

I hope I feel better soon. My stoma has made some output, but still no gas and my stomach remains hard and distended. I look like I am expecting a baby.

I have been walking alot today, but it is obviously not enough.
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia.
June 20, 2011-I will have a total colectomy, hernia repair, tummy tuck, and end ileostomy. I will keep my rectum since it is healthy.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/24/2011 1:22 PM (GMT -6)   
Tracy,

I am not hearing nausea or vomiting or needing of NG tube yet and I am hearing you are walking and that you are having a little output.......so push yourself to walk a bit more each time you get up, hard as it is. Sounds like you may be turning the corner into awakening guts. What was tough with my ileo surgery was I would figuratively take two steps forward and one step back meaning some progress then set back. I thought I'd never get out of there. BUT I did.

Am not surprised you had a TON of mucous in right side of colon, remember your colon did not push poop along so it would not push mucous along. Good that Dr. S will just suction your rectum if you need it. Cannot understand why Hodaya's doc won't do that for her, takes like all of about 2 minutes or less and with only your rectum a minute tops.

Keep walking, walking, walking,

Just went for my B12 shot. The new nurse did sub-Q up in the muscle (IM goes in the muscle not sub-Q) Sub-Q goes in the lower fleshy part of the arm. I don't know what nursing school this lady went to but there was B12 all over my arm, down on my clothes, onto the chair. I must have gotten very little of it in me. I am going to ask for my former shot nurse back. This is not that big a deal but the idea is to have the B12 in me not ON me. Thought you could use a bit of a chuckle at this point, so there it is :-)

Keep walking and keep updating. Cheering you on Tracy, Rosemary

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/24/2011 1:23 PM (GMT -6)   
Tracy,

Yes your stoma will look better and change as your swelling goes down. Your doc and nurse are correct. Rosemary

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/24/2011 5:46 PM (GMT -6)   
Tracy,

I just reread your post and yes, for Lizzie, things did not turn out well in Cincinnati with the adhesion specialist. Last I knew she was back at her near-local ER but is she now on her way to Mayo? I sure hope they can help her. That was the place that turned me away, basically, because they said small bowel adhesions were too dangerous to lyse. That was one of my lowest moments. I cried all the way home from the place. Hoping the best for her.

Praying that your guts wake up SOON! keep us posted. Thinking of you. Rosemary

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 6/24/2011 9:19 PM (GMT -6)   
Tracy,

If you don't feel up to walking, try rolling s l o w l y from one side to the other while you are in bed. It really does help as it lets gravity help you at a little different angle. I had success doing this. Well, I went from looking like I was 8 months pregant to about 3 pretty quickly!!! Hang in there. :)
CD diagnosed in 1979. Ileo in 1984. No recurrence of CD! Some issues with adhesions still.
Husband diagnosed with ALS (Lou Gehrig's Disease) March 2008 - taking one day at a time, enjoying our time together.

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/24/2011 9:52 PM (GMT -6)   
Tracy,

I know this does not make it easier but an ileus is very common. My son had one after his first surgery. I know every day seems to be an eternity but it WILL pass. It is easy for us to say but the best thing you can do is get up and walk and walk until you can walk no more.
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/24/2011 10:23 PM (GMT -6)   
Tracy,

I'm praying that your intestines wake up soon! Mine took 10 days, which seemed like an eternity at the time, and I was vomiting, too, and needed an NG tube. It was hard to get up and walk when I was attached to the wall with the NG.

When my intestines finally did wake up, it was like the flood gates opened, and I was emptying my pouch almost every hour! Please don't let them stop your IV fluids, because they made the mistake of doing that with me, and I ended up severely dehydrated and had to go to ICU for a few days.

Hang in there, they will wake up soon! :-)

Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 6/25/2011 9:24 AM (GMT -6)   
Post surgical ileus continues. HELP> I have had some output from the ostomy, but not alot and absolutely no gas. Last night was terrible because everytime I would lay down the slightest bit, then my stomah contents would back up into my throat. This has been much worse than I remember the last time being, but I know that our brains can forget traumatic events.

My abdomen is still distended, but I think it may look slightly better??? Wishful thinking maybe. My stomach burned like it was on fire most of the night and morning too. I am going to ask my doctor what he thinks about that? Is that normal?

I still have my epidural pain pump, but the pain medication management team has already informed me that this will have to go no later than tomorrow. I guess I will then get pain med by IV because I don't think I would keep a pain pill down in an empty stomach?

I have been given reglan, pepcid, and zofran to try to combat this relentless nausea.

I hope I never have to have another surgery again. I am so miserable. ANd the nights are 10x as hard as the daytimes.
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia.
June 20, 2011-I will have a total colectomy, hernia repair, tummy tuck, and end ileostomy. I will keep my rectum since it is healthy.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/25/2011 9:58 AM (GMT -6)   
Nights are always worse. THey should be giving you something mild for sleep like ativan. Quick acting lets you get to sleep then wears off but by then you are asleep. I have been severely depressed and GOTTA get out of it. Trying a dance class tonight. WHat you are going is through is what has me so terrified of ever having to have another surgery. It is horrid isn't it! Time and walking will cure, but it is relentless isn't it?

All my prayers are with you. Rosemary

honestwoman50
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Date Joined May 2009
Total Posts : 833
   Posted 6/25/2011 2:22 PM (GMT -6)   
Tracy,  I had a total colectomy and had problems with ilius before my surgery and still to this day I have problems with it.  If the gas dont move my bowels wont move till the buble moves...  I for the first year and 2 months was in the hospital 2 times a month every month for at least 4 days at a time, so for the past 2 months have not got the gas loops that put me in the hospital but still deal with my stomach making too much gas.  Now I have a ulcer and waiting to see if its a bleeding one or not have not gotten the blood work back yet.
But for the past several weeks I have been so ill with stomach and intestinal issues, I am about ready to give up.  But I wont...In Aug 8th they are doing thyroid surgery for a good possibility of cancer...so have to wait and see on that one.
Supposta see a gastro doc for a endoscopy but we only have 2 gastro docs in our sm. town and my consultation is not till Sept 16th...dont think I can wait that long so going to call some docs a hr away to see if I can get into one sooner.
Im down to 123 lbs...skin and bones as I am 5'10
so the docs are concerned cuz I cannot eat.  Gosh what does not kill ya makes you stronger, so they say.  Well I am still alive 19 surgeries later but im tired of being sick, so don't know if that really holds true.
Plus my sister is visiting from Fla, and cant even enjoy anything.  Well enough of my bla bla bla...  So tracy I know how you feel.
 
Take good care and blessing for all who are suffering today...
 
Leslie

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 6/25/2011 2:26 PM (GMT -6)   
Tracy, never let them leave it in to where its noting but blood filling the canister...they did that to me when i was on Vacation in Calif... my canister was full of blood , called for nurse for hrs. no one showed up, was ignored and gaging on blood. So called my sis and she called the hospital and told them they best get there ass in my room stat...nope another hr or so... Still thinking about suing them , as the one nurse told me its shift change and you will have to wait....What the heck...so be very careful sweetie.

Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 6/26/2011 11:51 AM (GMT -6)   
Wow Tracy - I wish I could say something to make you feel better but I kind of know what you are going through. The three weeks in the hospital were torture and didn't really improve until I could pass some gas, which was the last couple of days. I felt like I was delivering multiples. I looked like it too!

The narcotics definitely slowed things down...

The green stuff was disgusting and even worse when you are throwing up the same stuff you should be putting out.

I hope things improve for you soon.

nanci
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